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Topic: Vaginal Spotting

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Sep 12, 2020 04:07PM - edited Sep 12, 2020 04:07PM by cjafarm

cjafarm wrote:

I was taken off of Tamoxifen two years ago because it caused a big drop in my blood platelets. I'm 65 and went into menopause at least 10 years ago.


This morning I started spotting. Will make an appointment Monday morning.


Has any had this happen after not taking Tamoxifen for some time?

Dx 10/6/2015, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/5/2015 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 12, 2020 10:21PM Moderators wrote:

Hi cjafarm, sorry you're experiencing this! Just dropping by to give your post a "bump" into the Active Topics in the hopes of getting you some answers.

Hope this helps!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Sep 12, 2020 11:18PM wallycat wrote:

Vaginal spotting is different from uterine spotting but how we can tell is impossible. If it is vaginal spotting, it could be atrophy and your skin is cracking and bleeding in the vagina.

Tamoxifen can increase uterine lining and can cause polyps and fibroids, which can cause uterine bleeding.

I ended up with 3 polyps on an incidental finding and never had spotting. Some gals have posted that their atrophy caused spotting.

Best to you.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Sep 15, 2020 10:34AM - edited Sep 15, 2020 10:35AM by cjafarm

Thanks Wallycat for the response. I needed someone.


By Saturday afternoon, I went from spotting to flowing. Saw my doctor early Monday morning and she did an initial exam. Had an ultrasound in the afternoon. Received a call from her in the late afternoon to ask about preferences for scheduling a biopsy.

US report - Uterus normal in size. Thickened ill-defined endometrium, measuring 18mm. Cervix within normal limits.

Anechoic left ovarian cyst measuring up to 4.2 cm which measured 2.5 cm in 2017. Normal color. A slow growing ovarian cystic neoplasm is difficult to exclude.


DAMN tamoxifen!



Dx 10/6/2015, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/5/2015 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 15, 2020 12:05PM wallycat wrote:

Just to walk you off the ledge a bit (yeah, I know, hard to do), I was in an ovarian cancer study in Seattle and the director told me they had a 70 year old lady who actually ovulated. The cyst resolved within 3 months on its own. Of course, it needs to be evaluated, but just hope you're not jumping to the ugly place right away. I'm sure tamoxifen is stirring up things and a thick endometrium is number one that it is noted for.

Ovulating never stops, according to these studies, it just becomes more and more...and more infrequent. Lovely.


Post back and let us know what happens.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Sep 18, 2020 01:35PM cjafarm wrote:

Wallycat,

You nailed it! I was walking that ledge and it seemed to be a narrow ledge.

On Tuesday, I had my annual and final appointment with my breast cancer oncologist. He had read the report and spent the majority of our appointment talking about it. He was great and very comforting. He reminded me that all of my blood work for the last two years, including now, was great. That vaginal bleeding is giving me a heads up that something needs to be checked. If I do need a gynecological oncologist he warned me that there is only ONE in the Des Moines area. Hard to attract doctors to central Iowa.

On Thursday, I had a biopsy. I have a pretty high pain tolerance and that thing hurt. This was a new gynecologist for me and she too was wonderful. Her whole staff was great. She said based on the results we have a Plan A and a Plan B. And we'll know which plan we will use when the results come back next week.

Neither doctor thinks I can blame the Tamoxifen for the the thickening since I have not taken for almost two years.


Results should be known next Tuesday or Wednesday. I'm going to enjoy a beautiful fall weekend.


cja



Dx 10/6/2015, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/5/2015 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 19, 2020 12:37AM wallycat wrote:

Best to you.

I am not a doctor but I have to disagree with their rendition on tamoxifen not being blamed for the thickening. That is what tamoxifen DOES. Our bodies can reabsorb some of the lining once we're off the medication but it takes time, and sometimes, I suspect women will get a bleed to thin the lining. Always requires verification that that happened. Tamoxifen acts like estrogen in the urogenital area but as an anti-estrogen through-out the rest of the body....and there are enough pubmed peer reviewed articles that show women get thicker linings taking tamoxifen. You should print it and let them read it. grrrrrrrrrrr.


We are finally getting some clean air up here in the PNW. My heart goes out to all the places dealing with the blazes.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012

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