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Topic: No side effects while on Tamoxifen

Forum: Hormonal Therapy - Before, During, and After —

This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Oct 1, 2021 06:22PM

bkim_1974 wrote:

Hi,

I'm newly diagnosed with invasive lobular breast cancer and taking Tamoxifen 20mg. I have had zero side effects and was curious if anyone else has been lucky enough to have zero side effects? I am nervous that the medication is not working since I have had zero side effects and have been taking it for 3 weeks now. Was hoping there are other people out there that are taking Tamoxifen with zero side effects.

Thanks!

Brenda.

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Oct 1, 2021 07:45PM exbrnxgrl wrote:

bkim,

I have not taken tamoxifen but would like to point out that NOT having side effects from a medication does not mean it’s not working. Side effects are something that might happen to some people but lack of side effects doesn’t mean anything. I think that it’s great and hope you continue to have a side effect free run. Take care.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Oct 1, 2021 09:26PM Moderators wrote:

Welcome, bkim_1974! We're so sorry you find yourself here but we hope you find this to be a supportive community. We echo what exbrnxgrl shared - a lack of side effects doesn't indicate the treatment isn't working as it is supposed to work; breast cancer treatments have a vast spectrum of side effects, and some people may experience all, some, or none at all. They're possible, but not guaranteed. We hope your treatment continues to go well!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Oct 2, 2021 12:50AM bkim_1974 wrote:

Thank you exbrnxgrl and The Mods.

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Oct 2, 2021 05:49AM Rah2464 wrote:

I am thrilled you are not having side effects from the medication, how wonderful! While a lot of us do, you never know until you try it. If you are interested, there is a test to see how well you metabolize Tamoxifen. I had mine done through my oncologist - from OneOme. I think the metabolic pathway is CYP2D6. However, some insurance plans may not cover the testing so you would want to know that up front.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 2, 2021 12:15PM - edited Oct 2, 2021 12:19PM by ShetlandPony

https://www.verywellhealth.com/hot-flashes-linked-with-less-risk-better-breast-cancer-survival-4120964
“A 2013 study looked at over 9,000 women who were treated with either tamoxifen or exemestane. Those who had hot flashes had better disease-free survival (by 27 percent), overall survival (45 percent higher) and fewer distant metastases (19 percent less chance that their breast cancers would spread to distant organs such as the brain, lungs, liver, or bones.)1 “

From BCO’s page on Tamoxifen:

“Hot flashes or night sweats from taking tamoxifen can be troubling. But a 2008 British studysuggests that women who experienced hot flashes and night sweats while taking hormonal therapy medicine were less likely to have the breast cancer come back (recur)“

Maybe ask your oncologist what the most current evidence says about this.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Oct 4, 2021 12:43AM datagirl wrote:

I’ve been taking it for a year and haven’t really had any side effects except some annoying hot flashes. Those could just be from menopause though. It seems to be working so far. My last manmogram was all good

Surgery 11/5/2020 Lumpectomy: Left, Right Dx 11/13/2020, LCIS, Both breasts Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 22, 2021 01:51PM TwoForOneSpecial wrote:

I've also had minimal side effects from Tamoxifen. I've been on it for about 9 months. I have what I refer to as "warm flashes" - they're a little annoying, but are generally controlled by pushing off the blankets in the middle of the night, and then pulling them back on 5 minutes later. I do not get the full blown night sweats.

I don't remember exactly, but I think it may have taken more than 3 weeks for even those mini-hot flashes to start once I started on Tamoxifen, so you may still have some side effects coming (for better or for worse).

Good luck!

Rachel

Diagnosis received the day after I turned 50. Happy birthday to me! Dx 8/26/2020, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 10/21/2020 Lumpectomy: Right Radiation Therapy 12/3/2020 Whole-breast

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