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Topic: Period returns after completing 10 years of Tamoxifen

Forum: Hormonal Therapy - Before, During, and After —

This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Oct 3, 2021 03:44PM - edited Oct 3, 2021 03:46PM by Kaseydombrowski

Kaseydombrowski wrote:

Hi, I'm not new here but returning after many years of being gone. I had stage 3A IDC at the age of 35. My periods stopped after my first chemo treatment 12/2010. I finished chemo and radiation then began taking Tamoxifen 6/2011. My periods never returned. I am currently 46 And actually stopped Tamoxifen June of this year. I just had my yearly Gyn check up 2 weeks ago but The night before and day of I had pretty bad right ovary pain. It felt just like ovulation pains I had years ago.Dr scheduled me for an ultrasound this week but I have noticed today I'm now bleeding like a light period. I even have the lower back cramps like I did when I was having my periods before cancer.

Has anyone had they periods return this many years out after stopping taking Tamoxifen?

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Oct 3, 2021 08:58PM Moderators wrote:

Hi Kaseydombrowski, we have heard that your periods may start again - or get heavier for those who continue to get periods while on Tamoxifen - once you stop taking it, as long as you have not gone through menopause naturally while taking the drug. In other words, you have likely not gone through menopause naturally yet.

That said, it's probably worth letting your doctor know, and just keep track of it.

Hope to hear from others, but congratulations on finishing your 10 years.

Warmly,

The Mods



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Oct 6, 2021 04:36PM Moderators wrote:

Bump. Can anyone else weigh in with their experiences?

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Oct 6, 2021 06:23PM pure0323 wrote:

I was 40 when diagnosed, at the time had avery regular period. Period stopped after first chemo and had no bleeding until I came off Tamoxifen and started AI. Gyno did blood work and consulted with my oncologist, it was determined that my ovaries were firing up again so I had to start Zolodex. I had another episode of bleeding so more investigation. I ended up having a D&C and she found a fibroid that's was causing the bleeding. I hope you get answers soon.

Dx 7/21/2011, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 8/10/2011 Mastectomy: Left, Right Chemotherapy 9/9/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 6, 2021 09:30PM Kaseydombrowski wrote:

Thanks for posting your experience. I go Friday for an ultrasound so I’m hoping it’s nothing. It was quite nice not having a period for 10 years.

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Oct 6, 2021 10:40PM pure0323 wrote:

🤣 having a period sucks! Glad your going Friday, check back in and give an update.

Dx 7/21/2011, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 8/10/2011 Mastectomy: Left, Right Chemotherapy 9/9/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)

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