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Topic: Anxious about endocrine therapy

Forum: Hormonal Therapy - Before, During, and After —

This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Oct 21, 2021 12:49AM

Trulysilver wrote:

I had little anxiety about the surgery for [HER negative, hormone positive] breast cancer. I had a small invasive ductal carcinoma [1..5 cm] and DCIC in the right breast and ADH in the left breast - this was my 8th biopsy since my 30’s - so I opted for a bilateral mastectomy. Sentinel nodes were clear.

I have been reading materials on the internet about endocrine therapy and the potential side effects and I have not worked up the courage to take the meds. I want to be able to bike and hike and enjoy life andI fear diminishing my quality of life just as I have retired. I have a friend with osteoporosis, who has suffered numerous broken bones and necrosis of the jaw after taking meds to combat this. Am I over thinking this and assuming the worst? Are the experiences with this therapy as bad as it sounds

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Oct 21, 2021 12:58AM - edited Oct 21, 2021 03:21AM by exbrnxgrl


Although you are smart to research, please remember that not everyone gets severe side effects. Yes, some people do. Many experience milder side effects that can be managed. I have been on aromatase inhibitors for 10 years. I have joint and some bone pain but I manage with Aleve and cannabis at night. I also stay active which is very helpful. I watch my calcium and Vitamin D levels. I recently retired but taught first grade for 10 years after my dx while on these drugs. I might not be able to climb Mt. Everest but it’s hardly stopped me from doing most everything else

ONJ is more likely a side effect of a bone strengthening drug, not the anti hormonal drugs. I will tell you what I’ve said to anyone who has expressed hesitation over these drugs. Try and if you have bad se’s you can stop. Take care

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Oct 21, 2021 04:03AM AliceBastable wrote:

Tamoxifen strengthens bones if you want an alternative to AIs, but some people have negative side effects with it, too. You'd need more gyn monitoring on it, though. There are a LOT of AIs, and most MOs will work with you to find the one that gives you the least problems.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes

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