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Topic: Well crap (exemestane)

Forum: Hormonal Therapy - Before, During, and After —

This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Dec 21, 2021 10:54PM

Nancy2581 wrote:

now I know why not a lot of people are on exemestane (aromasin). $60 for a 30 day supply and that’s with insurance. Out of pocket CVS said $499. Holy cow. Those of you who take it may I ask what you pay?

Thanks

Nanc

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/21/2014 AC + T (Taxol) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/28/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/16/2017 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Posts 31 - 40 (40 total)

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Jan 14, 2022 03:42PM tinkerbell65 wrote:

I was switched to exemestane in December, my doctor advised me to wait two weeks after stopping the letrozole. The pharmacy was going to charge me $320 for a month supply . I checked with Medicare, and was told it was because of my deductible of $450. Instead of meeting my 2021 deductible at the end of the year, I opted to wait a few more days to get the exemestane. January's supply cost me $42, or around that.

The good news is that the joint pain is much less severe since being off the letrozole.

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Jan 14, 2022 05:34PM Margun wrote:

thinkerbell- Letrozole gave you join pain. I have also osteoporosis and seems it’s kiwering my rbc and wbc count. I see if my no will find a solution.

Dx 1/15/2019, IDC, Right, 1cm, Stage IIA, Grade 3, 0/3 nodes, ER+, HER2+ Chemotherapy 2/15/2019 AC + T (Taxol) Hormonal Therapy 10/3/2019 Femara (letrozole) Surgery Mastectomy: Left, Right
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Jan 14, 2022 06:16PM gb2115 wrote:

I was able to access my DEXA results (haven't seen the doctor yet), and can see that I already have osteoporosis before even starting the Aromasin. I wonder what they will do for me with that...I have such GI issues (GERD and esophageal motility problems) that I would be scared to take the oral meds. I keep reading about Prolia...I definitely hope it's an option. I see it's not covered through my insurance, but maybe paperwork would override that.

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.6 cm ER/PR+, Her2 -. Gr 2. 2/2 nodes positive. AC/T. Age 42 Dx 10/2016, IDC, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 11/4/2016 Lumpectomy Dx 5/3/2021, IDC, Right, 1cm, Grade 2, 2/2 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Lymph nodes Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Right Surgery Lymph node removal: Sentinel; Mastectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2022 11:28AM HersheyKiss wrote:

GB, Zometa and Reclast are both zoledronic acid (a bisphosphonate) and given as a short IV infusion. One or the other may be covered by your insurance plan.

Dx 3/1/2017, ILC, Left, 2cm, Grade 1, 3/16 nodes, ER+/PR+, HER2-
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Jan 15, 2022 05:09PM gb2115 wrote:

Thanks HersheyKiss!

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.6 cm ER/PR+, Her2 -. Gr 2. 2/2 nodes positive. AC/T. Age 42 Dx 10/2016, IDC, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 11/4/2016 Lumpectomy Dx 5/3/2021, IDC, Right, 1cm, Grade 2, 2/2 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Lymph nodes Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Right Surgery Lymph node removal: Sentinel; Mastectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 16, 2022 03:48PM VioletKali wrote:

Rather than an AI, there is a drug that is called Toremifene. It is like tamoxifens older, better looking cousin that doesn't have side effects.(beat you) 🤣

It is the same class as Tamoxifen, so it doesn't increase osteoporosis-it can actually help.

My tumor was 1.7cm, 10% of it was noted to be DCIS. No family history of cancer at all. Discontinued Chemo d/t uncontrollable side effects which caused hospitalizations, blood transfusions, and poor quality of life. I am doing well! Dx 6/19/2014, DCIS, Stage 0 Dx 6/19/2014, IDC, 1cm, Stage IA, Grade 3, 0/10 nodes, ER+/PR+, HER2+ Surgery 8/18/2014 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 9/15/2014 Herceptin (trastuzumab) Chemotherapy 9/15/2014 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 16, 2022 04:01PM quinnie wrote:

I too was on letrozole for 1 1/2 years and the joint pain just kept getting worse. Was on a drug holiday for 2 weeks and started exemestane about 6 weeks ago and so far so good. Just mild joint pain. My medicare part d cost was 150.00 so I used Good RX and cost is 50.00 per month. I need to reevaluate my part D next year as my plan hasn't covered much. When I turned 65 I was on no meds so I chose the cheapest plan. Now due to BC I am on 4 meds. Letrozole also increased my B/P and cholesterol. UGH. but better than getting BC for a third time.

Dx 11/30/2007, DCIS, Right, 1cm, Stage 0, Grade 2, 0/0 nodes, ER-/PR- Dx 2/26/2020, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Radiation Therapy 5/14/2020 Whole-breast: Breast Hormonal Therapy 5/25/2020 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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11 hours ago Nancy2581 wrote:

Just thought I'd update. My oncologist had the BCI test run on my tumor (that is one expensive test). Turns out that staying on an AI at this point (it's been 7 years) won't help me. My chances of the cancer coming back are the same whether I take AI's or not. Soooo I don't have to take them. Thank God. Hoping you all don't have to take them longer than necessary either.

Cheers

Nancy

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/21/2014 AC + T (Taxol) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/28/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/16/2017 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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11 hours ago exbrnxgrl wrote:

That sounds good! Unfortunately at stage IV I will only stop taking them when they no longer work, but I can’t complain about ten years of NEAD.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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11 hours ago ThreeTree wrote:

Congratulations Nancy!

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