Topic: Well crap (exemestane)

Forum: Hormonal Therapy - Before, During, and After — This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Dec 22, 2021 04:54PM

Posted on: Dec 22, 2021 04:54PM

Nancy2581 wrote:

now I know why not a lot of people are on exemestane (aromasin). $60 for a 30 day supply and that’s with insurance. Out of pocket CVS said $499. Holy cow. Those of you who take it may I ask what you pay?

Thanks

Nanc

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2-, Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Dec 23, 2021 05:49PM wondering44 wrote:

Thanks for sending me to the sites. My out of pocket until I meet my deductible is $377 for a 30-day supply of Letrozole at Walgreens. I can get a 90-day supply from Costco for $20.99 and have it shipped to my house. I will take that savings!

Surgery 8/18/2021 Lymph node removal (Right): Sentinel; Mastectomy (Right): Nipple Sparing Dx DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+, HER2- Dx DCIS, Right, 6cm+, Stage 0, Grade 3, ER+/PR+, HER2- Dx IDC, Right, 2cm, Grade 2, ER+/PR+, HER2- Dx IDC, Right, 6cm+, Grade 3, ER+/PR+, HER2- Surgery 8/31/2022 Mastectomy (Left): Skin Sparing; Mastectomy (Right): Skin Sparing
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Jan 3, 2022 05:56AM margun wrote:

am on letrozole for 2 years and I was diagnosed recently with osteoporosis despite taking calcium and vitamin D. By my doctor advise I am taking bisphosphonate now. But in sève emails here I see that there is a lot of reticence taking this med. I am too tired of taking meds, chimiothérapie already made me feel older, but besides that there is a specific concern related to bisphosphonates. It there any other choice given that all anti hormones have se?

My hope is that if by my next bone density measurement, in a year, all be better and I can stop it. But it is just a hope and I like to here from you your suggestions. I try exercise everyday (moderate such as walking stretching).

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Jan 3, 2022 06:04AM sam2u wrote:

I use Express Scripts for Exemestane and pay a $30 copay for a 90 day script.

Dx 10/9/2013, ILC, Left, 6cm+, Stage IIIA, Grade 2, 2/40 nodes, ER+/PR+, HER2- Dx 10/25/2013, ILC, Left, 6cm+, Stage IIIA, Grade 2, ER+/PR+, HER2- Surgery 11/1/2013 Lymph node removal (Left): Underarm/Axillary; Mastectomy (Left): Simple Surgery 11/12/2013 Lymph node removal; Lymph node removal (Left): Sentinel Surgery 12/13/2013 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Dx 12/23/2013, ILC, Left, 6cm+, Stage IIIA, Grade 2, 2/40 nodes, ER+/PR+, HER2- Chemotherapy 1/16/2014 AC Chemotherapy 3/18/2014 Taxol (paclitaxel) Radiation Therapy 6/17/2014 Breast, Lymph nodes Hormonal Therapy 8/9/2014
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Jan 3, 2022 06:19AM margun wrote:

Exemestane is another brand of letrozole? No se on this drug? How long you were on it? T

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Jan 3, 2022 07:03AM gb2115 wrote:

Exemestane and letrozole are different medications

First Dx IDC in 10/16 at age 38, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Lumpectomy + radiation + tamoxifen. Second Dx IDC recurrence in original location 5/21. 1.3 cm ER/PR+, Her2 -. Grade 2. 2/2 nodes. UMX + AC/T + Zoladex/Exemestane + Zometa.
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Jan 3, 2022 08:13AM exbrnxgrl wrote:

margin,

Here are the AI’s, both brand and chemical name. All can contribute to bone loss. Bisphosphonates have some serious, though not high frequency, side effects such as spontaneous femur fracture and osteonecrosis of the jaw (ONJ)

Aromatase Inhibitors

  • Arimidex (chemical name: anastrozole)
  • Aromasin (chemical name: exemestane)
  • Femara (chemical name: letrozole)
Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Jan 3, 2022 11:02AM margun wrote:

thank you for the info about Bisphosphonates. There is a better alternative to it to fight osteoporosis?

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Jan 3, 2022 11:20AM exbrnxgrl wrote:

margun,

Because of the downsides to bisphosphonates I was only on one, Aredia which is not used much in the US anymore, for three years. After my mo took me off of it I worked on increasing bone density through diet, lots of walking, and a 15 minute sunbath for Vitamin D, weather permitting . I live in Northern California so even when it’s chilly we often have strong bright sunshine. Many members take calcium supplements too.

Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Jan 4, 2022 06:33AM - edited Jan 4, 2022 06:51AM by margun

i have occasional bpressure drops. While doing my chores it happens that I become dizzy and feel lying down. I do not know if the Letrozole is doing it. Before BC I did not have this problem. I went through chimio and herceptin. Perhaps they had their effects on my heart? Anyone has pressure drops and what you do to prevent?

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Jan 4, 2022 06:45AM muska wrote:

Speaking of biphosphnates I want to mention serious side effects mentioned above are extremely rare and occur in patients who are stage IV and take them in different dosages and circumstances.

Newer drugs like Prolia not only improve bone density but provide an additional benefit of reducing the risk of bone mets. I was on Prolia for four years without any side effects and with excellent bone density improvement

Dx at 54 Dx 5/9/2013, DCIS/IDC, Right, <1cm, Stage IIIA, Grade 3, 7/11 nodes, ER+/PR+, HER2- Dx 6/13/2013, LCIS, Both breasts Surgery 6/13/2013 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 7/25/2013 AC + T (Taxol) Surgery 2/20/2014 Reconstruction (Left); Reconstruction (Right) Hormonal Therapy 3/12/2014 Arimidex (anastrozole) Radiation Therapy 3/23/2014 Breast, Lymph nodes Local Metastases 3/23/2014 Radiation therapy: Bone

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