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May 1, 2013 10:19AM
Padiddle - are you on warfarin? I am, 2 years now...but very very low dose 1mg. I've seen what the nurses have to do to pts who's ports plug up. The other thing is the flushing...my nurses have 3 syringes they flush me with after tx every 3 weeks. Sounds like you have been doin Abraxane every 2 weeks? If so, the warfarin is only thing I can offer up. Hope they/you find the answer to keep your port functioning .
Terry - Have not had that tx but the CTH did affect my vision also. But it did go back to pretty much normal. I went to get new glasses 5mos after tx I think. Very very little correction from the previous 2 year checkup.
Latte - I had same se's as many of these ladies on Carbo/Taxotere/Herceptin. I was on the steriods, given antihistimine in pre-drip and I don't remember what all else. Did get neulasta shots too. I was told to take a benedryl and 2 ibu's night of tx and for 2 days thereafter, so 3 doses. I forgot a time or two and the se's were much worse. I too lost my hair, hearing seems OK, my nails lifted about 1/2 way down, looked awful, smelled bad...but they grew out. Weaker but I have them now. I kept OPI Nail Envy Original on mine during my entire tx. I too took something when needed for nausea....but always had ginger tea, gingerale, gingersnaps before I'd take the compazine. OH...not sure if they told you, but the tx's are cumulative. I thot after my 1st...4 days of ick...then I was up like 'nuttin to it honey'. #2 it was 5 days, #3 longer etc etc. Near the end I was down for almost 2 weeks. OH...and TRY to get up, even with help, everyday or every other day at least, and walk around the house...even 5 mins. It's hard to do as you won't feel like it, but really is beneficial for your aching bones. I got dizzy alot, fell once, well more like crumpled to the floor, early in tx...after that...my DH made sure someone was here with me while he was at work. I can't imagine have little ones, but think Eban has good advice. It's OK to ask for help...many good people out there want to do something but don't kno what, so dont hesitate to let family/friends kno what you'll need...k? Good luck and keep us posted!
Eban - had not heard of the ear thing. Very interesting. I have not been checked, but have no 'base line' either. Just feel like my little bit of loss is from getting old...LOL. Maybe some of you others just starting out should get a 'base' hearing test before or early on in tx...I wud had I known about this. OH...and I too do Xgeva for bones, same se for jaw, but no problems so far (about 2 yrs).
Blondie - sounds like a fun fun party and worthy putting off tx by a day. LOL! Glad you found an onco team you like...that is sooo important!
Keeping you all in my prayers and sending positive energy your way,
'Princess Silver Thighs' says....Yesterday is History, Tomorrow a Mystery, Today is a GIFT!
4/20/2011, ILC, 6cm+, Stage IV, Grade 3, mets, ER+/PR+, HER2+