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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: How often should you be tested CT Scans/Bone Scans/PET Scans?

Topic: How often should you be tested CT Scans/Bone Scans/PET Scans?

Forum: Stage IV and Metastatic Breast Cancer ONLY — A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only or those posting on behalf of a Stage IV patient. There is a separate forum for Stage IV Caregivers/Family in "Support and Community Connections".

Posted on: Mar 25, 2012 09:53PM, edited Mar 25, 2012 10:33PM by PinkSurvivor

PinkSurvivor wrote:

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Mar 25, 2012 10:03PM K-Lo wrote:

I dont know what they do for stage II.

Kathy Dx 8/30/2010, IDC, 4cm, Stage IV, 8/12 nodes, ER+/PR+, HER2-
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Mar 25, 2012 10:04PM exbrnxgrl wrote:

You've posted this in the stage IV forum, so I think most of us get scanned more often than stages I and II. Even then, I imagine we are all a bit different based on where we are in the course of our disease. You might want to ask this question in the stage II forum and, of course, ask your oncologist. I would agree with her about the radiation exposure. Every 6 months, in the absence of symptoms, sounds like overkill. As to how we found out we had mets, that varies by individual as well. Live your life with joy and gratitude each day and try not to worry about what you can't control.
Caryn

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx IDC, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Dx 7/8/2011, IDC, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 06/19/2014 Femara (chemical name: letrozole, class: aromatase inhibitor) Hormonal Therapy 11/21/2011 Arimidex (chemical name: anastrozole, class: aromatase inhibitor) Surgery 09/07/2011 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my left side ; Reconstruction of my left breast; Reconstruction of my right breast Radiation Therapy 11/15/2011 Radiation Therapy 12/01/2011
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Mar 25, 2012 10:18PM Naniam wrote:

Tina, I was a Stage II gal and my oncologist was really good if "I had a complaint" of getting a regular xray or sometimes a CT scan.  Other than the normal follow up times and mammograms as guidelines indicate, I never was routinely scanned. 

I had 6 glorious years - I lived life.  I finished treatment and put cancer out of my mind.  I think you really could benefit with a cancer support group as looking over your shoulder all the time is not living.  All any of us can do is do the treatment recommended and live - don't let cancer rob you of the joy of living.  I think every Stage IV lady fights like hell for cancer not to steal our joy - we know the stats.  You are Stage II and it might never return so enjoy life, laugh often, travel, etc.  

Dx 8/18/2005, IDC, 3cm, Stage IV, Grade 2, 0/7 nodes, mets, ER+/PR+, HER2-
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Mar 25, 2012 10:34PM PinkSurvivor wrote:

I am so sorry for posting this on here, I was just looking for answer's and I didn't mean to offend anyone or hurt anyone's feelings, I wasn't trying to be unsensitive at all.  Please forgive me. 

You are all in my thoughts and prayers.

Tina Dx 7/19/2010, IDC, 5cm, Stage II, Grade 2, 0/5 nodes, ER-/PR-, HER2+
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Mar 25, 2012 10:37PM reesie wrote:

I agree with the above. I was dx with mets to start so I don't know what the standard is but even at Stage IV I haven't had scans that often (in the beginning we were able to track my tumor of origin's response to treatment). I'm sure that they'll be more often now that I had my BMX but I would expect that for Stage IV.

You need to talk to a professional to help deal with your fear and get some meds if needed so you can live your life. Remember MOST people don't recur. The odds are in your favor.

Marie - It's A Great Day To Be Alive. Dx 10/29/2010 ER+/PR+, HER2- Stage IV mets to bones, liver, lungs, skin, pleural effusions
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Mar 25, 2012 11:10PM Naniam wrote:

Tina, I wasn't offended.  I think the other ladies and myself are saying you don't need the scans if you are not having symptoms, complaints   We have each told you to grab each day and make the most of it - don't let cancer rob you of one moment of living.  Yours may never return.  I think you need to be involved in a cancer support group to help you move forward. 

We have scans because that is how they measure the worth of our treatments and we have scans if we have new symptoms or complaints.  Our scans are sometimes,4 months, sometimes 6 months but for the above reasons. 

Dx 8/18/2005, IDC, 3cm, Stage IV, Grade 2, 0/7 nodes, mets, ER+/PR+, HER2-
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Mar 27, 2012 06:53PM BouncingBetties wrote:

Tina, I don't think you have to apologize. I think my stage IV bosom buddies are right though. We have advanced stage cancer, so our scans and tests are likely more frequent than that of a stage II patient. Please be grateful that you caught your cancer early. You likely have a full, cancer-free life ahead of you, so please enjoy it. I know you are probably afraid but try to focus on how lucky you are.

CANCER SUCKS!!! I'm almost out of txt options, Metsisters. 😔 Dx 7/12/2011, IDC, 6cm+, Stage IV, mets, ER+/PR+, HER2- Hormonal Therapy 06/19/2014 Faslodex (chemical name: fulvestrant, class: estrogen receptor downregulator (ERD)) Hormonal Therapy 11/05/2013 Aromasin (chemical name: exemestane, class: aromatase inhibitor) Hormonal Therapy 07/25/2013 Femara (chemical name: letrozole, class: aromatase inhibitor) Hormonal Therapy 01/19/2012 Targeted Therapy 11/09/2013 Afinitor (chemical name: everolimus) Surgery 01/03/2013 Lumpectomy in one or both breasts: Lumpectomy in my right breast Chemotherapy 02/14/2014 AC: Adriamycin and Cytoxan Chemotherapy 01/25/2013 Xeloda (chemical name: capecitabine) Chemotherapy 08/05/2011 Taxol (chemical name: paclitaxel)