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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: "Hemorrhagic brain lesions"

Topic: "Hemorrhagic brain lesions"

Forum: Stage IV and Metastatic Breast Cancer ONLY — A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only or those posting on behalf of a Stage IV patient. There is a separate forum for Stage IV Caregivers/Family in "Support and Community Connections".

Posted on: Nov 25, 2012 03:22AM

Amyf wrote:

Anyone ever had these? My cervical spine MRI happened to catch a part of my brain and the scan report said this. My onc is awful and explains nothing to me so all I know is from google. He did get me an appointment awfully quick with the neuro onc though which makes me even more nervous. I will find out at that appointment next week, but in the meantime, has anyone had this? The scan said it was in my cerebellum.

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Nov 25, 2012 04:06AM Jac53 wrote:

I don't have personal experience of this but I just wanted to send you a big hug, you must be very concerned.

Jeannie. "You only live once, but if you do it right, once is enough." Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2- Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2-
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Nov 25, 2012 04:31AM Mzmerz wrote:

I don't have anything to add, either, but also sending hugs.

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Nov 25, 2012 05:44AM exbrnxgrl wrote:

Amy,
I have no personal experience with this either but you mentioned your onc was awful. This may be a good time to find a new onc. I switched to a new onc right after my stage IV dx and I believe it has made my journey much easier and less stressful. I know you have a lot on your plate and I don't want to be preaching but an awful onc is not what us stage IV ladies need.
With good thoughts,
Caryn

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx IDC, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Dx 7/8/2011, IDC, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 09/07/2011 Mastectomy (Both); Lymph Node Removal (Left); Reconstruction: Breast implants (permanent) (Both) Radiation Therapy 11/15/2011 External Hormonal Therapy 11/21/2011 Arimidex Radiation Therapy 12/01/2011 External Hormonal Therapy 06/19/2014 Femara
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Nov 25, 2012 07:55AM Amyf wrote:

Thank you guys so much! I am worried and knowing other people are out there helps :) I will post an update as soon as I have the appointment since it seems to be new to all of us!

And Caryn- I think you're right. He's said a few other things that I must remember to post here one day, and this is kinda the last straw.

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Nov 25, 2012 02:10PM K-Lo wrote:

Here's what I would do:  If you can refer yourself, make an appointment with a neurosurgeon, earliest possible to put your mind at rest.

Kathy Dx 8/30/2010, IDC, 4cm, Stage IV, 8/12 nodes, ER+/PR+, HER2-
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Nov 25, 2012 02:54PM GatorGal wrote:

Sending hugs your way. Hopefully you will get answers soon!

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Stage IV, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 04/11/2011 Taxotere Chemotherapy 08/14/2011 Gemzar Chemotherapy 06/13/2012 Doxil Chemotherapy 12/12/2012 Taxol Chemotherapy 09/11/2013 Cytoxan, fluorouracil, methotrexate Chemotherapy 04/16/2014 carboplatin
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Nov 25, 2012 03:51PM CoolBreeze wrote:

I've never heard of it but I would be very nervous too.  I'm glad you have an appointment soon.  I hope your neuro guy is a bit more user friendly than your onc.

*hugs*

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV Dx 8/17/2009, IDC, 4cm, Stage IIa, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Nov 26, 2012 12:21AM K-Lo wrote:

Sorry, I missed the neuro onc appointment note.... wonderful..  

Kathy Dx 8/30/2010, IDC, 4cm, Stage IV, 8/12 nodes, ER+/PR+, HER2-
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Nov 26, 2012 03:19AM LauraOntario wrote:

Sending prayers your way.

Dx 4/18/2011, Stage IV, Grade 2, mets, ER+
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Nov 26, 2012 03:32AM NYCchutzpah wrote:

Sounds scary as all heck. I had a hermoragic stroke a few years ago, Fortunately made a full? recovery. Then last Dec got hit with this BC dx. Only advice I can give is to be very aware of the oncoming symptoms of a stoke. Numbness on one side inability to Smile, unable to say a complete sentence, Sudden vision changes, Unusual headache. Call 911 and get yourself help quickly.

I was aware of the stroke symptoms when my brain attacked me and got treatment within the first hour of symptoms.

Sending you good energy

Charlotte

Dx 12/27/2011, Stage IV, mets, ER+ Radiation Therapy 04/09/2012 External
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Nov 27, 2012 01:34AM Amyf wrote:

Thank you all so much for your support. We received a phone call this morning already and the neuro wants a more updated MRI. At my usual place they didn't have anything til Friday (!), but we found a hospital in the next town that can get me a brain MRI Wednesday so I guess I can wait that long. We left a message with the neuro that we got that scheduled so hopefully he'll schedule me in soon after the MRI.

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Nov 27, 2012 06:19AM SusanR wrote:

Sending you (((cyber hugs))).  I know the waiting can be tough but Wednesday is pretty quick.  Hopefully things will move along so you get some answers soon.

Much love,

SusanR

IDC 2002 Stage II Grade 3 4/29 nodes ER/PR+ Her2- Stage IV Dec 2008 Bone ER+/PR-/Her2- Bone Progression Oct.2011 to Spine,Skull and Rib Dx 11/22/2002, IDC, 6cm+, Stage IIIc, Grade 3, 4/29 nodes, mets, ER+/PR+, HER2- Surgery 11/25/2002 Lumpectomy (Right); Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Right); Prophylactic Mastectomy (Left); Reconstruction: Breast implants (permanent), DIEP flap (Both) Chemotherapy 01/07/2003 Adriamycin Chemotherapy 01/07/2003 Cytoxan, Taxotere Chemotherapy 01/07/2003 Cytoxan Radiation Therapy 07/05/2003 External Radiation Therapy 01/20/2009 External
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Nov 27, 2012 11:12AM pinker wrote:

Hi Amy

I flew down to Nj for work at the end of Sept and got really sick. Crunchy neck, headache, couldn't sleep, dizzy and very nausous the day after. When I was admitted to the hospital they immediately did an MRI and saw that I had 4 brain tumors on top and 3 on the back. Two of the 3 on the back were two big to use the cyberknife and I had to have emergency surgery. I was bleeding and it was creating pressure and what was called a "brain shift."

I had surgery that Thurs and was out of the hospital by Sunday. My husband drove down from Maine to NJ and stayed with me. We had to stay another 2 weeks (hotel -- ugh) for cyberknife treatment (such a breeze). Do your research on the neurosurgeon. If they tell you whole brain radiation, ask for another opinion. I was very lucky and didn't have any issues after surgery. Good luck and lots of hugs. Phyl

Phyllis
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Nov 27, 2012 12:55PM Amyf wrote:

Thank you for sharing your experience Phyl! That must have been so scary.

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Nov 27, 2012 12:56PM Amyf wrote:

Thank you Susan, it is going by fast so far. I appreciate everyone's thoughts and help :)

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+