Log in to post a reply
Jan 2, 2013 12:21PM
Your post made me cringe. We are even close to the same age! I was diagnosed in 2007 stage 3A, had chemo, radiation double mastectomy- the works. All that after a clear mammogram 8 months earlier. Then the cancer came back April 2012, widespread mets to bone everywhere, rib fractures etc.
I asked what my prognosis might be since I have 3 kids still at home. The oncologist said 1-2 years. My bone biopsy from the pelvis showed complete metastatic replacement, no bone marrow left. He started me on a drug I had not ever tried faslodex, and zometa. In 6 months of treatment my scans are clear. So now he says you're responding great and you will be with us for a while, how long I don't know. Rule number 1- you have to try the treatment first to see if it will work. How well it works is hugely varied by each individual and the kind of cancer they have.
So have hope. You need more information, tissue from the tumor, markers ER, PR, Her2Neu etc, how aggressive (grade) etc. Don't panic. Take someone with a level head with you. Write things down, ask questons. If something seems improbable get a second opinion. If the surgeon is an ass, change to someone else. If they won't listen, keep changing until you find someone who will. It's your life and you will need to fight for it. Lots of folks on this board have liver and bone mets and have lived for years, use their insight and experience. Make your doctors tell you why they are choosing a certain course of treatment and how they will follow to see if it is working. Good luck. have fortitude and faith!
Double mastectomy 07/ chemo Adriamycin,Cytoxan, Taxol, Radiation/ 07 Arimidex, 08 Aromasin, 2012 Faslodex, 2014 Aromasin & Afinitor / mets spine, sternum,ribs, skull, pelvis, all long bones 6/2015 mets to omentum, malignant ascites, lung, liver
1/2/2007, ILC, 6cm+, Stage IIIA, Grade 1, 1/17 nodes, ER+/PR+, HER2-
4/2/2012, ILC, 6cm+, Stage IV, Grade 1, 1/17 nodes, mets, ER+/PR+, HER2-
6/1/2015, ILC, 6cm+, Stage IV, Grade 2, 1/17 nodes, ER+/PR+, HER2+ (FISH)