Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.
Metastatic breast cancer (MBC; also called stage IV) is breast cancer that has spread to other parts of the body, most commonly the bones, liver, brain, or lungs. Metastatic breast cancer can be treated but not cured. Metastatic disease is NOT hopeless. There are a wide variety of treatment options for metastatic breast cancer, and new medicines are being tested every day. More and more people are living life to the fullest while being treated for metastatic breast cancer.
Note: Please contact your doctor for any specific concerns about symptoms you are experiencing or your course of treatment.
Learn more about living with MBC.
Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020
Posted on: Sep 19, 2006 03:22AM
Shepgirl wrote:Seems like a lot of stage 4 US citizens are getting Social Security Disability Insurance payments. So lets see how many there are! If you were denied, please comment if it was for medical issues. My understanding is denials are more "not paid in enough" issues than medical.
Posts 1 - 30 (1,176 total)
Sep 19, 2006 03:40AM Mena wrote:FYI, anyone dx'd Stage IV automatically qualifies for SSD (Social Security Disability). The number to call is 1-800-772-1213. Of course, you will have had to work some time during your life to claim these benefits, as far as I know.
Sep 19, 2006 03:42AM Shepgirl wrote:Thanks Mena- this is consistent with what I have learned. And yes, you can work "alittle" (under $880 a month).
Sep 19, 2006 03:45AM lv2cmp wrote:
ok fill me in on how you work and still draw ssd. I work full time and was just diagnosed with mets in August. Amy
Sep 19, 2006 04:18AM AmryAnn47 wrote:Hi all!
Sep 19, 2006 05:42AM CTG wrote:Thanks for doing this poll. I know this is a bit off the subject of SS.
Sep 19, 2006 06:26AM LuAnnH wrote:I am a fortuante one, I work full time and am salary. I make a decent pay and my boss knows on my bad weeks I may only put in 15 hours and my good weeks 60 hours. I am able to manage my work and get it done timely and can do most of it from home. As long as I can continue to produce this way I can maintain a full time job with my benefits. I know I won't see much raise wise given my situation but working at my regular pay this way is alot better than SSD and I keep contributing to this pension so when I do finally draw off it my contributions may be enough to get enough to actually live on a month!
Sep 19, 2006 09:21AM Roza wrote:I can go to disabilities and in six months I can have my SS disabilities, and the long term disabilities ins. company will pay the difference between SSD and 60% of my paycheck till I am 65 years old.
Sep 19, 2006 10:08AM Betsey wrote:I have been getting SSDI since November 2004. I was able to do the entire application process on line, signed and returned some paperwork and was approved within 3 weeks. Like Roza said, I get SSDI and the balance of 60% of my pay from LTD. I don't think this has anything to do with the state, but is based on terms of your disability policy. It has been a blessing for me. On my good days I work on my art projects, volunteer and generally stay busy. On the bad days I curl up, read or sleep.
Sep 20, 2006 04:55AM Shepgirl wrote:Interesting on the partial work and SS stuff. I can't edit polls, once active, BUT I would just select the YES option since you are getting a portion. I would also guess the work related insurance has shorter time durations. i.e. once you get SS - you on it unless you can go back to work! I know my hubby LTD plan has limits.
Sep 20, 2006 07:15AM MIdb wrote:
I didn't vote, because it is my wife who is stage 4. The process was a breeze for her. Only one thing though. She was diagnosed in June '05. We applied and hoped it would be retro to '03. However, they claimed she became disabled in Jan '05, because that is when her back started bothering her, and she started treatment for her back.
Sep 20, 2006 02:13PM KariLynn wrote:Kathy - getting mine was a breeze and I didn't claim any problems other than the obvious stage iv. I'm still a little shocked that I qualify (in denial land, there's no reason I would qualify...)
Sep 20, 2006 02:40PM kimmytoo wrote:I'm getting mine, and my kids get about $200 each also. It's way, way, way below what I earned, but I'm young and don't have quite the earnings history that I would have had if I hadn't gotten this crap.
Sep 21, 2006 03:51PM gretchv wrote:Shep
Sep 23, 2006 03:45AM Shepgirl wrote:Paula- SS told me, my earnings did. And I'm the owner and sole employee of my own DBA filed business. I will ask again? Do you have any information link on that topic?
Sep 23, 2006 05:30AM PaulaBeth wrote:
When I applied the young man who took my application said he didn't think it would count against me because if I hadn't gotten paid it would have come to me as profit anyway. Sure enough, it was approved, even though my salary was too much for their guidelines. They counted my disability as starting the month I had to hire help for the bookkeeping (my job in the company,) which was before I was Stage 4, but since they only pay 12 months prior to application, that was my official date of disability. Your not having had to hire help for your business may affect their decision for your application.
Sep 23, 2006 06:51AM catgirl wrote:
I applied at the beginning of Aug but haven't heard back yet. I hope I hear something soon. I am only working about 16-20 hrs a wk and my savings acct is just about depleted. I am single w/2 grown kids in college and this is quite a strain on my budget. I am fortunate that my employer allows me to work part-time and still keep my health ins. This will not last forever, though. They are in the process of looking for someone full time to replace me. What will I do for health insurance then? I cannot afford the $420/month for Cobra ($800 if I keep my daughter on my plan). I can't believe you have to wait 2 yrs for Medicare...what do they expect us do...we need our health insurance!
Sep 24, 2006 05:24AM donnabres wrote:I have decided to keep working as long as I can. It gives me something to keep my mind busy. I am not one of those women who would stay home, and cook, and clean. For me, I am afraid that I would wallow in self pity.
Sep 24, 2006 11:49AM Betsey wrote:If you can still work, I think that's great. The sad thing is that some of us do not have the energy to work on a consistant basis. I wish I could, but between widespread bone mets and the effects of my meds I simply can't do it. My goal is to be well enough to work part time, as it stands right now I've had to take a leave of absence from my volunteer work while I adjust to Xeloda (and pray it works). I'm really not "one of those women who stay home and cook and clean". I worked all the while my son was growing up and wish I could have been home with him more. Seems to me that many of the women on this board, especially those with small children, have made the choice to go on SSDI to have time with family and take better care of themselves. I've been forced by bc to make this change and I'm trying to make the best of it.
Sep 25, 2006 11:21AM catgirl wrote:
Well, I got all excited when I saw a big envelope from SSA today. I was hoping it was an approval letter but it was a packet of questionaires for me to fill out. It took me over 2hrs to answer all of the questions. I thought that if you are dx stage IV that it was automatic aproval for disability! I don't understand what is taking so long and why they needed to ask me all the additional questions.
Sep 25, 2006 11:51AM shelliks wrote:I just started the application process. My long term disability carrier is paying my claim (thank God) and they require me to apply for SS. I spent about an hour online with the initial application and will spend some more time tomorrow with the health portion.
Oct 11, 2006 02:38AM catgirl wrote:Still waiting to hear from SS. I applied at the beginning of Aug. Thought it wouldn't take so long being dxd with terminal disease.