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Jun 25, 2007 10:51AM
Hi Roxanne --
I am in NJ too, just turned 35 and almost the same situation. I was stage 1 and on tamoxifen + lupron for 4 years when I was diagnosed with stage IV in may with one met to my rib. I, however, don't have any pain at this point. I am still 82/92% ER/PR+ These were my opinions:
My main onc. (St. Barnabas in Livingston) - switch to Femara, stay on lupron or have ovaries removed, add Zometa, and no radiation because i'm not in pain
Second opinion: (local onc. in Nutley) - initial reaction was radiation, xeloda, avastin, zometa, and femara. My head was spinning when I left there. He was like throw everything at it...but he said he was going to also confer with other experts at Sloan Kettering and MD Anderson. He called me back the next day to say he was overzealous and all of the "experts" said no chemo, just femara and zometa. He stuck by the radiation recommendation
3rd opinion (SLoan Kettering in NY) - same as my onc. femara and zometa, no radiation or chemo
4th opinion (cancer institute of nj) - same as my onc. femara/zometa/no rads or chemo
So, I should be happy that they all say the same thing but I'm still not comfortable. I'm going to one more doctor at NYU who is more of an "out of the box" thinker. What I can tell you, and my story proves, is that the accepted protocol is to not do chemo, just switch up the hormonals. Radiation definitely if you have pain. I went to 2 NCI certified hospitals and they both said the same thing.
I did decide that if the Femara/Zometa shows shrinkage in my one met by end of summer and nothing else pops up, I'm having the radiation anyway. My onc. is okay with that.
Please please let me know if you need recommendations on other opinions. I would suggest getting a third to make yourself feel better. I would bet they'll agree with the first.