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Topic: Here I Am

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Metastatic breast cancer (MBC; also called stage IV) is breast cancer that has spread to other parts of the body, most commonly the bones, liver, brain, or lungs. Metastatic breast cancer can be treated but not cured. Metastatic disease is NOT hopeless. There are a wide variety of treatment options for metastatic breast cancer, and new medicines are being tested every day. More and more people are living life to the fullest while being treated for metastatic breast cancer.

Note: Please contact your doctor for any specific concerns about symptoms you are experiencing or your course of treatment.

Learn more about living with MBC.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Jul 3, 2007 06:47PM

Patinpa wrote:

HI All
I have been lurking here for some time now and have been very encouraged by all of your strength.It has helped me through some bad times.
I will try to keep my story short but it is hard as I can be very verbal.
I hope this will encourage not frighten you, as I was diagnosed in Oct. 1983 with breast cancer and had a modified radical mastectomy. No node involvement and no treatment. I spent the next twenty-three years doing what I was supposed to, mamos yearly, SBE monthly, gyn yearly, etc. I watched the course of breast cancer change and also watched several dear friends and a niece lose their battle and thought thank God I am still free of the dastardly disease.
In Oct. 2006 I was diagnosed with bone cancer of the sternum which had matastised from the orginal breast cancer of 23 years ago. Finding out what the horrible pain in my chest was took 6 months and 4 specialists. I slept in a lounge chair for those months plus 3 until 35 radiation treatments took away the pain.
Since then I am on Xeloda, 2500mg 2 wks. on 1 off and a monthly infusion of Aredia which goes into my Brad port and I love my port. Since Oct. I have had a Pet Scan, several CT's, a full body scan, an MRI and x-rays. Am due for another Pet in about 6 weeks. My Oncologist told us all was stable after the last round of tests but still wants the Pet scan.
I have been afraid to post sooner as I feel like a grandma to so many of you then I thought heck, my being cancer free for 23 years is a positive thing and I should share it. So here I am! Log in to post a reply

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Jul 3, 2007 07:00PM LuAnnH wrote:

Gram,

Let me say welcome! Glad you came out of lurkerdom Also, congrats on 23 years of dancing with NED! You are one lucky lady! Your dx is pretty much the same as mine, except I only got 8 years to dance with NED. Currently I am on faslodex, zometa & herceptin and my pain is under control and the cancer stable. Welcome again and hope we hear more from you!

LuAnn
LuAnn -- Dx 7/2/2006, IDC, 2cm, Stage IV, mets, ER+/PR+, HER2+
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Jul 3, 2007 07:02PM djd wrote:

Gram -

I'm not a metster, but like most other survivors, live in fear of mets. I come to the mets board occasionally to check on ladies I've met along the journey.

It's been really difficult to lose some of our cyber-sisters, but the good news I find here makes it worth it. Because of stories like yours and many others, I no longer feel paralyzed by the fear of mets.

It may happen tomorrow. Or never. Or in 23 years. And if it happens, it's not necessarily a death sentence, but rather another leg of an unpredictable journey.

Thank you for sharing your story.

hugs,
Donna Dx 12/13/2004, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Jul 4, 2007 02:37AM katie11 wrote:

Welcome aboard the mets ride!

You sound like one very positive lady despite what must have been an enormous shock after 23 years cancer free. I am nearly at my one year anniversary of a diagnosis of bc and bone and liver mets all at the same time. My treatment of taxotere and xeloda is working and I am feeling pretty damn good, I have to say. I am so pleased to hear your treatment is working and that you are now pain free.

Keep posting!

Katie xx
Hope for the best, prepare for the worst! Dx 7/15/2006, ILC, 2cm, Stage IV, Grade 2, mets, ER+/PR+, HER2-
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Jul 4, 2007 03:06AM jacqniel wrote:

Welcome, Gram!
23 years! Wow! I am still so amazed at how dastardly this disease can be. To be able to lurk in ones body so long just seems impossible! I am thinking you must just be a very strong women to have fought it off this long. Thanks for coming out of the shadows and joining us. It is always good to meet a new sister - even if we wish you didn't have to join us.
Hugs, Jacque
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Jul 4, 2007 03:37PM Patinpa wrote:

Thank you for acknowledging my coming out from being a lurker into the Sisterhood of courageous women. It has been hard just reading and not knowing whether to post or not. I feel as though I have crossed another bridge in this latest journey with this dastardly disease.

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