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Forum: Stage IV/Metastatic Breast Cancer ONLY —

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Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Jul 25, 2007 11:26AM

Mary1968 wrote:

mom on her third pain killer and still have a lot of pain...

life suck sometimes....
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Jul 25, 2007 12:05PM - edited Mar 19, 2008 09:45AM by TenderIsOurMight

So sorry Mary, about your Mom and her pain.

A call tonight to the on-call doctor seems advisable. If your Mom is taking a narcotic pain pill, the dosage needs to be discussed and the type of pill (how strong it is) needs to be reviewed. You might want to ask for a prescription for an anti-nausea medication, just in case she needs it as narcotics can make you nausea. But the dose and strength have to be prescribed adequately to lessen the pain. Colace, a stool softener, is very helpful in keeping the bowels moving, as narcotics also constipate. And your Mom may need help getting up and to the bathroom. Her oncologist needs to understand things are tough right now.

After the immediate problem is addressed (strength of pill and dosage frequency, and maybe even the route it is given by (oral, skin patch, subcutaneous by nurse, etc) the medical team should help your Mom be seen by a pain specialist (often an anesthesiologist who specializes in pain). There are A LOT of different drugs out there to relieve her suffering. The truth is that most people are undertreated for cancer pain, and fortunately, the medical profession is more open minded on this.

You've a wonderful daughter to help your Mom so much! And there are steps that can be taken to help her pain.

Keep us posted,
It cannot be emphasized too strongly that treatment of each patient is a highly individualized matter. (FDA-approved labeling for warfarin (Coumadin) NDA 9-218/5-105)
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Jul 25, 2007 12:14PM LuAnnH wrote:

Tender has said it all. I started out on vicadin for pain of bone mets, then tried oxicotyn. Didn't like the oxi's and switched to a fentayl patch. My pain is currently very minimal and I am back to the vicadin. Please call her onc and get her pain meds adjusted.

LuAnn -- Dx 7/2/2006, IDC, 2cm, Stage IV, mets, ER+/PR+, HER2+
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Jul 25, 2007 12:31PM luvcats wrote:

I am also using two Fentynal patches for a total of 40 mg and they really do take the edge off the pain.

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Jul 26, 2007 12:18PM joanne1428 wrote:

I keep getting told that there is no reason to suffer, and if pain continues, they need to keep adjusting medication. Sometimes a brief hospitalization is necessary to get the right medication schedule going.

If you don't have a doctor who takes pain seriously, and who doesn't seem to "care" about pain (i.e. doesn't treat it thoroughly) then you might think about whether you have the right doctor for your mom, given the present reality, which is that she has pain that is UNACCEPTABLE.

Do not give up. The pain people always say that, there are solutions. They say they can help virtually everyone.

I hope your mom (and therefore you) find some relief....

My hopes are not always realized but I always hope - Ovid Dx 4/2006, IDC, 1cm, Stage IV, Grade 3, 0/33 nodes, ER-/PR-, HER2-
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Jul 27, 2007 11:33AM cheekymonkey wrote:

Hi Mary,

My sister has also been in terrible pain, and went to a pain specialist. She was put on Fentynal patch (started at 25 mgs and is now at 75mg). She was also given Percocet AND Oxycontin (10 mg) because she occasionally gets breakthrough pain. She likes the Percocet because it hits her within 20 minutes or so, but they also wear off fast (Plus there is a lot of acetominophen in them so you can only take a certain amount every day in order to not hurt your liver or kidneys). She then supplements those two with the Oxycontin because they last a longer time. She varies the amounts....sometimes she needs all three, other times just the patch. Her pain is not consistent and not always in the same place. Anyone with cancer is allowed pain control, and there are lots of options. Your mom's quality of life is the most important thing right now, and I'm sure any doctor would agree to get rid of the pain is the most important thing. If they don't, you need to ask them, "Are you afraid my mom will get strung out on them?" They should then realize how ridiculous they are being for not giving her what she needs.

Besides, I found out by law that if your pain is a level 5 or more, they are required BY LAW that they have to treat it.

Good luck and my heart is with you and your mother both.
I understand....

Cancer, like any other illness, is a bore...... Alan Bennett, Dramatist Dx 2/28/2005, IDC, 6cm+, Stage IIIB, Grade 3, 2/9 nodes, ER-/PR-, HER2-

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