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Aug 9, 2007 07:35PM
I just typed a long long message as a reply and somehow lost it so...here it goes again.
First of all, you are all amazing women. Thank you so, so much for all this inspiration - it's exactly what I needed. It usually takes me a day or two after bad news to get my "fight" back but I got it.:)
I am really healthy with the exception of this little thing called breast cancer. Even the radiologist nurse today said to me - I have to tell you, you look really good and healthy. I told here I was except for bone mets.LOL
Shepgirl - I think the point he was making is - we have a lot of drugs that we can try but i can't guarantee you they are going to work. It's not in my organs yet but if they can't control it, it could be soon.
My tumor markers are really accurate for me. When I started in 2004, I was at 199 - last summer I was at 28 and last week 225 so I go up and down a lot depending on what we are doing. When I started with this doctor, he didn't do tumor markers claiming that they are not that reliable but after I got back from Dana Farber, they started running them at DF's request and thank goodness they have because a few times they've gone up while I was feeling OK and then of course, the tumor showed up shortly thereafter on a scan. I hope with all this research that they are doing that they can concentrate on what chemo might work with what person (and I think they are working on this) and also a better test to determine what the exact tumor load is and where.
I always decsribe fighting cancer like using a map to get to your destination. We all want to get to remission but sometimes there are so many routes to take (chemo, hormones, radiation, etc.), I think it's confusing to figure out what drug or treatment would get you to your goal the quickest. Does that make sense?? LOL
It does in my head but it's late so anything is possible.
Anyways, thanks to ALL of you for doing this for me. You really lifted me up both yesterday and today and I really needed that.
Janis - it was so good to see you online. (waving hi)
Shen - I posted on your other thread but Xeloda worked wonders for me. I hope it does for you as well. If you have any questions about side effects, etc. PM me - I try to get on the boards but sometimes real life gets in the way. I was on it for almost three years and I've learned a lot of "tricks" on the way.
Thanks again everyone for just being there for me.
I really appreciate it.
5/27/2004, IDC, 2cm, Stage IV, Grade 2, 1/28 nodes, mets, ER+/PR-, HER2-