Topic: Halaven - Day 1

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Dec 14, 2010 02:05PM

Posted on: Dec 14, 2010 02:05PM

PJB wrote:

So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp.  

Anyway, got hooked up to some saline as usual (altho, my onc's nurse wasn't sure why. She suggested since they charge so much, they had to do something... Apparently, it's unnecessary) The drug itself comes in a little syringe and they put it into the line over 5 minutes. Then, unhook you and you're done. All told, getting hooked up and waiting for pharmacy to get the drug over, etc., took about 30 minutes. 

Main SE's are neuropathy (have it, thanks to Ixempra), drop in blood counts (they say to plan on it next week), hair loss (already have that...), they'll watch liver enzymes (they're up from when I had my last Ixempra, but not too bad and tumor markers are the same... 

So, we'll see... I'll let you guys know what comes up down the road. I'll have it again next week, then a week off. Hopefully, it'll kill cancer like gangbusters.

Thanks for all your good wishes,

Paula 

May 2004, Stage 2 IDC. Recurrence in 2005. On Femara til mets diagnosis in Feb 2009. On Faslodex 8/11. Brain mets in April 2012. Progression in liver 6/12. On to Etoposide. Dx mets, ER+/PR+, HER2-
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Dec 14, 2010 02:16PM jeanne46 wrote:

Keep in touch Paula.  You will be our Halaven guru!  I'm so hoping the hair loss is minimal.  Now that mine's starting to grow back in, I DO NOT want to lose it all again.  Hope the rest of your week is easy and comfortable.  

And yeah, why didn't the pharma company take you out to a fancy dinner last night!!

Dx 12/05, Stage IV, Grade 3 ER-/PR-Her2- YOU NEVER KNOW HOW STRONG YOU ARE UNTIL BEING STRONG IS THE ONLY OPTION YOU HAVE. -anonymous
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Dec 14, 2010 03:31PM PJB wrote:

Yes, mine has sort of (I think, or maybe I'm just hopeful) started to fill in a tiny bit. Hoping it grows back with this. We'll see. Hope the rads are treating you OK, Jeanne....

Paula 

May 2004, Stage 2 IDC. Recurrence in 2005. On Femara til mets diagnosis in Feb 2009. On Faslodex 8/11. Brain mets in April 2012. Progression in liver 6/12. On to Etoposide. Dx mets, ER+/PR+, HER2-
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Dec 14, 2010 04:10PM konakat wrote:

Hey, this is great it's a short treatment, and that the SEs sound like ones we're very familiar with.  Thanks for starting this thread!

Elizabeth

Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream. Elizabeth's Mets: Liver, bones, brain (yuck), and lungs (more yuck). Dx 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+
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Dec 14, 2010 04:28PM chainsawz wrote:

I hope this stuff kicks your cancer square in the butt...keep us updated!! 

Lisa -mets to lungs & brain - clear lymph nodes.....the weakest step toward the top of the hill, toward sunrise, toward hope, is stronger than the fiercest storm. Dx 7/21/2008, IDC, 3cm, Stage IV, Grade 3, 0/2 nodes, mets, ER-/PR-, HER2+
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Dec 14, 2010 04:44PM Leah_S wrote:

Paula, I hope the SE's turn out to be as easy as the treatment itself.

Best of luck.

Leah

Dx 11/3/2008, IDC, 1cm, Stage IV, Grade 3, 6/17 nodes, ER+/PR+, HER2-
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Dec 14, 2010 08:37PM Fitztwins wrote:

Paula, I am so excited for you getting this.. When I researched the SE, I was Pissed about hair loss. I kept thinking. Why do they always have to take our hair!???

What no special dinner? Honey I hope you went and got some great take out!

hang in.

Enjoy Every Sandwich. Dx 12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+, Surgery 1/18/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 1/31/2005 AC + T (Taxol) Radiation Therapy 4/30/2005 Breast, Lymph nodes Targeted Therapy 5/31/2005 Herceptin (trastuzumab) Hormonal Therapy 12/31/2005 Femara (letrozole) Hormonal Therapy 6/1/2008 Aromasin (exemestane) Targeted Therapy 6/30/2008 Herceptin (trastuzumab) Hormonal Therapy 6/14/2013 Arimidex (anastrozole) Targeted Therapy 9/4/2015 Perjeta (pertuzumab)
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Dec 14, 2010 08:42PM MJLToday wrote:

Woot!  My onco mentioned this as the next treatment, even before Xeloda.  Big pharma must be pushing it hard :lol:

 And yeah, I want a steak&shrimp too!  Money mouth

MJ '98 Stage 2 ER+/PR-/Her-, AC+Tam: Sep 08 bone/liver mets. Arimidex,Faslodex,Zometa thru 12/09, Aromasin+Everolimus thru 03/10, Abraxane thru 3/11,Xeloda 8/11,Armed Activated T cell trial 9/11, Taxotere/Gemzar now
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Dec 15, 2010 09:03AM del15 wrote:

I hope you have a great response and as minimal SE's as possible!

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Dec 15, 2010 09:13AM justpayton1 wrote:

Why no fancy dinner for you?

Treat yourself..keeping my fingers and toes crossed for you.

I echo the others hoping the Se's are minimal and this kicks it to the curb.

Dx 2/9/2009, IDC, 6cm+, Stage IV, Grade 3, 2/13 nodes, mets, ER-/PR-, HER2-
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Dec 15, 2010 03:18PM Lowrider54 wrote:

Ok, I found you over here...Paula - our Official G-Force Captain...going where no man (or bc patient) has gone before! 

We shall expect a 'Captain's Log' as often as you see fit and here's to SUCCESS!!!!

Cyber-space Hugs....LowRider

Smile...it will make people wonder what you are up to...Initial dx 04/99 - CMF; 9/2009 bone mets Arimidex; 6/2010 Faslodex/Xgeva; 8/2011; abdominal wall invaded, ER/PR flipped to TN, Abraxane/Avastin//Xgeva 09/02/2011; 11/2011Xeloda/Avastin/Xgeva. Dx 9/16/2009, Stage IV, 5/25 nodes, mets, ER-/PR-, HER2-

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