Jan 3, 2022 10:03PM piksie wrote:
Sadie, Munroe, Denny, welcome. I hope we're all here for a LOOOONNGGG time!
Latte, Susan, great news! I've also responded well so far based on CA153 and bone/lung symptoms. I could hardly take 100 steps in November, but I had my 3rd cycle/day 8 infusion on Tuesday then hopped on a plane to Vegas! MO mentioned a CT "after a few cycles" but I feel so refreshed, I'm not even going to ask. Part of me wants to read all about the great things going on, but I really just kinda want to let it ride. A day without MO is a good day.
Munroe, hair loss… I hope MO is right in your case, but brace yourself. I was told 35% chance, and well…. Based on my experience and other forums, day 15 seems to be the magic day if it's going to fall. But I've also read of people getting their hair back during treatment. Fingers crossed for both of us! (I'm also a single mom of two; strength, love, peace, and good hair vibes to you.)
Regarding mutations, we haven't biopsied the new lung mets, but from my understanding, it might offer new treatment options. I had a great bone response to Xeloda while the lung mets raged. But I'm responding well to Halaven, so I don't know when we'll do that. What a crazy adventure we're on.
Best wishes to those of you starting soon. Here's to great success with minimal SEs!