USEFUL RESOURCES

class="donate-button" > Donate

USEFUL RESOURCES

Topic: Halaven - Day 1

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Jump to Bottom arrow down

Posted on: Dec 14, 2010 03:05PM

Posted on: Dec 14, 2010 03:05PM

PJB wrote:

So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp.  

Anyway, got hooked up to some saline as usual (altho, my onc's nurse wasn't sure why. She suggested since they charge so much, they had to do something... Apparently, it's unnecessary) The drug itself comes in a little syringe and they put it into the line over 5 minutes. Then, unhook you and you're done. All told, getting hooked up and waiting for pharmacy to get the drug over, etc., took about 30 minutes. 

Main SE's are neuropathy (have it, thanks to Ixempra), drop in blood counts (they say to plan on it next week), hair loss (already have that...), they'll watch liver enzymes (they're up from when I had my last Ixempra, but not too bad and tumor markers are the same... 

So, we'll see... I'll let you guys know what comes up down the road. I'll have it again next week, then a week off. Hopefully, it'll kill cancer like gangbusters.

Thanks for all your good wishes,

Paula 

May 2004, Stage 2 IDC. Recurrence in 2005. On Femara til mets diagnosis in Feb 2009. On Faslodex 8/11. Brain mets in April 2012. Progression in liver 6/12. On to Etoposide. Dx mets, ER+/PR+, HER2-
Log in to post a reply

Page 288 of 294 (2,935 results)

Log in to post a reply

Jan 22, 2022 05:43AM denny10 wrote:

Hi Daywalker, I used to be almost phobic about being sick . My first round of chemo in 2007 changed that. Fortunately there are plenty of anti nausea meds around now . If you tell your medic team and insist you want an anti emetic,I am sure they can find one that suits you. I hope you have an easy time on Wednesday and the halaven works well with few side effects for a long time.

12/2021 Stage IV TN Dx 2007, Left, Stage IIB, HER2- Dx 12/2013, Right, Stage IV, metastasized to liver/lungs/other, ER+ Hormonal Therapy Faslodex (fulvestrant), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 26, 2022 02:47AM kiwicatlady wrote:

Hello from New Zealand! I am a stage 4 breast cancer person and the admin for the Metavivors NZ facebook page. One of our members has been told she can either try Halaven or Vinorelbine. Apparently you can't do them sequentially? Does anyone know anything about that? She also has a lot of pain in her hips and shoulders (long story) and is having a hard time being physically active. Anyone have similar issues and good luck on Halaven?

Thanks for any advice - I'll pass it along to her!

I may look into Halaven too - I'm on Ibrance and Extemestane (probably spelled wrong) with bone and liver mets. My liver markers except GGT look good, but my tumour markers (CA15/CEA) keep going up. My oncologist is threating me with IV chemo but he keeps forgetting I have insurance that covers unfunded drugs (another long story about how drugs are funded/available here). So I'm interested too!

Log in to post a reply

Jan 26, 2022 09:02AM sadiesservant wrote:

Hi Kiwicatlady,

I had Vinorelbine last fall which unfortunately didn’t work for me so we switched to Halaven. It seems there are “rules” for access in each jurisdiction that are hard to comprehend. Here in British Columbia Canada we are allowed to go from Vinorelbine to Halaven but not the other way around. Go figure?

I’m new to this treatment and am not sure how well it’s working (it appears my kidney blockage is getting worse based on new pain). BTW, I receive the drug through an IV. It’s very quick as it’s delivered from a syringe into the line over about two minutes but still requires an IV drip through my port. Not sure if that’s the case for everyone

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 9/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin) Chemotherapy 4/25/2022 Xeloda (capecitabine) Chemotherapy 10/4/2022 Gemzar (gemcitabine) Hormonal Therapy 12/30/2022 Aromasin (exemestane) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jan 26, 2022 09:31AM daywalker wrote:

Hi all, I just want to give an update on my first treatment today.. the infusion was quite uneventful yay, at home now in bed because my muscles ache all over which makes me quite tired BUT I don’t mind that too much if the nausea can be kept at bay… anyways, hope the meds is working for all of us xx

Stage 4 mets to liver, NEAD since April 2017. After Dosetaxol have been on herceptin and Aromasin indefinitely Dx 2/1/2017, IDC, Left, 3cm, Grade 2, 9/19 nodes, ER+/PR-, HER2- Surgery 2/10/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Reconstruction (Left) Chemotherapy 3/13/2017 Taxotere (docetaxel)
Log in to post a reply

Jan 26, 2022 02:39PM kiwicatlady wrote:

Thank you so much for your response! I'll let her know. I have invited her to this thread as well.

Wishing everyone a great day and rest of the week!

Log in to post a reply

Jan 28, 2022 01:28PM denny10 wrote:

Round 2 , day 2, As I was having adverse reaction to the steroids and read here some of you don't get any, I asked the oncologist if we could drop the dose again. I was on such a small amount of steroid it was decided not to have it. I slept last night, not well, but most of the night and I have not had a red face today. I do not have the energy boost but I still feel better without the steroid . I have my hair, but have noticed a few have fallen out. My tongue feels as if I have drunk a too hot coffee. No nausea or sickness. No GI problems and neuropathy is the same, but I did have a urine infection last week [cured with antibiotics] I just hope Halaven is working for me and others.

Sadiesservant, sorry to hear you have increasing pain in your kidneys, I hope it is investigated and treated soon, and you can have yout next infusion.

Daywalker, I hope you managed to steer clear of sickness or nausea and are feeling ok.

Kiwicatlady, you have so many options. Halaven is in one of many medications I have had since MBC 2013 and my oncologist has said there are others I can try in the future.

12/2021 Stage IV TN Dx 2007, Left, Stage IIB, HER2- Dx 12/2013, Right, Stage IV, metastasized to liver/lungs/other, ER+ Hormonal Therapy Faslodex (fulvestrant), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 29, 2022 04:08AM daywalker wrote:

Hi Denny, I’m so glad you had better sleep… I am now on day 4. No nausea so far (yay), my appetite is fine, just very tired… day 3 was rather unpleasant with body aches and fatigue, but I managed with lots of fluids and rest. To be honest, I haven’t given my hair situation much thought! If I wake up tomorrow morning looking like a half baked zombie then my house will be EMPTY I tell you, no teenageboys in sight hahaha (one has to laugh sometimes)

Anyways, hope everyone is coping okay and most importantly that this medicine is working xx

Stage 4 mets to liver, NEAD since April 2017. After Dosetaxol have been on herceptin and Aromasin indefinitely Dx 2/1/2017, IDC, Left, 3cm, Grade 2, 9/19 nodes, ER+/PR-, HER2- Surgery 2/10/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Reconstruction (Left) Chemotherapy 3/13/2017 Taxotere (docetaxel)
Log in to post a reply

Jan 30, 2022 06:56AM denny10 wrote:

Hi Daywalker, pleased to hear that the first infusion hasn't been too gruelling for you. Mmm, teenage boys ,thats enough to deal with !! :)


12/2021 Stage IV TN Dx 2007, Left, Stage IIB, HER2- Dx 12/2013, Right, Stage IV, metastasized to liver/lungs/other, ER+ Hormonal Therapy Faslodex (fulvestrant), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 30, 2022 09:22AM sadiesservant wrote:

Hi Denny, Day 2 of infusion 2 for me and all is well. Bit of mouth trouble but not too bad. My NP suggested I try Biotene so we will see if that helps. Biggest issue is fatigue.

Hope everyone is doing well!

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 9/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin) Chemotherapy 4/25/2022 Xeloda (capecitabine) Chemotherapy 10/4/2022 Gemzar (gemcitabine) Hormonal Therapy 12/30/2022 Aromasin (exemestane) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Feb 3, 2022 09:11AM daywalker wrote:

Hi ladies, hope you are all doing okay xx


I’m bummed because my neutrophil count is below 1000 after just one infusion AND I had those painful neulastim injections at home… anyways on the upside my total white blood count is looking good, so we will test again on Monday morning. This has never happened to me before so I feel a bit nervous about postponing the second infusion by almost a week…. Other than that most of my side effects have been due to the neulastim shots, very achy back and tummy cramps, but no nausea and normal appetite. “One step at a time” is probably the healthier mental outlook during such circumstances (which is quite the accomplishment - literally - if one considers all the treatment fatigue we go through)


All the best ladies, hope you are resting well x

Stage 4 mets to liver, NEAD since April 2017. After Dosetaxol have been on herceptin and Aromasin indefinitely Dx 2/1/2017, IDC, Left, 3cm, Grade 2, 9/19 nodes, ER+/PR-, HER2- Surgery 2/10/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Reconstruction (Left) Chemotherapy 3/13/2017 Taxotere (docetaxel)

Page 288 of 294 (2,935 results)

Scroll to top button