Join Us

We are 225,723 members in 83 forums discussing 164,194 topics.

Help with Abbreviations

Topic: Halaven - Day 1

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Dec 14, 2010 12:05PM

PJB wrote:

So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp.  

Anyway, got hooked up to some saline as usual (altho, my onc's nurse wasn't sure why. She suggested since they charge so much, they had to do something... Apparently, it's unnecessary) The drug itself comes in a little syringe and they put it into the line over 5 minutes. Then, unhook you and you're done. All told, getting hooked up and waiting for pharmacy to get the drug over, etc., took about 30 minutes. 

Main SE's are neuropathy (have it, thanks to Ixempra), drop in blood counts (they say to plan on it next week), hair loss (already have that...), they'll watch liver enzymes (they're up from when I had my last Ixempra, but not too bad and tumor markers are the same... 

So, we'll see... I'll let you guys know what comes up down the road. I'll have it again next week, then a week off. Hopefully, it'll kill cancer like gangbusters.

Thanks for all your good wishes,

Paula 

May 2004, Stage 2 IDC. Recurrence in 2005. On Femara til mets diagnosis in Feb 2009. On Faslodex 8/11. Brain mets in April 2012. Progression in liver 6/12. On to Etoposide. Dx mets, ER+/PR+, HER2-
Log in to post a reply

Page 94 of 96 (2,866 results)

Posts 2791 - 2820 (2,866 total)

Log in to post a reply

Jun 30, 2021 12:35PM Jjzn wrote:

I have also been dealing with naseau and vomiting. I spoke with Dr office yesterday and they think the halavan has caused acid reflux to kick in. So taking two omoperazales a day. So far working ok. Still not feeling great. But I can eat a little better. I have one week to go for my off week.

Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Jul 13, 2021 11:26AM 50sgirl wrote:

I had treatments last week and today. Everything is going smoothly. My TMs were down 35 points last week (yay!). They are still high but 335 is much better than the 3800 they once were. All-in-all, I have felt good so far this cycle other than being a bit tired.

I hope who ever else is on Havalen is doing well. I hope to stay on it for a long time.

Hugs and prayers from, lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Jul 13, 2021 04:56PM Jjzn wrote:

Lynne

Have you had scans yet since being on halavan? Did your liver tumors shrink? I am worried it is not working for me. Plus I am struggling with food issues. Do you not have any side effects? I am skipping treatment this week to try to get my stomach under control. I have one more round before I can do scans.

Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Jul 13, 2021 05:10PM 50sgirl wrote:

Julie, I did have scans last month. Everything was stable, and that is good for me. I did have several days of nausea and vomiting during my last cycle. I was also extremely tired and thirsty. My MO added a second anti-nausea medication, so I now have compazine and olanzapine, if I need them. The only other side effect that I have is a few days of fatigue following the infusion. I have had neuropathy in my feet for the past couple of years ( since my last week of taxol), but it doesn’t seem to be getting any worse. I hope that Halaven works for a long time because I am running out of options.

Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Jul 15, 2021 09:32PM Jjzn wrote:

Had my appt today and decided to put treatment off for one more week. Then I will do my three weeks of infusion and scan.

Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Jul 23, 2021 09:21AM 50sgirl wrote:

Julie,

This is my week off, but I am not feeling great. I have mouth sores all around my lips as well as on the roof of my mouth and in my throat. I also feel just plain yucky ( a medical term, of course.) My MO’s office called in an Rx for Magic Mouthwash. I hope it helps. I should have called when the sores started, but I procrastinated, thinking they would heal quickly. I should known better. I have an appointment on Tuesday (blood tests, MO visit, chemo), and I think I will tell MO that I want to take another week off from treatment. Ijust want to feel good.

I hope you are having a better week. Enjoy your weekend.

Lynne

Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Jul 23, 2021 02:05PM Jjzn wrote:

Lynne

I am with you on feeling good!

Unfortunately my week off did not give me any relief from vomiting and upset stomach. I have labs next week to see if halavan is working and if I have something else going on like gallbladder. I just thought I would feel better after two weeks off. I am having my infusion today along with magnesium and potassium drip. Let me know how everything goes.

Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Jul 27, 2021 10:00AM 50sgirl wrote:

Julie,

What day are your blood tests? I hope they find the cause of all your stomach issues. You must feel miserable after suffering with it all this time.

I had my appointment this morning. I didn’t have to ask for the extra week off. As soon as my MO saw my lips and mouth, he said “no treatment this week!” I will try again next week. He is going to lower the dose, too.

Let me know how you are doing

Hugs and prayers from, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Jul 29, 2021 01:05PM Jjzn wrote:

Lynne

Scans were not good. Acitities in the stomach and they think cancer on the omentum. Doesn't look good for me. I am switching to doxil in hopes of getting more time. Sorry to leave you on the halavan thread but glad it is working for you.

Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Jul 29, 2021 02:18PM 50sgirl wrote:

DARN, DARN, DARN! I wish you had received better news. There used to be a doxil thread for monthly doxil, but I can’t find it. There is a weekly doxil thread, but it was for a stronger dose, etc. There were only a few of us on it. Maybe you should start a new doxil thread to see if others are taking it. I do hope you do well on it and that cancer is beaten back Thank you for the support you have given me here. It seems that people don’t stay on Halaven very long

Hugs and prayers from, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Jul 29, 2021 03:29PM 50sgirl wrote:

Here is the link to the All About Doxil Thread

https://community.breastcancer.org/forum/8/topics/870939?page=1

I hope you can find other people on that treatment.


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Jul 29, 2021 03:52PM Jjzn wrote:

Lynne

Thank you. I need something to kick these liver Mets back so my liver doesn't fail. I asked my Dr if I had at least 3 months. She said I hope so. Ugh..that is not what you want to hear. I know they don't want to commit but I guess I was hoping she would say something like longer then that. I am not ready at all for this. I am still working and taking care of my family. Sorry for the rant. And thank you for listening!

Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Aug 4, 2021 02:16PM 50sgirl wrote:

I think that I am the only one posting here now. Perhaps my posts will be useful to people who join in the future. After a two week break due to a severe case of mouth sores, I resumed treatment at a lower dose today. I have been experiencing severe pain in my ankles, feet, and hand. I was told that it could be neuropathy. It wasn’t pleasant, it has stopped, and I hope that the reduced dose keeps it at bay. I have had numbness in my toes since my last week on Taxol almost two years ago, but it hadn’t improved or worsened. Time will tell

Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Aug 4, 2021 04:44PM - edited Aug 4, 2021 04:44PM by Latte123

You are not alone 50’s girl! I am on a eribulin/halaven right now. I had been on it before Covid started and it was working but my doctor took me off of it because for me it causes low white blood cell counts with possible hospitalization and Covid was overwhelming hospitals. I finished one cycle and this is my week off. I'm doing OK. I was a bit tired but doing better this week. It does cause neuropathy. I find acupuncture helps with that And I also take gabapentin.

Log in to post a reply

Aug 5, 2021 07:30AM - edited Aug 5, 2021 07:31AM by 50sgirl

Latte,it is good to have someone else here. I hope you continue to feel better and that Halaven works well for you for a long time. Low counts can be a real problem. Mine look great after my two week break. I usually have WBC and neutrophils that are just within the acceptable range on treatment weeks. My potassium level is always low, so I take potassium pill daily. Fatigue has been my biggest SE ( other than the suspected neuropathy) until my recent bout with horrible mouth sores. I am hoping that the reduced dose will help

Lynne

Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Aug 11, 2021 02:28PM mikainsb wrote:

I stop by here occasionally too 50's Girl.

Halaven took me from tumor markers at about 3800 down to 60, and I am continuing to decline. They dropped my dose by 20% cause I wasn't tolerating it. (I like being able to feel my hands!)

At the lower dose, with my markers continuing to decline, I am finding Halaven very tolerable. It beats me up a little and I do have some netflix days, cause I don't want to do anything. But all in all, I feel very lucky.

My weird side effect is mental. It does make me weepy. I am not a weepy sort of person in general, but omg just this feeling of despair sometimes after the second dose. It sets in about 2 days after the second dose and leaves a few days after that. It reminds me of PMS from my younger years. Just weirdly emotional for no reason. A friend of mine said, "Well, I feel that way after a night with too much wine... so why do you think having poison given to you intravenously would be different." I love my friends. So funny.

Dx 2008, DCIS, Left, Stage 0, ER+/PR+, HER2- Surgery 10/1/2008 Lumpectomy: Left Chemotherapy 12/1/2008 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2009 Breast Dx 7/1/2011, DCIS, 1cm, Stage IB, 0/30 nodes, ER+/PR+, HER2- Surgery 7/13/2011 Mastectomy: Left, Right Chemotherapy 8/13/2011 Adriamycin (doxorubicin) Surgery 1/3/2012 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 11/11/2015, Left, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 3/1/2016 Ibrance (palbociclib) Hormonal Therapy 4/15/2016 Faslodex (fulvestrant) Targeted Therapy 6/25/2018 Afinitor (everolimus) Hormonal Therapy 6/25/2018 Aromasin (exemestane) Chemotherapy 9/2/2018 Xeloda (capecitabine) Hormonal Therapy 10/16/2019 Surgery
Log in to post a reply

Sep 8, 2021 09:42AM Latte123 wrote:

mikainsb I wonder if the weepiness is the impact of steroids wearing off? I always get steroids with the infusion and it is a wild ride sometimes (going from lively to cranky or sad at quick intervals) but only occurs sometimes.

I have the unusual side effect of increased glucose while on eribulin. So I take diabetes drugs and can control it well. When the glucose is controlled I feel better all around.

I do have a weird side effect of feeling "clammy" for about 12 hours after the infusion. You know, kind of sweaty and yucky.

And then 2-3 days post infusion my face turns bright red and hot and my feet get very hot for a few days as well. My doctor and acupuncturist think it is how the drug leeches out of my system. It's not terribly uncomfortable, just noticeable.

Overall, my pain seems to be lessening and I am hopeful eribulin is working. I just finished my third rotation and will have scans in a month or two. I am definitely feeling less pain, which is a great sign for me.

As treatments go, this one has is very manageable for me.

I am sharing all this for other eribulin/halaven users and wishing you all well!


Log in to post a reply

Oct 5, 2021 10:16AM moth wrote:

hello, just passing on the msg that AmyQ who posted on this thread, is moving to hospice care. Please keep her in your thoughts.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Oct 12, 2021 10:21AM Kattysmith wrote:

Hi,

I just had my first infusion of Halaven yesterday. I didn't have any pre-meds and the infusion only took about 3 minutes. It was so different from any other chemo I've had - weird! I spent much more time having my portaccessed and deaccessed. Today I feel a little extra draggy, but that's probably because I didn't get any steroids, usually the day after chemo I feel slightly more energetic and usual because of the steroids in the pre-meds.

Other than that I feel okay.

This thread doesn't look very active, but I hope those who are here are doing well on it and that I have a good response too. I haven't updated my treatments in years but this may be the last chemo that's available to me and my MO didn't seem very confident about finding another type of treatment that I hadn't tried already next.

Katty


First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/3/2015 AC Hormonal Therapy 2/4/2016 Femara (letrozole) Targeted Therapy 2/4/2016 Ibrance (palbociclib) Immunotherapy 12/22/2018 Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Oct 12, 2021 03:19PM 50sgirl wrote:

Katty, I am no longer on Halaven, but I remember how few people posted to this thread when I did. It was a bit discouraging. I wanted to let you know that I did well on that chemo. It was still working when I had to switch treatments, and I was disappointed that I couldn’t continue.. (I had a rare SE, severe and persistent joint pain that afffected my QOL of life to a big extent, and MO wisely decided to change.) All-in-all, I found Halaven easy to tolerate. The only other SE I experienced was mouth sores, and that resolved with a dose reduction. I hope you have a long and uneventful time on Halaven and see good results.

Hugs and prayers from, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Oct 12, 2021 04:09PM Latte123 wrote:

50s girl, I am sorry you had to switch treatments and hope the next one works well with few or no(!) side effects. I have had cramps in my feet and hands with halaven but I’ve gotten them under control with magnesium glycinate and strangely enough, pickle juice! Don’t know if that would help with joint pain.

Katty, During the first few infusions I would get a clammy feeling for a day after and also bright red cheeks. That is all in the past. I am in cycle 5 and feeling quite well on Halevan and my pain and ability to walk has improved quite a bit. I do have edema and taking lasix to help with that. I have an unusual, rare side effect where my glucose is impacted and I take diabetes drugs for that. I have a PET scan soon and we will see what that suggests. Overall, I find this a highly tolerable treatment. My energy is good and I feel pretty well. I wish you all the best with this treatment and if you ever have questions or want to share, I am happy to connect.


Log in to post a reply

Oct 13, 2021 04:22AM - edited Oct 13, 2021 04:24AM by Kattysmith

Thanks so much to both of you! I just got over a short bout with mouth sores from Doxil and I'm hoping to avoid more problems. I already have severe neuropathy and I'll be keeping a close eye out for any progression... I can't afford it to get worse.

I hope you are both having a good week and finding some enjoyment in the midst of all this! As we used to say in the sixties, onward through the fog!

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/3/2015 AC Hormonal Therapy 2/4/2016 Femara (letrozole) Targeted Therapy 2/4/2016 Ibrance (palbociclib) Immunotherapy 12/22/2018 Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Oct 18, 2021 02:09PM - edited Oct 18, 2021 02:13PM by Kattysmith

Dammit, I just went for my second infusion but my neutrophils were too low to have it (2.1).

So now I have to wait until November 1st to have my next one.

Bummer.

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/3/2015 AC Hormonal Therapy 2/4/2016 Femara (letrozole) Targeted Therapy 2/4/2016 Ibrance (palbociclib) Immunotherapy 12/22/2018 Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Oct 18, 2021 05:38PM Latte123 wrote:

Kattysmith, That is always frustrating and mine was borderline during my first treatment cycle, although i still got an infusion. Since then I drink bone broth everyday in the hopes that it is helping with this issue. I haven't had to delay any treatments yet and I am on cycle 5. Of course, who knows whether it works or not as there is not any scientific research on the topic. I hope you are feeling well otherwise. Take good care of yourself!

Log in to post a reply

Oct 19, 2021 03:42AM Kattysmith wrote:

Thanks so much, Latte. Normally I take bumps in the road like this in stride, but I've had a really rough month for other reasons, so I wasn't ready for even a little disappointment. I suspect that my MO will lower the dose a little and we'll see what happens!

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/3/2015 AC Hormonal Therapy 2/4/2016 Femara (letrozole) Targeted Therapy 2/4/2016 Ibrance (palbociclib) Immunotherapy 12/22/2018 Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Nov 9, 2021 11:12PM Piksie wrote:

Hello. I had my first Halaven infusion today. I recalled Katty's original post on 10/12 and expected it to be a quick port access and 2-5 min push. I was a little surprised when they strapped an EKG on, hung a bag of fluids, and handed me a pill cup with Dexamethasone, some apple juice, and a blanket. I guess it helped me justify paying for parking. :)

It looks like Xeloda was effective for my bone mets, but I have worsening lymphangitic carcinomatosis that requires a change in treatment. We're hoping to find a genetic mutation in the lymphangitic spread that will offer more treatment options, but for now, it's Hail Mary Halaven.

Based on two years of Ibrance, I anticipate neutropenia. At the lowest dose, I still hung out around .7 to 1.2. I didn't get specifics, but MO indicated there is a treatment similar to Neulasta to assist with Halaven-induced neutropenia and could be self-administered if I'm okay with giving myself shots (which I totally am!). Have any of you heard of this or used it?

Katty, I'm sorry your treatment was delayed. It is so frustrating!

Latte, I'm definitely going to try bone broth!

Oh... and how is your hair holding up?

I see that this conversation ebbs and flows, so I hope to hear how you all are doing.

Dx 12/12/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2- Dx 12/12/2015, IDC, Left, 6cm+, Stage IIB, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 1/26/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Surgery 10/13/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/17/2018, IDC, Left, <1cm, Stage IIB, Grade 2, 18/18 nodes, ER+/PR+, HER2- Hormonal Therapy 7/27/2018 Arimidex (anastrozole) Hormonal Therapy 7/28/2018 Zoladex (goserelin) Surgery 8/16/2018 Lymph node removal: Left; Reconstruction (left): Silicone implant Chemotherapy 9/11/2018 AC + T (Taxol) Dx 12/25/2018, DCIS/IDC, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes, Chest wall, Bone Targeted Therapy 3/25/2019 Ibrance (palbociclib) Dx 6/2021, IDC, Stage IV, metastasized to lungs Hormonal Therapy 6/13/2021 Faslodex (fulvestrant) Chemotherapy 9/23/2021 Xeloda (capecitabine) Chemotherapy 11/8/2021 Halaven (eribulin) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Nov 10, 2021 05:00AM Kattysmith wrote:

Hi Piksie, I'm jealous that you got some dexamethasone; I always had that as a pre-med with my other chemos and like having a little energy the next day!

Unfortunately, I had to skip another infusion because even on a reduced dose my neutrophils were way too low plus two of my liver enzymes skyrocketed.

Ugh. So Monday we are going to try again and I'm hoping that my neutrophil count will be high enough and that my liver enzymes have calmed down. I need to double-check, but I think my doctor is going to reduce the dose again, assuming I can take it Monday.

Best of luck finding more treatment options! That's so frustrating.

As far as my hair goes I had just gotten it back from my previous chemo and it is very very very short, but so far it's hanging in there. Of course I've only had two infusions.

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/3/2015 AC Hormonal Therapy 2/4/2016 Femara (letrozole) Targeted Therapy 2/4/2016 Ibrance (palbociclib) Immunotherapy 12/22/2018 Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Nov 10, 2021 09:20AM Latte123 wrote:

Katysmith, I am sorry you're still struggling with neutrophils. That can be very tough and frustrating. Hopefully the lower dose will help. Sending you hopeful energy!

Piksie, I had problems with neutropenia on Ibrance. I have not had those problems with Eribulin. I hope the same is true for you!

Update on me. I started Eribulin in late July 2021 and most of my hair fell out so I cut it very short. I don't completely shave my head anymore after losing hair several times because you never know how much is really going to fall out. Instead I go for a very short cut and see how it goes. Right now I'm having a lot of hair growth and it feels great! I had a pet scan in October and it shows a lot of improvement in my bone Mets. I don't have mets anywhere else. I'm very grateful for this because I've had a lot of treatments fail over the past five years. I continue to have some side effects, but they are managed pretty well and I'm living a good life right now. Pain is much better and I can walk without a cane or walker! The side effects include glucose issues solved with diabetes drugs (unusual side effect), heartburn solved with protonix and occasionally tums, Swollen feet, especially my right foot, helped but not completely resolved with elevating foot and taking diuretics, muscle cramps in hands and feet improved with a daily magnesium supplement and drinking pickle juice. I also drink daily home made bone broth and I believe that it is helpful with keeping my blood counts stronger than they were. I share all of this because I find otherexperiences so helpful in managing my own problems. Thank you to all the helpful women on BCO and I wish the very best for our current Eribulin folks.

Log in to post a reply

Nov 11, 2021 10:40PM Piksie wrote:

Hi there. I'm on day three, so not much to report. I haven't had any SEs, except perhaps a little tired? Could be work, kids, holidays, any number of things... nothing that I would attribute directly to Halaven.

I have been wrong before, but I really feel like I'm benefiting. Lymphangitic carcinomatosis has made it difficult to get a full breath, but I definitely feel like my lungs are working better! I sure hope I'm right! My baseline scans are scheduled next week so won't be true baselines, but I just know it's working! (Knowing from experience that I might be completely wrong). I'm anxious to see what CA 153 says in a few days.

On hair, I've kept mine very short since it came back in after AC+T in 2019. It should buy me some time if it does start falling out. At this stage of the game, I'm not going to worry about it.



Dx 12/12/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2- Dx 12/12/2015, IDC, Left, 6cm+, Stage IIB, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 1/26/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Surgery 10/13/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/17/2018, IDC, Left, <1cm, Stage IIB, Grade 2, 18/18 nodes, ER+/PR+, HER2- Hormonal Therapy 7/27/2018 Arimidex (anastrozole) Hormonal Therapy 7/28/2018 Zoladex (goserelin) Surgery 8/16/2018 Lymph node removal: Left; Reconstruction (left): Silicone implant Chemotherapy 9/11/2018 AC + T (Taxol) Dx 12/25/2018, DCIS/IDC, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes, Chest wall, Bone Targeted Therapy 3/25/2019 Ibrance (palbociclib) Dx 6/2021, IDC, Stage IV, metastasized to lungs Hormonal Therapy 6/13/2021 Faslodex (fulvestrant) Chemotherapy 9/23/2021 Xeloda (capecitabine) Chemotherapy 11/8/2021 Halaven (eribulin) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Nov 15, 2021 09:51PM Piksie wrote:

If anyone is reading this, I have good news to report. After one treatment, my CA 15-3 has leveled out at 1,000. Since June, it went from 120 to 1,053 while on Faslodex and Xeloda. My panic has temporarily subsided.

I've also not experienced any SEs. I'm feeling pretty good right now. Nerdy

Dx 12/12/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2- Dx 12/12/2015, IDC, Left, 6cm+, Stage IIB, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 1/26/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Surgery 10/13/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/17/2018, IDC, Left, <1cm, Stage IIB, Grade 2, 18/18 nodes, ER+/PR+, HER2- Hormonal Therapy 7/27/2018 Arimidex (anastrozole) Hormonal Therapy 7/28/2018 Zoladex (goserelin) Surgery 8/16/2018 Lymph node removal: Left; Reconstruction (left): Silicone implant Chemotherapy 9/11/2018 AC + T (Taxol) Dx 12/25/2018, DCIS/IDC, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes, Chest wall, Bone Targeted Therapy 3/25/2019 Ibrance (palbociclib) Dx 6/2021, IDC, Stage IV, metastasized to lungs Hormonal Therapy 6/13/2021 Faslodex (fulvestrant) Chemotherapy 9/23/2021 Xeloda (capecitabine) Chemotherapy 11/8/2021 Halaven (eribulin) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 94 of 96 (2,866 results)