Log in to post a reply
Nov 9, 2021 11:12PM
Hello. I had my first Halaven infusion today. I recalled Katty's original post on 10/12 and expected it to be a quick port access and 2-5 min push. I was a little surprised when they strapped an EKG on, hung a bag of fluids, and handed me a pill cup with Dexamethasone, some apple juice, and a blanket. I guess it helped me justify paying for parking. :)
It looks like Xeloda was effective for my bone mets, but I have worsening lymphangitic carcinomatosis that requires a change in treatment. We're hoping to find a genetic mutation in the lymphangitic spread that will offer more treatment options, but for now, it's Hail Mary Halaven.
Based on two years of Ibrance, I anticipate neutropenia. At the lowest dose, I still hung out around .7 to 1.2. I didn't get specifics, but MO indicated there is a treatment similar to Neulasta to assist with Halaven-induced neutropenia and could be self-administered if I'm okay with giving myself shots (which I totally am!). Have any of you heard of this or used it?
Katty, I'm sorry your treatment was delayed. It is so frustrating!
Latte, I'm definitely going to try bone broth!
Oh... and how is your hair holding up?
I see that this conversation ebbs and flows, so I hope to hear how you all are doing.
12/12/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2-
12/12/2015, IDC, Left, 6cm+, Stage IIB, Grade 2, 0/6 nodes, ER+/PR+, HER2-
1/26/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant
10/13/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
7/17/2018, IDC, Left, <1cm, Stage IIB, Grade 2, 18/18 nodes, ER+/PR+, HER2-
7/27/2018 Arimidex (anastrozole)
7/28/2018 Zoladex (goserelin)
8/16/2018 Lymph node removal: Left; Reconstruction (left): Silicone implant
9/11/2018 AC + T (Taxol)
12/25/2018, DCIS/IDC, Stage IV, metastasized to bone, ER+/PR+, HER2-
1/27/2019 Whole-breast: Breast, Lymph nodes, Chest wall, Bone
3/25/2019 Ibrance (palbociclib)
6/2021, IDC, Stage IV, metastasized to lungs
6/13/2021 Faslodex (fulvestrant)
9/23/2021 Xeloda (capecitabine)
11/8/2021 Halaven (eribulin)
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)