Topic: The solution to painful intercourse!!!!!! Yipeee!

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Oct 11, 2011 02:15PM

Posted on: Oct 11, 2011 02:15PM

LivingIt wrote:

Like so many of us, chemo, hormones and surgery have made my marital relations very very painful. Since all this started my DH and I have tried a total of 4 times over 2 years. That is soo sad I know. But it was so very painful I bled for 2 days after try number 3. Then I decided I wanted to try again cause Im so crazy about this guy. We had a date night and I did two things that ended up making me feel like I was 21 again (or a newly wed or however you want to think about it).

1) Scream Cream (thanks K-Lo)

2) 5% Lidocaine Ointment.

The first brings blood to the area and hightens sensation like you cant believe. The second makes the tearing pain DISAPPEAR!!!!

To get scream cream I brought this page to my onc and he wrote the script and I paid about $30. The lidocaine was perscribed for my neuropathic feet so it was free/insurance. 

I wish I could go back in time. I wish I could tell everybody who ever got chemo. I hope you try it if you have this problem.  

Zoh - Don't Postpone Joy!!!! 11/07 AC +Taxotere, then Tamoxifen x2yrs. Aromasin x 6 months, Taxotere x 1.5 yrs, Abraxane 2months, Tamoxifen 1 month, Xeloda Diva x 1 month crazy progression - Gemzar/Faslodex/Xgeva Dx 11/11/2007, IDC, 5cm, Stage IV, 2/8 nodes, ER+/PR+, HER2-
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Jan 14, 2012 06:34PM - edited Jan 14, 2012 06:38PM by suz45

Edited as I posted on the wrong thread..

that said, good to see more doctors jumping on board with this :)

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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Jan 15, 2012 03:52PM kriserts wrote:

Rose, maybe Bigelow's in the Village? Think they're on 7th. A friend of mine gets meds compounded there for her cat. So it sounds as if they compound.

Also, a doc here in NYC had me order high-dose Vit D from this place, so maybe you could give it a try. It's mail order, they're in Chappaqua: http://thehealthychoice.net/

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Jan 15, 2012 07:56PM cfdr wrote:

I will be asking my med onc and PCP about this as well...fortunately both are women! My MO says that daily moisturizing is key, and that Replens can  be used daily but there's no reason to go to that expense. She suggested making my own suppositories out of coconut oil or crisco and freezing them, and using them daily....yeah, that sounds pleasant! And I can't wait to spend a Saturday afternoon rolling up little balls of grease to freeze.

Dx 5/23/2011, IDC, 1cm, Stage I, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/7/2011 Lumpectomy: Left Surgery 6/28/2011 Lumpectomy: Left Radiation Therapy 7/25/2011 Chemotherapy 10/6/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/2/2012 Femara (letrozole)
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Jan 16, 2012 12:00AM Cyborg wrote:

Cfdr
Made the coconut suppositories and they are great

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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Jan 16, 2012 03:42PM cfdr wrote:

Cyborg, how did you make them? Do you have something to use as an applicator or just insert them with your fingers?

Dx 5/23/2011, IDC, 1cm, Stage I, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/7/2011 Lumpectomy: Left Surgery 6/28/2011 Lumpectomy: Left Radiation Therapy 7/25/2011 Chemotherapy 10/6/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/2/2012 Femara (letrozole)
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Jan 16, 2012 03:51PM Denise2730 wrote:

I want to laugh but I don't want to insult anyone here. "Rolling up little balls of grease". I'm sorry I can't help it. ROFLMAO!

This is one of the few times I'm glad I'm a widow. I don't have to worry about sex right now.

Denise

DMX 8/11/11 - TE's put in. Exchange date was December 16th. Hate them and had them redone by a different PS in June, 2012. They look so much better. Still waiting for nips & areolas. Dx 4/29/2011, ILC, 1cm, Stage IIA, Grade 2, 1/7 nodes, ER+, HER2-
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Jan 16, 2012 04:00PM cfdr wrote:

Has anyone tried "Dream Cream"? It's non-prescription, different list of ingredients, but was also developed by Dr. Kaminetsky.

 www.dreamcream.com/

Dx 5/23/2011, IDC, 1cm, Stage I, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/7/2011 Lumpectomy: Left Surgery 6/28/2011 Lumpectomy: Left Radiation Therapy 7/25/2011 Chemotherapy 10/6/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/2/2012 Femara (letrozole)
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Jan 16, 2012 04:05PM - edited Jan 16, 2012 04:07PM by bedo

This Post was deleted by bedo.
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Jan 16, 2012 04:08PM bedo wrote:

 Deleted. Dtr came into room. Very nosey. Nothing exciting. 

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Jan 17, 2012 10:01AM Enjoyful wrote:

I need help with application/amount.

So I followed the directions and applied a pea-sized amount externally.  Nothing.  The following night, I applied some externally and internally (though not very far in).  Other than some warming, I noticed nothing different.  Now, this is just me and I haven't done anything...er...penetrating but I'm almost afraid to now.

What am I doing wrong? 

BENGHAZI! Dx 9/2004, IDC, 1cm, Stage IIIA, Grade 2, 4/14 nodes, ER+/PR+, HER2- Dx 8/28/2009, IDC, 2cm, Stage IV, Grade 2, ER+/PR-, HER2-

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