Topic: The solution to painful intercourse!!!!!! Yipeee!

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Oct 11, 2011 05:15PM

Posted on: Oct 11, 2011 05:15PM

LivingIt wrote:

Like so many of us, chemo, hormones and surgery have made my marital relations very very painful. Since all this started my DH and I have tried a total of 4 times over 2 years. That is soo sad I know. But it was so very painful I bled for 2 days after try number 3. Then I decided I wanted to try again cause Im so crazy about this guy. We had a date night and I did two things that ended up making me feel like I was 21 again (or a newly wed or however you want to think about it).

1) Scream Cream (thanks K-Lo)

2) 5% Lidocaine Ointment.

The first brings blood to the area and hightens sensation like you cant believe. The second makes the tearing pain DISAPPEAR!!!!

To get scream cream I brought this page to my onc and he wrote the script and I paid about $30. The lidocaine was perscribed for my neuropathic feet so it was free/insurance. 

I wish I could go back in time. I wish I could tell everybody who ever got chemo. I hope you try it if you have this problem.  

Zoh - Don't Postpone Joy!!!! 11/07 AC +Taxotere, then Tamoxifen x2yrs. Aromasin x 6 months, Taxotere x 1.5 yrs, Abraxane 2months, Tamoxifen 1 month, Xeloda Diva x 1 month crazy progression - Gemzar/Faslodex/Xgeva Dx 11/11/2007, IDC, 5cm, Stage IV, 2/8 nodes, ER+/PR+, HER2-
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Feb 22, 2014 10:44PM fluffqueen01 wrote:

I love the Carlson suppositories someone suggested, so soothing,and scream cream is good too. I tried some leftover EMLA cream and didn't notice a big difference but not sure I waited long enough or hit the right spot.  My scream cream was compounded in syringes and I didn't realize it was meant to be multiple doses at first and had it everywhere, lol.

My GYN says it is a vasodialator and does not have an estrogen link. He had no trouble prescribing it.

BMX 2/10 w/TE Taxol 12 wkly/herceptin- 1 yr/ Tamoxifen now. TE’s fail/TE’s back in.  Implants 11/11- perky!" tatoo touchup remains. Be kind, for everyone you meet is fighting a hard battle. Plato Targeted Therapy 3/13/2011 Herceptin (trastuzumab)
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Apr 24, 2014 08:57PM Cherrie wrote:

My oncologist gave the ok for Vagifem. Hope I won't regret this. Very low dose estrogen. We'll see how it goes. 

Dx 10/4/2002, IDC, Left, 1cm, Stage IB, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 10/21/2002 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 11/14/2002 Breast Hormonal Therapy 1/10/2003 Surgery 10/11/2011 Lumpectomy: Right Surgery 11/12/2012 Prophylactic mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 24, 2014 09:19PM moonflwr912 wrote:

Cherti, I do hope it works for you! Much love. 

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 12/8/2011 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 1/17/2012 Reconstruction (Left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (Left) Surgery 8/14/2013 Reconstruction (Left): Tissue Expander Surgery 9/4/2013 Reconstruction (Left) Surgery 12/13/2013 Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant
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May 2, 2014 10:05PM lamp wrote:

Hi Cherrie, what's your very low dose of vagifem!

I had the okay, but am just too nervous! 

Dx 10/15/2012, IDC, 1cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 11/8/2012 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right) Hormonal Therapy 1/3/2013 Arimidex (anastrozole)
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May 5, 2014 03:01PM Cherrie wrote:

10 mcg  I have had a Mastectomy and lowered my odds even more so that layed into my decision. 

Dx 10/4/2002, IDC, Left, 1cm, Stage IB, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 10/21/2002 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 11/14/2002 Breast Hormonal Therapy 1/10/2003 Surgery 10/11/2011 Lumpectomy: Right Surgery 11/12/2012 Prophylactic mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 7, 2014 09:04PM lamp wrote:

Hi Cherrie, good for you! It's a difficult decision, are you taking arimidex as well right now? I am, which isn't helping matters.....

Dx 10/15/2012, IDC, 1cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 11/8/2012 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right) Hormonal Therapy 1/3/2013 Arimidex (anastrozole)
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May 7, 2014 09:37PM Dianarose wrote:

Fluffqueen- what is the prescription name for scream Cream? I want to call my doctor yesterday? LOL. I have been so down about this problem and came across this thread the other day. it is bad enough BC took the top end and now messing with the lower end. I will try anything!!!

6/10/13 mets to ovary now. Now mets. To peritoneal stage IV Dx 3/22/2012, ILC, Both breasts, 1cm, Stage IV, metastasized to bone/other, Grade 2, 17/17 nodes, ER+/PR+, HER2- Chemotherapy 5/31/2012 CMF Radiation Therapy 12/3/2012 3DCRT: Breast, Lymph nodes Hormonal Therapy 8/10/2013 Aromasin (exemestane) Targeted Therapy
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May 7, 2014 10:58PM moonflwr912 wrote:

Diana rose. Unfortunately. Scream cream IS the awful name! LOL  I'm not sure which posting had the link to the script ingredients that you could take to the pharmacy. It also has to be a compounding Pharmacy. There are not a lot if those around.  You get plenty but it doesn't last ling. Perhaps you could ask your pharmacy if that could be frozen? My pharmacy made up 2 syringes. I should have tried freezing one. 

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 12/8/2011 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 1/17/2012 Reconstruction (Left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (Left) Surgery 8/14/2013 Reconstruction (Left): Tissue Expander Surgery 9/4/2013 Reconstruction (Left) Surgery 12/13/2013 Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant
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May 14, 2014 01:57PM Vadre wrote:

You gals are wonderful! Can't wait to talk with my MO. She's got a great sense of humor. I just know that she's gonna get a hoot out of the name "Scream Cream!" I hope it works. I really miss the intimacy of making love. It's such an important part of our relationship. It always reminds me of how close we are and that I am still a woman. No matter what they add, subtract or divide!

Hope is the thing with feathers - That perches in the soul - And sings the tune without the words - And never stops at all. Emily Dickinson Hormonal Therapy 1/18/2011 Arimidex (anastrozole) Dx 2/11/2011, ILC, 4cm, Stage IV, Grade 3, mets, ER+/PR+, HER2-
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May 15, 2014 12:03AM moonflwr912 wrote:

Sorry I can't link to it on my phone. But on page 16 of this thread about the 7th post, there is a link to the scream cream FAQs including the ingredients and proportions.  I wish you lots of luck and great sex!

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 12/8/2011 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 1/17/2012 Reconstruction (Left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (Left) Surgery 8/14/2013 Reconstruction (Left): Tissue Expander Surgery 9/4/2013 Reconstruction (Left) Surgery 12/13/2013 Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant

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