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Sep 26, 2020 01:21PM
Mediclisa, it is very good to hear from you, sorry about the hospital stay and numbers from the Eribulin. Glad you could get a cubii, I love mine too. Put it on a yoga mat under the couch I use it on and put the couch leg on the yoga mat as my cubii was starting to travel. I hope you also get to 4 plus years as well.
I have had ups and downs and do find my continued treatment leaves me exhausted. I can still be very active though. I did walk today for an hour on my treadmill and then 7 miles round trip to and from Walmart for groceries. I made sure I walked steady with smaller steps and kept my breathing slow. Makes it easier as this was a massive physical effort. Getting there was fine, did get a few groceries. Coming home was harder but I did stop at a burger joint for lunch to fuel up and headed home with about 10 lbs worth of groceries.
I was exhausted but glad I got it done. Feeling good now that I have cooled off.
I was also told that I needed to get my final affairs in order when the met was discovered. Due to the fact I have inflammatory breast cancer, had grade 3 and HeR 2 positive, it was the most aggressive it could be. Turns out the chemo and Herceptin worked very well for me due to the fast growing cancer. NED from the neck down since mastectomy and chemo going on 5 years. Brain has been NED since last treated in 2018 as well. I am lucky and I hope you get to be too.
The cubii will help with the exhaustion as well. Again, thank you for your update! Don't listen to someone guestimating how long you have left. Day by day should be how it is handled. Even if you do figure out some things if the cancer took a turn, those are just practical things to take care of to make wishes known, not indicating the end is near.
2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta.
3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+
4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right
5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+
7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+