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Nov 3, 2020 09:39AM
Ironic, I’m sorry your mom is having a tough time and while I can’t presume to know how she feels, I can give you and your dad perspective on how I and many others have felt recovering from brain radiation or surgeries.
She probably doesn’t feel like eating, things taste bad or nothing sounds appealing, so asking and urging repeatedly, even with good intentions is frustrating and annoying.
Seeing her family struggle with questions and chores is likely difficult to watch and I have felt like I can’t get a brake being bombarded with questions, I’ve also wondered if my husband will manage without me and felt like he should naturally know more about keeping house.
She’s probably scared and worried if she’ll make it through this tough time but doesn’t want to burden you all with worries, it’s always time to be patient and kind, but especially now, no arguing please.
On you worst day, you can’t begin to image our struggles, mentally and physically. Try to support her as best you can but be very careful not to treat her like a child or invalid, cancer meds can make us cranky enough.
Maybe you can entice her to being a bit more active with a favorite snack and a favorite movie but at home, do she can still rest.
Diagnosed at 41 Stage IV De Novo
11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC)
1/1/2017 Abraxane (albumin-bound or nab-paclitaxel)
1/1/2017 Herceptin (trastuzumab)
1/1/2017 Perjeta (pertuzumab)
6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary
8/10/2017 Breast, Lymph nodes
10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC)
10/19/2017 External: Brain
4/18/2018 External: Brain
5/22/2019 External: Brain
2/16/2020 External: Brain
7/20/2020 External: Bone
12/4/2020 External: Brain
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)