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Topic: What is no evidence of disease?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Dec 20, 2011 08:21AM

Amyf wrote:

What exactly does that mean? You're essentially "cured"? I don't understand. (watching the today show and they mentioned it).

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Dec 20, 2011 08:24AM voraciousreader wrote:

'Definition: No evidence of disease (NED) is a term that is used when examinations and tests can find no cancer in a patient who has been treated for cancer. NED is the equivalent of remission - having no signs or symptoms of cancer. NED and remission of cancer may be temporary or permanent.

When speaking of breast cancer, the term no evidence of disease (NED) does not mean that the disease had been cured, since recurrence can't entirely be ruled out.'

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Dec 20, 2011 08:26AM chrissyb wrote:

Hi Amy, my understanding of the words No Evidence of Disease is that what lessions you had have either healed or disappeared and there is no visible new ones.  It does not mean a cure as there is likely to be some cells somewhere that for the moment cannot be seen.

Love n hugs.  Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Dec 20, 2011 08:27AM Amyf wrote:

Thanks voracious, that's a good explanation. How often does cancer reoccur in us stage 4 ladies I wonder?

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Dec 20, 2011 08:28AM Amyf wrote:

Thanks Chrissy, that's what I was wondering too (that there must be cells left.)

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Dec 20, 2011 08:35AM voraciousreader wrote:

http://theoncologist.alphamedpress.org/content/8/6/514.full

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Dec 20, 2011 08:43AM Amyf wrote:

Excellent article, thanks again voracious :)

WBR and rads to hips, rods in femurs 7/10/10. 1 yr Abraxane and Herceptin in 2011. Cyberknife to spine fx 9/8/11 and to brain 11/2011 and 11/2012. Currently on xeloda, Tykerb, and aridimex for almost a yr. Dx 7/3/2010, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Dec 20, 2011 12:06PM scuttlers wrote:

Excellent article! Thanks!

My favorite side effect of treatments is BEING ALIVE! Dx 2/4/2009, IBC, 6cm+, Stage IV, Grade 3, 11/17 nodes, mets, ER+/PR-, HER2+

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