Jan 6, 2012 12:10PM alesta29 wrote:

Hi Barb

Welcome and sorry you have found yourself here. I have lung mets (along with liver and spine). My first chemo was FEC x3 (I had liver progression) followed by Docetaxel x3 which I finished in November. Am now on Tamoxifen and have my first scan (gulp!) on Monday with the results the following Monday.  

Good luck with the Navelbine. I'm sure there will be a Navy gal along soon with some words of wisdom. It might help to post a bit about your BC i.e. ER/PR HER2 status along with any other treatment you have had.

As to etiquette, I think we're pretty chilled here. On the board I'm on in the UK, I get moderated for cussing! Jeez - here I am, an adult woman with cancer and I get told off for venting with a couple of swear words!!!

The only thing I have come across which seems to be a no-no is lower stage folk asking higher stage folk how to avoid turning into a higher stage person. It's usually done with the best of intentions but does tend to get people's backs up - understandably, I think. 

Laurie x 

Jan 6, 2012 03:03PM usafmom wrote:

Bhd1
Hi sorry you had to find us under these circumstances. You and I have some similarities in our DX. I too have lung mets, bicep,aorta nodes, axillary nodes, and recently a small brain met. I'm currently on FEC x4. Then I move on to taxol and herceptin with radiation possible.

Every one here is very nice it will help a lot to have some place to vent. Like Laurie said there isn't to much etiquette except I think be respectful of differences of opinions. We all follow our hearts and what is right for one person may not be right for another.

Good luck on the new chemo and let's hope it kicks the crap out of the "C"

Kimber

Jan 6, 2012 04:41PM Fitztwins wrote:

Nsvelbine was developed for lung mets, a good choice. My lung mets are very fickle, but seem to respond to treatment , I hope yours do too!!

Best of luck!

Jan 6, 2012 05:42PM chele wrote:

Sorry you had to join us. No lung mets but I am on Navelbine. Side effects are nil so far except for my immune system. But every chemo I have been on has done that so I don't hold it against it!

Jan 6, 2012 09:18PM Helmie wrote:

Hi Barb, I'm another lung mets sister. However, I'm ER/PR+, Her2-. I was on navelbine only for 4 treatments, 3 weeks on, 1 week off, and then I only got one more treatment, because I had developed a subdural hematoma. Nobody knows why. As I got my first navelbine they gave me aloxi as a pre-med anti-nausea. I had a terrible head ache for 2 days after that. The next week I got zofran, and everything was fine. However, just a day before my scheduled 2nd treatment of the 2nd cycle the head ache was back, my onc cancelled the chemo, and sent me to have a brain MRI done right away, where they discovered the subdural hematoma. I had brain surgery on Dec 5th. My onc did not put me back on the navelbine, because I still show progression, but no brain mets. Yesterday I started a new chemo, Alimta. Hope this one will work. It is actually a lung cancer drug, but back in May last year we had sent a tissue sample to Caris Life Science in TX. Amongst a bunch of other recommendations they think that Alimta might be beneficial.

I hope the Navelbine will work for you for a very long time. For the short time I was on this drug, I did not notice any SEs (other then the head aches, which I don't attribute to Navelbine anyway).

sending you lots of hugs,
Helmie