Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jan 6, 2012 10:53AM - edited Oct 12, 2013 09:32AM by bhd1

Posted on: Jan 6, 2012 10:53AM - edited Oct 12, 2013 09:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Jan 9, 2012 09:34AM PizzaDad wrote:

My bride has lung mets.  Currently she is on Taxotere but I am going to be asking about halaven and navalbine today when we go in for her appointment.  She has had fluid in her lungs and a terrible time breathing the last few weeks.I'm hoping one of the others will be a bit kinder to her.

Hope you have good success on the navalbine.

Husband of Stage IV BC patient. Triple Neg stage II discovered summer of 2007. Surgery, Chemo, Radiation. We thought we were in the clear until Jan 2011. Mets to Lungs, bone and liver. Currently taking Halaven Dx 1/31/2011, Stage IV, ER-/PR-, HER2-
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Jan 10, 2012 11:27PM simba wrote:

My first mets was to my lungs in 2008. I had a new lung biopsy sent to Caris and found the cancer had changed from Her2- to Her2+. My first treatment was with the usual carboplatin, taxol, and herceptin protocol (6 treatments). The carboplatin really seemed to clean up my lungs well. In 2010 I had mets to my liver. I had Sirspheres for this, which 2 years later, in combination with various chemos, has kept the liver tumor to half the size it originally was.

I'm on Navelbine now with herceptin. It really knocks my platelets and white blood cells down. I give myself neupogen shots for the first 10 days after treatment. I've had to be hospitalized several times for neutropenia. But I think that was before they finally decided I needed the neupogen. I think for me it is just the problem that I've been on so many chemotherapies that my bone marrow has just about had it. Navelbine is suppose to be given in small doses once a week (according to my onc). But since my platelet levels drop so low, he has to give me Navelbine once every two weeks. so, according to him, I am getting only half the dose. But on the first 3 months of being on Navelbine, my scan showed improvement. I'm due for another scan first part of Feb.

Other than my blood counts I've noticed constipation the first week after treatment. I also am really prone to nausea and vomiting. I told them I would need Emend as a pre treatment nausea drug. They told me the emetic profile of Navelbine was not high. I told them that in the past the only thing that has worked for me is Emend. It is expensive so they talked me into trying the first treatment without the Emend. A few days later I ended up in the hospital for 9 days throwing up my guts and loosing blood from intestinal bleeding. Now they always give me Emend and IV Kytril prior to treatment, and a kytril patch to wear on my skin the first 7 days after treatment. Do you think my insurance company would have preferred to pay for a dose of Emend or a 9 day hospitalization? lol  Of course fatigue is always a problem for days 3-10 especially after the steroids they give you before treatment wear off.

Hope this helps. Since you are getting Navelbine first, you will likely glide through with very few problems. Prayers and hugs, Sherrie.

Dx 3/5/2005, IDC, 3cm, Stage IV, Grade 3, 1/13 nodes, mets, ER+/PR+, HER2+
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Jan 11, 2012 11:28AM china wrote:

Welcome to the board! We have no etiquette here, we love running amonk!!!! Just kidding, please post when ever you have a concern, just want to vent, rant because we are here for you always. I did Abraxane for just under 8 months and had progression so was changed to Gemzar which got me stable. I have no hx of lung mets only liver/bone. I did Taxol too but was severely allergic to it. Good luck with your tmts and hope it kicks your cancer mets to kingdom come. Hugs Dawn

Dx 4/6/2007, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2-
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Jan 11, 2012 11:43AM sarahlou1967 wrote:

Hello Barb,

Welcome to our unfortunate club of lung mets, I have mets to both lungs and after neo-adjuvant chemo x5 taxotere x1 FEC prior to surgery the mets have shrunk to tiny and stable which is really good news, I don't have any symptoms at all but everytime I get a cough I always think the worst but its turned out to be just a cough!! I did ask about cyber knife but was told I have to many for that treatment which is a shame cause I think its very effective for lung mets. I had a mx with lymph clearance back in September and am now doing radiotherapy as well as tamoxifen/herceptin combo which seems to be keeping all at bay.

Hope that the navelbine works for you I'm sure it will, we are all different some works some don't it's just a case of trying until you find what works for you, keep us posted anytime you want a chat please feel free to pm (private message) me.

Sending you love and light

sarahsweety xxx 

Dx 2/2011, IDC, 6cm+, Stage IV, Grade 3, 1/13 nodes, mets, ER+/PR-, HER2+ Chemotherapy 4/9/2011 Taxotere (docetaxel) Targeted Therapy 4/12/2011 Herceptin (trastuzumab) Surgery 9/12/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/19/2011 Radiation Therapy 1/4/2012
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Apr 18, 2013 07:06PM justagirl wrote:

This is my first time posting here. on January 21 of this year they found lung mets quite by accident when doing a CT of my liver (liver enzymes were elevated - probably from Femara, but Dr was just checking...I know, for CA) got a couple of pictures of the lower lobes of my lungs. Then they did a full CT of my lungs and found 'too numerous to count breast cancer metastases throughout all lobes of the lungs, with condensation bilaterally at base of lobes and up outer sides. I almost fainted. The oncologist said they are the size of a pin head. She just switched me from Femara to Tamoxifen. 6 weeks later my blood tumour count was down from 80 to 56 and the CT of lungs unchanged. No more testing until beginning of June. Oncologist says I am doing well.

I asked in the beginning why not just hit me with chemo again and she said to wait and see if the Tamoxifen did the trick. I just wanted it bombed out of my body. Now I'm waiting and wondering what is going on. I have never had any breathing issues and my O2 saturation is 98%. Oncologist said I will be dealing with this for the rest of my life and might very well need chemo in the future and the body can only take so much. I found my first rounds of chemo not so bad.

I'm getting more scared with so long to wait to find out how I'm doing.

How do all of you cope with this 'waiting'. I try to be positive but do sink info deep funks. My original BC was discovered March 2010, and my last surgery Oct 2011, so just before finding out about the lung mets, I felt like I was getting back to being me again. And now I'm me with lung mets!

Any suggestions from you wise women?

Debbie: Now that I'm a Stage lV'er, my anxiety has become a reality - lung mets. I am sooooo mad! Dx 3/16/2010, IDC, 1cm, Stage IV, Grade 3, 0/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 3/31/2010 AC
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Apr 18, 2013 08:42PM SonnyB wrote:

justagirl, This is a year old thread that you have posted on.  I suggested creating a new thread and copying your post into it to get the answers you are looking for.  

I am sorry that you have joined us here but you have found a wonderful group of ladies full of information and support.  The first couple of months are the hardest while you are trying to wrap your mind around your new life. Once you are settled into your treatment and increase your knowledge it will be easier to deal with.

When I started Tamoxifen my onc said it could take up to three months to start working and didn't consider scanning before that.  During those three months my markers went from th high 60s to the 20s.  A year later Tamoxifen is still working for me.  I would say with your tumor markers going down you have reason to think positively!

Extensive bone mets, neck to femur Dx 2/8/2012, IDC, 4cm, Stage IV, Grade 1, 1/5 nodes, mets, ER+/PR+, HER2-
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Apr 18, 2013 08:56PM bhd1 wrote:

Justagirl I have found staying in the present is the best way to live with mbc. Don't look back and not too far ahead. One day at a time.

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Apr 19, 2013 12:50AM GatorGal wrote:

I think I was on AI's for 2 and 1/2 years before starting on chemo. It's so much easier than chemo and if you can get a couple of years out of it before starting chemo, better for your body. I had several opinions and was told the same thing by everyone. I was able to work and lead a pretty normal life until I started the chemos. I've gone through quite a few of them as well. Better to start with the least invasive and "harmful" treatments and save the chemos for when the AI's become ineffective! Sorry you've had to join us here. Hugs, Glenna

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 4/10/2011 Taxotere (docetaxel) Chemotherapy 8/13/2011 Gemzar (gemcitabine) Chemotherapy 6/12/2012 Doxil (doxorubicin) Chemotherapy 12/11/2012 Taxol (paclitaxel) Chemotherapy 9/10/2013 CMF Chemotherapy 4/15/2014 Carboplatin (Paraplatin) Chemotherapy 12/16/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 9/8/2015 Navelbine (vinorelbine) Chemotherapy 12/22/2015 Halaven (eribulin) Chemotherapy 4/12/2016 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/14/2016 Ixempra (ixabepilone) Hormonal Therapy 7/26/2016 Arimidex (anastrozole)
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Apr 19, 2013 01:49AM justagirl wrote:

I saw that this thread wasn't very active but it was the only one that dealt with being just diagnosed with lung mets.



bhd1: yes, I think for me it's to not look back at what I was or could do, but what I can do now and tomorrow.

SonnyB: thanks for the reassurance that my tumor marker going down is a good sign. I thought it was % -wise.

Glenna: I get you. The tamoxifen now for as long as it works. Hopefully I will have many more years ahead of me, and if the tumours increase or enlarge or start giving me problems, then my body will be way past the last chemo so maybe it won't be all so bad.

No, this is one group I didn't really want to join, but I sure am glad I found all of you! I already feel better. Many thanks

Debbie: Now that I'm a Stage lV'er, my anxiety has become a reality - lung mets. I am sooooo mad! Dx 3/16/2010, IDC, 1cm, Stage IV, Grade 3, 0/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 3/31/2010 AC
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Apr 23, 2013 03:58PM - edited Jul 30, 2013 12:54PM by sarahlou1967

Hi justagirl,

Sorry I'm a bit late jumping in on this thread I'm english and don't come on here that often. I understand your panic over the lung mets I was dx with both a large primary IDC 6.5cm and 2 weeks later mutiple mets to both lungs back in March 2011 to say it was a shock was an understatement it sent me into a year long research bender which has ended up with me taking a concoction of supplements and drinking a pint of organic green veg/wheatgrass juice daily, so far so good, I've had lots of CT scans since and have been taking tamoxifen and having herceptin for the past 2 years the mets on my lungs haven't changed they have stayed the same since a CT scan in June 2011 like yours mine are also tiny and due to the no change one onc I saw told me "it could just be scar tissue on your lungs and not cancer" because they are so tiny they can't biopsy them so I live in a freaky kind of limbo land "is it or isn't it" that is the question that I have banging perpetually around in my head, I say perpetually but actually thats not strictly true as time has gone by and I remain stable and symptom free the big C constant worry is sort of somewhere around the back of my head not on my mind all the time or in my face, I get a bit nervous when I have to go in for scan results but I don't allow myself to worry until I'm in that waiting room.

The only advice I can give you is to look after yourself eat healthy and try to include some gentle exercise, look into complementary treatments to help you feel better about yourself its hard to trust your body when you've lost confidence in it, live for the moment is my moto I try not to plan to far ahead and take each day as it comes, definately try and enjoy and have some laughter in your life. It certainly isn't an easy ride but its one that gets easier with each passing day.

If you want too know what supplements I take or what my diet is I write a blog livingwithsbc.blogspot.co.uk/ (as a way of trying to make sense of the mountains of info on the subject) as far as supplements/diet/exercise go I think this is a personal decision and of course you don't have to change anything at all if you don't want to but for me personally by changing things it gave me a feeling of being in control of my body and life again. Take care if you want to ask anything else or just have a chat please private message me.

Sending you all love and lightxxxx

Dx 2/2011, IDC, 6cm+, Stage IV, Grade 3, 1/13 nodes, mets, ER+/PR-, HER2+ Chemotherapy 4/9/2011 Taxotere (docetaxel) Targeted Therapy 4/12/2011 Herceptin (trastuzumab) Surgery 9/12/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/19/2011 Radiation Therapy 1/4/2012

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