Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jan 6, 2012 08:53AM - edited Oct 12, 2013 07:32AM by bhd1

Posted on: Jan 6, 2012 08:53AM - edited Oct 12, 2013 07:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Apr 22, 2014 09:49PM GatorGal wrote:

hey jean, so sorry you aren't responding to the halaven.  I like the idea of a telephone consult if something like that can be arranged.  I know Enjoyful is involved in a trial in Boston. It's not Dana farber but somewhere else.  She is having good results!  Don't know how far away that would be for you.    Hopefully once they get the breathing situation under control you will feel more able to travel.  Keeping you in my thoughts and hoping that cath does it's job quickly for you!  Hugs, glen a

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 4/10/2011 Taxotere (docetaxel) Chemotherapy 8/13/2011 Gemzar (gemcitabine) Chemotherapy 6/12/2012 Doxil (doxorubicin) Chemotherapy 12/11/2012 Taxol (paclitaxel) Chemotherapy 9/10/2013 CMF Chemotherapy 4/15/2014 Carboplatin (Paraplatin) Chemotherapy 12/16/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 9/8/2015 Navelbine (vinorelbine) Chemotherapy 12/22/2015 Halaven (eribulin) Chemotherapy 4/12/2016 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/14/2016 Ixempra (ixabepilone) Hormonal Therapy 7/26/2016 Arimidex (anastrozole)
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Apr 23, 2014 01:21PM carolsue63 wrote:

gah -- my symptoms were BAD when I started treatment. I'd get out of breath just walking across the room. Couldn't do basic household tasks like emptying the dishwasher. Forget speedwalking -- just walking up a single flight of stairs, I'd have to lay down for 5 minutes to recover. I was pretty much homebound. Never went anywhere because everything was too much effort for me. Couldn't go through the grocery store without an electric scooter. (And a few short months before, I was in great shape, walking 10-15,000 steps a day, every single day!!) I never dreamed I'd actually look forward to having chemo, but even the thought of chemo was preferable to how bad I felt. I noticed significant improvement after my very first chemo treatment. My cough wasn't completely gone, but it was much, much better. My oncologist put me on oxygen when I had my first chemo treatment because I started having trouble breathing during the treatment and my O2 sats dropped to 86. I got an oxygen unit at home and carried a portable tank with me everywhere I went. But by the time my third treatment rolled around, I was off oxygen completely. I still cough some, but I it's a very different cough now that I attribute to chemo side effects (throat irritation), and I still get out of breath pretty easily, but I think that's to be expected having been as inactive as I've been for so many months. Hopefully as soon as I finish chemo I can work on building my stamina back up again.  

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/16/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/18/2010 Herceptin (trastuzumab) Chemotherapy 3/18/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/19/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/14/2014 Herceptin (trastuzumab) Targeted Therapy 1/14/2014 Perjeta (pertuzumab) Chemotherapy 1/14/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Apr 24, 2014 12:47PM Adnerb wrote:

Jean, I am so sorry that your PE keeps coming back and is getting worse.  I hope that the catheter relieves you of the PE and the accompanying breathing problems.  When your breathing is better, Navelbine might just be the chemo for you!!!

gah, my symptoms got better after the 3rd treatment.  I was having weekly infusions.

Carolsue, I am so glad to hear that your cough is getting better.  The chemo is working!

Hugs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Apr 24, 2014 02:43PM Adnerb wrote:

Aimee, were your mets on the lining of the inside of your lung?

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Apr 25, 2014 09:20AM Padiddle wrote:

Just to update:  The radiologist did not think moving to PleurX catheter was the next move, so he performed the Tap which worked much better than the first time.  I was at a different facility too.  The facility I went to was much calmer and quieter.  Did not experience the pneumothorax (Big hurray).  They did not use a pump either.  They tapped and let gravity do it's thing.  They said they've been doing it this way for 14 years and it works great, so they never added a pump to assist in draining.  Oncologist office called yesterday and they are moving to plan on Navelbine for Monday although they don't have official word from onc yet but wanted me to know I may very well be starting the Navelbine right away Monday morning.  I have some relief from the PE but I expected a lot more relief.  Am I expecting too much or is the relief minimal?  Maybe I'm deconditioned from so many weeks of labored breathing.  I walked from one room to another this morning and rinsed out a glass with no trouble which was the highlight.  I'll be thankful for the little bit I can get.  I hope everyone is doing well and has had good weeks.  Hugs, Jean

Mets to sternum, ribs, thoracic and lumbar spine, femur, pelvis, lungs, skin, peritoneum, adrenal glands Dx 8/2000, IDC, 1cm, Stage IIB, 10/13 nodes, ER+/PR+, HER2- Surgery 9/9/2000 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 11/16/2000 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/19/2001 Breast Dx 10/5/2009, IDC, 2cm, Stage IV, 1/1 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 2/28/2010 Femara (letrozole) Surgery 11/29/2011 Mastectomy: Left Chemotherapy 4/3/2012 Taxol (paclitaxel) Chemotherapy 11/25/2012 Gemzar (gemcitabine) Chemotherapy 2/3/2013 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 1/5/2014 Halaven (eribulin) Chemotherapy 4/27/2014 Navelbine (vinorelbine)
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Apr 25, 2014 05:03PM Adnerb wrote:

I'm with you, Jean.  Every little improvement in your breathing is something to be thankful for.

When my pleural effusion showed up for the first time on a chest xray I was taken to ER and admitted to the hospital for 5 days!  After reading about so many people who had the PE and not the hospitalization it is becoming clear to me why my PE was treated differently. Not being "sick" for 4 years forced the medical people to test for other major things, besides cancer.  No one knew yet that I had lung mets so they also had to test for heart problems, pneumonia, TB, embolism and other major things.

My first thoracentesis was done at the hospital.  I hated it!!!  It was the way they did it.  They were not gentle and talked to each other like I wasn't there.  My latter experiences with this procedure were 100% better.  The ladies talked to me and were very cognizant of my needs.  Jean, I am glad that your procedure went well.

HUgs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Apr 26, 2014 05:56AM carolsue63 wrote:

Jean, I wonder the same thing about breathing getting better. I'm very happy that my cough is almost completely gone, and my breathing is much better than it was, but will it ever get back to normal or near normal again?  I wonder if it's partly being deconditioned like you said, and maybe if I start walking a little each day, I'll gradually see some improvement. I also wonder if some of my SOB might be a S/E from chemo. It seems to be a little more noticeable around 10 days after chemo, which I think is also when my blood counts are supposed to be at their lowest. Could there be a connection?

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/16/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/18/2010 Herceptin (trastuzumab) Chemotherapy 3/18/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/19/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/14/2014 Herceptin (trastuzumab) Targeted Therapy 1/14/2014 Perjeta (pertuzumab) Chemotherapy 1/14/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Apr 26, 2014 02:41PM Adnerb wrote:

Carolsue, I just read that pleural effusion is a rare side effect of herceptin but not perjeta.  Hope this helps.

Hugs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Apr 26, 2014 09:39PM susaninsf wrote:

My cough was getting really bad at night and my MO thought it might be an infection rather than the lung mets so she put me on a short antibiotic regiment.  It was better that night so a pretty immediate response.  I also find that my allergies seem to impact my coughing a lot so I have become super vigilant about keeping the bedroom clean (I have dust mite, hay fever and cat allergies though we have a cat) and have replaced the filters in all of my air filters.  When I'm not in the bedroom I put the air filter on a higher setting to clean the air better while I'm not sleeping.  I also pop an Allegra every night before I go to sleep.  So far, my breathing is mostly okay and still even go to dance class.  Try to keep exercising for as long as I can.  Starting on brain and eye radiation Monday morning which will slow me down.

Mets to brain, lung, liver, eye, femur bone. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Reconstruction (Right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy; Mastectomy (Right) Dx 3/29/2014, DCIS, Left, 4cm, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External Local Metastases 4/28/2014 Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External Local Metastases 1/8/2015 Radiation therapy: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External Local Metastases 11/27/2017 Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External Local Metastases 10/23/2019 Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Other Chemotherapy 11/2/2021 Other Targeted Therapy 1/6/2022 Targeted Therapy 6/24/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
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Apr 27, 2014 06:15AM carolsue63 wrote:

That's interesting, thanks Brenda.

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/16/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/18/2010 Herceptin (trastuzumab) Chemotherapy 3/18/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/19/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/14/2014 Herceptin (trastuzumab) Targeted Therapy 1/14/2014 Perjeta (pertuzumab) Chemotherapy 1/14/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)

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