Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jan 6, 2012 05:53PM - edited Oct 12, 2013 04:32PM by bhd1

Posted on: Jan 6, 2012 05:53PM - edited Oct 12, 2013 04:32PM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Apr 27, 2014 05:36PM Adnerb wrote:

Susan, let us know how the radiation goes.  Sending you lots of prayers and healing energies.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 2, 2014 12:41PM carolsue63 wrote:

Going for chemo round 6 of 6 today. Woohoooo! This thread has been quiet the last few days. Hope you're all doing well. :-)

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/17/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/19/2010 Herceptin (trastuzumab) Chemotherapy 3/19/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/20/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/15/2014 Herceptin (trastuzumab) Targeted Therapy 1/15/2014 Perjeta (pertuzumab) Chemotherapy 1/15/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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May 2, 2014 08:18PM Carolben wrote:

Hope the rads will be effective and easy, SusaninSF - so great your breathing has improved!

Glad your breathing is also improved Carolsue.  My sob is sporadic, it can come out of nowhere, like I'll run out of breath in the middle of talking.  Stairs do me in.  I think part of it is the chemo, part being out of condition after a long time of treatment.  I also am more aware of my lungs, odd pains, feeling a heaviness on my chest.  Sometimes I feel pain in one particular area, or a general back ache in my lung area, not sure what that's about.  But yoga I can do, even if I come home after and don't move for a few hours!!

Jean, I hope the Navebine will kick butt!! (not yours, the cancer's, lol)  Like Brenda says, all improvement is good.  

Brenda, when do you start back on chemo?  I really hope it'll do the same as last time!

Have been nauseous on this cycle of Xeloda, using lots of Ondansetron!  Also the fatigue gets bad sometimes.  Have been struggling with some depression too, so have changed one of my meds.  Sure the fatigue affects the depression too, been wanting to sleep a LOT, and that's often my escape.

Also struggling with a very short attention span - I can't watch even an hour's program on TV without taking a break half way through!  Chemo brain still?

Thinking of you all, hoping for a good weekend for all of us! 

love, courage and grace. Mets to lungs Feb 2013, 8 Dec 2014 brain mets Dx 5/14/2012, DCIS, 2cm, Stage I, Grade 2, 0/1 nodes, ER-/PR-, HER2- Surgery 5/23/2012 Mastectomy: Left Chemotherapy 6/22/2012 AC Radiation Therapy 9/25/2012 Breast Dx 2/4/2013, Stage IV, mets Chemotherapy 2/15/2013 Taxol (paclitaxel) Chemotherapy 11/20/2013 Xeloda (capecitabine) Chemotherapy 7/18/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 12/15/2014 Brain Dx mets
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May 3, 2014 01:44AM susaninsf wrote:

Thanks for the positive thoughts on my radiation!  Just finished the first week (5 treatments out of 20).  Was feeling good until yesterday.  Now pretty tired and not feeling like eating much.  Taking Zofran which helps some.  In general, I feel pretty good in the morning but by the afternoon I pretty much just want to sleep.  I do feel that my breathing keeps getting better and I hope it is the Tamoxifen/Zoladex.  Hoping my energy will pick up over the weekend since I don't have treatments on weekend days.

Hoping everyone has a relaxing/fun weekend!

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Reconstruction (Right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy; Mastectomy (Right) Dx 3/29/2014, DCIS, Left, 4cm, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External Local Metastases 4/28/2014 Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External Local Metastases 1/8/2015 Radiation therapy: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External Local Metastases 11/27/2017 Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External Local Metastases 10/23/2019 Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Other Chemotherapy 11/2/2021 Other Targeted Therapy 1/6/2022 Targeted Therapy 6/24/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
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May 3, 2014 02:28AM Adnerb wrote:

Susan, what is the plan after chemo?  It must feel good to have the chemo out of the way.

Carolben, I started last April 25 and had another one today.  I had forgotten about the nausea and fatigue.  Sorry about the depression.  I have that too, but the anti-depressants are still working, I think.  I do get dark moments, and I think it's normal to get blue with my/our predicament.

Hugs to everyone.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 3, 2014 02:20PM carolsue63 wrote:

Carolben, I'm not sure which I hate more -- depression or antidepressants. It's so hard to find the one that works right for you. I'm sure my MO is going to be starting me back on Arimidex now that I've finished chemo, and I'm so not looking forward to it. The worst side effect for me was the irritability. I'm hoping that without the stress of my job, just maybe it won't be quite as bad this time.

Susan, congrats on being 1/4 of the way through radiation!  I'll never forget how draining it was. But I also remember how quickly I healed as soon as treatment was over. Hang in there. You'll get through this soon. Keep us posted on how you're doing.

Brenda, good luck with chemo. Hope it kicks some serious cancer butt and that your S/E's are tolerable.

I went to our county Relay for Life last night and had a great time! I was pretty tired after chemo yesterday, but I REALLY wanted to go. So I laid in bed, unable to go to sleep, so I prayed instead. For energy, for no nausea, for the weakness in my legs to go away. (I'm a big believer in the power of prayer.) I got out of bed at 5:30 and found my second wind. I'd had doubts that I'd be able to even finish the survivor lap as weak as my legs had been feeling during chemo, but I ended up walking 3 laps!! One of the ladies from my support group was complaining how out of breath she was feeling and for some odd reason, that gave me such a boost. Here I am, Stage 4 with lung mets, just finished my sixth round of chemo, and I want to keep walking!! It made me hopeful that some of my breathing issues aren't from the lung mets -- they've been blasted to smithereens! -- but from all the chemicals pumped into my body and from being so out of shape. I've started wearing my Fitbit again, and yesterday I walked 6,000 steps. That's the most I've walked since early October!!

Here's a picture from last night -- I'm the tall baldie holding the banner.

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/17/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/19/2010 Herceptin (trastuzumab) Chemotherapy 3/19/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/20/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/15/2014 Herceptin (trastuzumab) Targeted Therapy 1/15/2014 Perjeta (pertuzumab) Chemotherapy 1/15/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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May 4, 2014 04:15AM chanah wrote:

I have been feeling pretty OK, slowly getting a bit worse but still OK other than shortness of breath and as Carolben said, I just notice my lungs more and have odd pains now and again.  

It is easier to feel well when I am happy and busy.  I am entrenched in final touches on the plans for my youngest daughter's wedding coming up on May 17th.  Also, lots doing with my middle daughter who is expecting my 7th grandbaby due on July 31 and she is moving closer.  She will now be 1/2 hour from me instead of a full hour  and will be in same town as my oldest daughter.  My oldest son is getting a divorce (sad) but has really begun to connect on a much deeper level with the family.  HE visits quite a few times each week and I babysit a few times a week too.

I hope the lessened activity on this thread means you are all enjoying that spring has finally appeared and that you are all doing well.

lung and liver spots grew during initial treatment Chemotherapy 1/22/2012 AC Dx 11/21/2012, IDC, 1cm, Stage IIA, Grade 3, 2/15 nodes, ER+/PR-, HER2+ Surgery 12/11/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Targeted Therapy 3/18/2013 Herceptin (trastuzumab) Chemotherapy 3/18/2013 Taxol (paclitaxel) Dx 4/8/2013, IDC, Left, 1cm, Stage IIIB, Grade 3, 2/17 nodes, ER+/PR+, HER2+, Chemotherapy 4/15/2013 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 7/8/2013 Breast, Lymph nodes Dx 7/11/2013, IDC, Stage IV, mets, ER+/PR-, HER2+ Hormonal Therapy 7/30/2013 Femara (letrozole)
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May 4, 2014 06:42AM Adnerb wrote:

Carolsue, thank you for sharing that heartwarming photo!  Are you going to get a scan to see if your mets have indeed been smashed to smithereens?

Chanah:  Nice to hear that you have been busy with happy things.  Even your son's divorce, though very sad, has good s/e's.  He gets to visit you more often because he needs you.  I like that feeling.

Hugs to everyone.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 4, 2014 08:21AM susaninsf wrote:

Adnerb, I actually haven't had any chemo yet.  They are hoping I will respond to the Tamoxifen/Zoladex combo and wanted to do brain and eye radiation right away.  I will get scans a month after my radiation and they will see how I've been responding.  

Carolsue, Cute picture!  I should be bald as a bowling ball in about a week too.  Honestly, I think you look beautiful!  I'm not afraid of baldness. Kind of looking forward to not having to wash and dry my hair every day.  Feeling pretty good today as I get a break in radiation over the weekend.  Went to yoga class today and my balance was still very good.  I felt strong too.  Trying to keep up my strength through this radiation ordeal.

Carolben, Have you tried Ritalin for the concentration problem?  I saw the "Symptom Management" doctor last week and he was plying all sorts of drugs.  Ritalin for my fuzzy head/inability to focus and some kind of morphine drops for my cough.  Haven't taken either yet as I take so many drugs already!

Mets to brain, lung, liver, eye, femur bone. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Reconstruction (Right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy; Mastectomy (Right) Dx 3/29/2014, DCIS, Left, 4cm, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External Local Metastases 4/28/2014 Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External Local Metastases 1/8/2015 Radiation therapy: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External Local Metastases 11/27/2017 Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External Local Metastases 10/23/2019 Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Other Chemotherapy 11/2/2021 Other Targeted Therapy 1/6/2022 Targeted Therapy 6/24/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
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May 4, 2014 05:35PM carolsue63 wrote:

Chana's -- congratulations on all the happy occasions you have coming up! And even though your son is going through tough times, it's nice to hear that he's relying on family for support.

Brenda -- I think my next scan will be early July. Hoping it will show as much improvement as the one in April, if not more.

Susan -- I'm glad to hear you're feeling strong. Sounds like yoga helps.

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/17/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/19/2010 Herceptin (trastuzumab) Chemotherapy 3/19/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/20/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/15/2014 Herceptin (trastuzumab) Targeted Therapy 1/15/2014 Perjeta (pertuzumab) Chemotherapy 1/15/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)

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