May 14, 2014 09:39AM Adnerb wrote:
tryntostaycalm, thanks for sharing your sister's poem. You could add melody and make it into a song.
Hope you can get into that trial. I'm rooting for you.
Posted on: Jan 6, 2012 09:53AM - edited Oct 12, 2013 07:32AM by bhd1
Posted on: Jan 6, 2012 09:53AM - edited Oct 12, 2013 07:32AM by bhd1
bhd1 wrote:
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all
barb
May 14, 2014 09:39AM Adnerb wrote:
tryntostaycalm, thanks for sharing your sister's poem. You could add melody and make it into a song.
Hope you can get into that trial. I'm rooting for you.
May 14, 2014 04:29PM tryn2staycalm wrote:
I was touched by it. Hope others are too. And ty for rooting for me!
May 14, 2014 06:42PM carpe_diem wrote:
Tryn,
I think this drug is Pfizer's Palbociclib, a CDK 4/6 inhibitor. If you put "Palbociclib" in the search field you'll find a lot of discussion and background info on it.
May 14, 2014 06:48PM tryn2staycalm wrote:
Thanks carpe .. will try that!
May 16, 2014 03:26AM Carolben wrote:
beautiful poem, tryn2staycalm, thank you for sharing it with us. Am also hoping you get into the 66% and that it will really kick some cancer butt!
Brenda, we also couldn't get enough tissue from my lung biopsy to see if it was 3neg too. My surgeon was querying the whole thing just now, and suggested maybe this is a second primary - lung cancer. So I spoke to my onc, who said my surgeon had called him about it. He says the shape of the cells are very similar to the bc cells and everything points towards bc mets and not a 2nd primary. But it would be nice to know if the mets are also 3neg. What is a liquid biopsy?
Had developed a femoral hernia that had to be repaired, so that was done one Wed, with a spinal block, no anaesthetic. Had to stay overnight but came home yesterday and slept like a log. So I've got an extra week break from chemo, while this heals, that's a bonus. It's a lot less sore today, but boy was it painful for that first day! Anyway, it's not cancer so not a big deal and I'm going to try and listen to instructions for a change and rest up, no yoga or driving for 10 days - 2 weeks. Ho hum
May 16, 2014 06:22AM - edited May 16, 2014 06:24AM by tryn2staycalm
Carolben Glad you liked the poem. I hope it inspires more of us to keep positive and fight hard. We will do whatever we must to try to make it to one of those 5 year clubs :). Love hearing those stories. And thanks for your well wishes for me making it in the 66% on the drug trials.
Sorry you going thru so much now and surgery too! Hope your resting well and wish you a fast recovery!
Also Carpe I found that thread for the drug trials and thanks so much!
May 16, 2014 03:07PM Adnerb wrote:
Carolben, here's a blurb about LiquidBiopsy. Out of Pocket is $2500, but I was told that if my doctor requests it before the 1st of June I will not be charged (even if my insurance denies it):
"LiquidBiopsy detects and enumerates nucleated cytokeratin positive and CD45 negative cells (target CTC cells) by immunomagnetic separation and immunofluorescence. The test provides efficient and reliable CTC recovery from patient samples with a 3-day turn around.
By using LiquidBiopsy testing alongside the standard of care for cancer patients, oncologists are provided timely, valuable insight into cancer progression and response to treatment*. For pharmaceutical researchers, CTC testing can provide valuable efficacy information during early stage clinical trials."
I know we should be thankful that our lung mets are too tiny to biopsy, but it really disturbs me that I don't have more information about it!
Hugs,
Brenda
May 20, 2014 08:52PM chanah wrote:
Hi all - My daughter's graduation weekend last week and wedding weekend were both fabulous. Except for some pain standing so long for the service and pictures, I felt pretty darn well thoughout the weekends. I am blessed with a third amazing son-in-law!
I put off my lung CT scan until after the wedding, so I went today. I should hear tomorrow...
May 21, 2014 09:13AM Adnerb wrote:
Keeping my fingers crossed for a really good scan!
Love,
Brenda
May 21, 2014 01:46PM tryn2staycalm wrote:
Yes good luck chanah!
Had my eye exam today and happy to report everything is looking fine. I am also a insulin dependant diabetic so I can go in anytime and have my exam covered. Wanted to rule out any mets there also as my MO suggested.