Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jan 6, 2012 10:53AM - edited Oct 12, 2013 09:32AM by bhd1

Posted on: Jan 6, 2012 10:53AM - edited Oct 12, 2013 09:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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May 21, 2014 03:55PM Adnerb wrote:

tryn, good to hear no mets in the eyes!  Diabetes must complicate things.  Sorry you have that on top of everything else.

Hugs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 22, 2014 08:24AM tryn2staycalm wrote:

Thanks Adnerb -- I have had it for a long time (diabetes) and the hardest thing about it .. no not the daily injections.. but the fact that no matter how much you don't feel like eating (loss of appetite now) I have to eat (get my protein) or I will go into a sugar low and that is more dangerous than a high.  Other than that I have adjusted to life with diabetes.

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/12/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
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May 22, 2014 02:47PM carolsue63 wrote:

Hi everybody! 

Chanah -- congratulations on your daughter's graduation and marriage. What an exciting time for you! 

I'm about 3 weeks out from my last chemo (yahoo!), and aside from 2 fingernails that look like they're about to fall off, I'm feeling pretty good. :-)  I felt good enough to attend my son's spring band concert last week, and I'm so glad I did! The band teacher gave out awards that night instead of at the school's end of year award ceremony, and my son got the Director's Award!! I was totally blown away and got all teary. Didn't even know they gave awards in band, so having him come away with the highest award was a HUGE surprise! And he followed that up with making A/B Honor Roll. 

I had my follow up appointment at the MO this morning, and all my labs looked good. She suggested keeping my two nails trimmed as short as possible. One of them is like oozing underneath the nail bed a little (so gross), so she said to soak it in a half and half water/peroxide mixture. Hope I can keep them from falling off. That would just suck. I also talked to her about how uncomfortable it is to breathe. It doesn't exactly hurt, it's just...uncomfortable. How else do you describe that? She said my lungs did sound a little "tight" when she listened to my breathing, so she suggested I go back to using my inhaler to open things up a bit. (My regular doctor prescribed an inhaler for me last fall when the original diagnosis was just bronchitis.) And you know what? It actually seems to help. Keeping my fingers crossed that as I continue to feel better and start getting a little more activity in my day, maybe some of this is just because I've gotten so deconditioned and my breathing and SOB will improve over time. I can hope anyway.

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/16/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/18/2010 Herceptin (trastuzumab) Chemotherapy 3/18/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/19/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/14/2014 Herceptin (trastuzumab) Targeted Therapy 1/14/2014 Perjeta (pertuzumab) Chemotherapy 1/14/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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May 22, 2014 06:34PM susaninsf wrote:

CarolSue,

That's wonderful about your son's band performance and award!  Your son looks like such an angel.  Just beaming to be dancing with his Mom.  My son had a high school concert for his Jazz Ensemble on Tuesday and I was also so happy to be there.  He now faces final exams and is going through a very rough patch emotionally so we are very worried.  Being 16 is already so tough without your Mom being sick.  My daughter is back from college so that is really nice.

Sorry to hear about your nails.  Hopefully the peroxide mixture will work.  

Glad to hear that the inhaler helps.  I have been coughing a bit more lately and I think it's because the radiation fatigue has kept me from my usual exercise.  When I exercise rigorously I can just feel my lungs opening up.  I also hear exercise is great for lowering inflammation in general.  I hope you will be able to increase your activity level too.  I try to schedule walks with friends so that I can be sure to get out and have some quality time with people I care about.

I was hoping to stay off of steroids but today my RO said that I should start them since my vision has been getting worse.  I only have one more day of treatment left out 20!  Hopefully, I won't be on the steroids long.  She prescribed 3mgs a day but I only took 1 this morning.  ;-)

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Reconstruction (Right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy; Mastectomy (Right) Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External Local Metastases 4/28/2014 Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External Local Metastases 1/8/2015 Radiation therapy: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External Local Metastases 11/27/2017 Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External Local Metastases 10/23/2019 Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Other Chemotherapy 11/2/2021 Other Targeted Therapy 1/6/2022
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May 22, 2014 10:00PM Adnerb wrote:

Carolsue and Susan, 

You both mentioned that your last chemo day is coming up.  I am happy for both of you because you clearly see an end to your present treatment regimen.  I am curious.  What are your treatment plans after chemo?  Are you both getting scanned to see if everything is clear, then go from there?  Are you both going to take anti-hormonals?  Good luck to both of you!

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 23, 2014 03:42PM carolsue63 wrote:

Hi Brenda -- my last chemo was 3 weeks ago today!  Still waiting to feel better. The side effects are gone, but I'm still so darn tired and out of breath all the time. My labs yesterday showed my RBC's were a little low. Could that be part of it? I'm so hoping to feel better than this some time soon. As far as long term plans go, I start my maintenance treatments a week from Monday (June 2nd). I'll be getting Herceptin and Perjeta every 3 weeks, assuming my insurance is going to cover the Perjeta. And I think she's going to put me on Arimidex, too, but I'm not sure when that will start. My next scan will be in July I think.

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/16/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/18/2010 Herceptin (trastuzumab) Chemotherapy 3/18/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/19/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/14/2014 Herceptin (trastuzumab) Targeted Therapy 1/14/2014 Perjeta (pertuzumab) Chemotherapy 1/14/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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May 23, 2014 06:37PM Adnerb wrote:

Carolsue, 

Are you discontinuing chemo because your bc has been stabilized or because of side effects?  I hope it's because of the former, but you have not had your scan yet, so you have no way of knowing, unless you rely on tumor markers.  Sorry for all these questions.

Yes, some chemo drugs cause shortness of breath!  Isn't that something?  I am hoping and praying that your breathing gets better in time.

My oncologist put in a request for LiquidBiopsy.  He doesn't think my insurance will cover, but at least he does not see a reason why I should not get it.  I think of this as a little victory.

Hugs, everyone.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 23, 2014 08:58PM - edited May 23, 2014 08:59PM by tryn2staycalm


Brenda,

You are so supportive of everyone and I just wanted to say thank you.  And thank God for small victory's! 

Have my bone scan booked for next Wed. and see my MO June 5th.  Finally getting somewhere so I can start treatment. 

Cathy

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/12/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
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May 23, 2014 10:12PM carolsue63 wrote:

Brenda, I had a scan at the beginning of April (after tx #4), and it showed my lung infiltrates nearly completely resolved (upper area still a little hazy), right PE was completely gone, left PE reduced by half, bone spots were stable and didn't light up on PET. (Nothing was lighting up on PET.) The radiologist ended his report saying "dramatic improvement". So I guess my MO figured that since I responded so well to the first 4 treatments, the last 2 would knock out the rest of it. That and the only thing that got me through those last 2 treatments was knowing that they were my last 2 treatments. In other words, I would have been begging to stop if they hadn't stopped already. And even though the chemo part is over, I'll still be getting Herceptin and Perjeta, which I've heard has gotten very good results for a lot of people. I think my next scan is in July. Haven't scheduled it yet, but I think my insurance covers one every 3 months. Hoping my next scan shows as much improvement as the last. If not, I'm sure she's got something else up her sleeve.

Dx 10/20/1997, DCIS, Stage 0, 0/8 nodes Surgery 11/16/1997 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 1/13/2010, IDC, 3cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2+ Targeted Therapy 3/18/2010 Herceptin (trastuzumab) Chemotherapy 3/18/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 8/19/2010 Breast Dx 1/8/2014, Stage IV, ER+/PR+, HER2+ Targeted Therapy 1/14/2014 Herceptin (trastuzumab) Targeted Therapy 1/14/2014 Perjeta (pertuzumab) Chemotherapy 1/14/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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May 24, 2014 11:37AM tryn2staycalm wrote:


Congrats Carolsue!

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/12/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)

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