Join Us

We are 225,830 members in 83 forums discussing 164,225 topics.

Help with Abbreviations

Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jan 6, 2012 11:53AM - edited Oct 12, 2013 10:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Page 71 of 77 (2,306 results)

Posts 2101 - 2130 (2,306 total)

Log in to post a reply

Mar 9, 2021 07:53PM BevJen wrote:

BLMike,

My primary care doctor just prescribed another NSAid today for me for lower back pain -- one I had not heard of before -it's called Meloxicam. She said she preferred it -- I think because she said it lasts for 24 hours? Another one your wife might want to check out.

Good luck.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
Log in to post a reply

Mar 9, 2021 09:51PM BLMike wrote:

Thanks BevJen. Haha! Actually, I received a PM from someone here also suggesting Meloxicam. I discussed that with my wife yesterday but unfortunately, she had a negative reaction to that when it was previously prescribed by an orthopedic.

A member to gather information for my wife Dx 2009, DCIS, Stage 0, ER+/PR+, HER2- Dx 2016, IDC, Stage IA, 0/5 nodes, ER+/PR+, HER2- Dx 4/20/2019, IDC, Stage IV, metastasized to lungs, ER+/PR+, HER2- Dx 10/2020, IDC, Stage IV, metastasized to liver, ER+/PR+, HER2- Dx 7/2021, Stage IV, metastasized to brain Targeted Therapy Piqray (alpelisib) Hormonal Therapy Faslodex (fulvestrant) Surgery Lumpectomy; Lymph node removal: Underarm/Axillary Radiation Therapy Breast Hormonal Therapy Femara (letrozole) Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Lynparza Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Mar 11, 2021 12:00PM MissMonty wrote:

Hi BLMike,

Sorry to hear your wife is having so much pain. I had a very similar experience and my MO did order a scan, and one small met was found on my coracoid process which was causing significant pain. Around the same time I did have some progression in my lungs, so I changed treatments all together, which resolved the bone met, however prior to changing treatments, I met with my radiation oncologist and we were considering radiating the met for pain management. If you are able to get imaging approved, that might be a good idea. It could potentially open up some other treatment options.

Hope this helps

Hormonal Therapy 6/13/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/16/2017, IDC, Left, 4cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR-, HER2- Chemotherapy 8/27/2017 Xeloda (capecitabine) Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
Log in to post a reply

Mar 11, 2021 12:23PM BLMike wrote:

MissMonty -- Thanks. That does help. Polly is scheduled for a scan for a clinical trial she's associated with. It's not clear if she's going to be up for that, but she is experiencing a little less pain today. Your post may help nudge her to power through the scan tomorrow (if she can). Thanks again.

A member to gather information for my wife Dx 2009, DCIS, Stage 0, ER+/PR+, HER2- Dx 2016, IDC, Stage IA, 0/5 nodes, ER+/PR+, HER2- Dx 4/20/2019, IDC, Stage IV, metastasized to lungs, ER+/PR+, HER2- Dx 10/2020, IDC, Stage IV, metastasized to liver, ER+/PR+, HER2- Dx 7/2021, Stage IV, metastasized to brain Targeted Therapy Piqray (alpelisib) Hormonal Therapy Faslodex (fulvestrant) Surgery Lumpectomy; Lymph node removal: Underarm/Axillary Radiation Therapy Breast Hormonal Therapy Femara (letrozole) Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Lynparza Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Mar 11, 2021 02:43PM GR4C1E wrote:

Imagine - I have lung mets in my right lung. I also had a pleural effusion on the right lung. I would describe my pain as if I had wrenched my shoulder/neck area by jerking/lifting something heavy off the floor without bending my knees. It felt like muscle strain but, of course, I did nothing to injure my shoulder and kept assuming I must have slept on it funny. I was achy and uncomfortable 24/7 with occasional shooting pain across the top of my shoulder, but only my right shoulder. I thought the pain was coming from a pinched nerve in my neck, but then I started Abraxane and the pleural effusion resolved itself and went away and the shoulder pain went away with it.

BLMike - I'm with Polly - no opioids, please. I do have the option to use cannabis in my area and I have my prescription card. I haven't had to use it yet, but I'm definitely exploring alternatives. I also have an acupuncturist that is nearby and I'm definitely keeping that in my wheelhouse as well.

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/24/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/22/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/15/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/6/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
Log in to post a reply

Apr 2, 2021 03:29PM pabbie wrote:

Hi, I just had a pet and ct scan which showed a bc recurrence in my right chest wall., my mastectomy side., and a 13 mm lung nodule suspicious for mets. This is my third bc recurrence., first dx'd in 2008.

What is/was your treatment plan for lung mets?

Thank you.

p.s. I couldn't figure out how to start my new question under the topic, mets to lung. Take care to all.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 2, 2021 03:37PM BLMike wrote:

pabbie -- Sorry you are going through this. My wife was diagnosed with Mets to the lungs in April 2019. She started with Ibrance, transitioned to Piqray, and then to Xeloda. She's currently on a Clinical Trial for Lynparza for MBC. I know MBC is very scary but as a number of threads note, life doesn't have to end just because you have MBC. Fortunately, there are a variety of treatment options with more becoming available all the time. Hang in there! Best of luck on your MBC journey.

A member to gather information for my wife Dx 2009, DCIS, Stage 0, ER+/PR+, HER2- Dx 2016, IDC, Stage IA, 0/5 nodes, ER+/PR+, HER2- Dx 4/20/2019, IDC, Stage IV, metastasized to lungs, ER+/PR+, HER2- Dx 10/2020, IDC, Stage IV, metastasized to liver, ER+/PR+, HER2- Dx 7/2021, Stage IV, metastasized to brain Targeted Therapy Piqray (alpelisib) Hormonal Therapy Faslodex (fulvestrant) Surgery Lumpectomy; Lymph node removal: Underarm/Axillary Radiation Therapy Breast Hormonal Therapy Femara (letrozole) Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Lynparza Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
Log in to post a reply

Apr 2, 2021 07:15PM moth wrote:

pabbie, I'm sorry to hear your news.

This is probably the best place to ask your question. We have threads for all the main mets locations and it's a way to stay caught up on people's treatments and options.

for me we have used a combination of systemic therapy (chemo & immunotherapy) & radiation treatment (traditional rads, not SBRT) to the met. If you can get a biopsy I agree with AlabamaDee that it would be a good idea to identify whether it is a met at all (people can have benign lung nodules) and whether your tumor markers have remained the same, as well as doing next generation sequencing/genomic testing for any targetable mutations.

What is your team suggesting as next steps for you?

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Apr 2, 2021 08:28PM - edited Apr 3, 2021 06:47AM by pabbie

Thank you everyone. I am meeting with my oncology surgeon on Monday to discuss my treatment. I'm trying to gather some information beforehand.

Take care to all.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 3, 2021 06:43AM pabbie wrote:

Thank you. Take care to you and your wife.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 3, 2021 06:56AM pabbie wrote:

What is SBRT. I couldn't tolerate the side effects of the AI's., but completed 5 years of tamoxifen in 2008.

My surgical oncologist put in a request for a biopsy of the met. What is an NGS test like foundation1 or TEMPUS.

Thank you.


March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 3, 2021 07:00AM pabbie wrote:

I am meeting with my surgical oncologist on Monday to fully explain my scan results. She wants to physically feel my lump in my right chest wall on my mastectomy scar to see if she can remove it.

She will refer me to an oncologist too. My oncologist retired.

I appreciate your post. Take care.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 5, 2021 12:54PM - edited Apr 5, 2021 12:56PM by DivineMrsM

I hope you ladies don't mind my asking your opinion on the CT scan results I had last Wednesday. I have not heard yet from my oncologist and I have a call in to her (miffed about that but that's another story) but my results showed up on MyChart. Up to this point, I've dealt with bone mets and am currently on Xeloda, have been taking it for a year. The bone scan came back as pretty much no changes from last time. Here is the findings on lungs:

Lungs and pleura: There are several scattered bilateral pulmonary nodules of varying sizes with interval increased size some of the pulmonary nodules when compared to the prior CT scan. The representative examples include: A right lower lobe nodule measuring up to 5 mm (image 204, series3), versus 3 mm previously, more lateral right lower lobe nodule measuring up to 4 mm (image 187, series 3), interval more conspicuous 2 adjacent left fissural nodule measuring 2 and 3 mm each (image 203, series 3), more conspicuous right lower lobe nodule (image 228, series 3) and left lower lobe nodule measuring up to 4 mm (image 250, series 3) versus 2 mm previously. Scattered ill-defined, mostly peripheral bilateral pulmonary opacities are seen, nonspecific and may be related to atelectatic changes. Additional background bibasilar atelectatic changes and/or scarring. No consolidation. No pneumothorax. No pleural effusion or thickening.

I have no idea what to think. I had Covid in January and am wondering if any of the above could be some kind of residual from that. But of course, I understand it may be progression. But I'd really appreciate any insight and where I might go from this point. I will let you know when I here form the onc and what she says. Thanks.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
Log in to post a reply

Apr 5, 2021 01:32PM Sadiesservant wrote:

Hi Divine, ask away. Unfortunately I can’t be much help as my lung mets have never presented as nodules (perhaps mention of one possible nodule). Mine was malignant pleural effusion with thickening of the pleura. Hopefully others with nodules will chime in but I would certainly raise the issue of COVID, particularly given the impact it has on the pulmonary system. Perhaps your MO will choose to monitor this given that everything else is stable. That would be my preference if there is any uncertainty.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
Log in to post a reply

Apr 5, 2021 06:01PM Tina2 wrote:

Divine,

Nodule Nancy here! Your bout with Covid could have very well affected your lungs, causing temporary inflammation and scarring. That's what happened to me on Ibrance. Many dozens of new small nodules and opacities suddenly showed up on my scans last fall, so my oncologist referred me to a pneumonologist for a bronchoscopy. He looked at my scan and diagnosed medication-induced pneumonitis. I stopped taking Ibrance and my lungs began to heal, with the most recent scan showing most of the "new" problems resolved or diminished. The old nodules are still present, but either stable or slightly smaller.

So, take heart. I hope your doctor gets in touch with you pronto. And you may want to check in with a pulmonologist as well.

Best,

Tina

Stage I, mastectomy, 1985.Stage I, mastectomy, 1995. Stage IV, lung mets treated with Faslodex 2011-/2018. Treatment hiatus 9/2018-3/2020. Ibrance and Faslodex 3/2020. Faslodex only 11/20. Dx Stage IV, mets, ER+/PR+
Log in to post a reply

Apr 5, 2021 06:05PM moth wrote:

Tina2, how long did it take for your pneumonitis to resolve?

I have radiation pneumonitis following rads to a lung met in Dec. I did a course of oral steroids starting Feb 24 + rapid taper. but my symptoms (shortness of breath) have crept back. I think I might need another course of steroids :(

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Apr 5, 2021 07:01PM Tina2 wrote:

Moth,

My lung scan report in the fall (October) was frightening, and the only thing that got the attention of my oncologist after I had complained over months of feeling awful, with fatigue, shortness of breath and loss of appetite. After the pneumonitis diagnosis, I stopped the Ibrance, felt better over time, and was scanned last month. The report showed a real improvement.

So, approximately six months from "yikes" to "whew."

Tina

Stage I, mastectomy, 1985.Stage I, mastectomy, 1995. Stage IV, lung mets treated with Faslodex 2011-/2018. Treatment hiatus 9/2018-3/2020. Ibrance and Faslodex 3/2020. Faslodex only 11/20. Dx Stage IV, mets, ER+/PR+
Log in to post a reply

Apr 5, 2021 08:58PM KarPC wrote:

Divine, It likely could be from Covid. My lungs are a mess from having Covid near the end of December. I have a few cancerous lung nodules that have remained stable. My post covid scan showed new nodules all over my lungs. I had 2 departments of radiologists look at it (my normal cancer team and my trial team) and they said everything new was from covid. I saw the scans. It looked like a grey cloud had filled up my lungs. It's very discouraging because it's going to be difficult to tell what is cancer and what is from covid. I am sorry you are also going thru this. I would have your Onc show you the scans so you can see the comparison. You may also want a second radiologist to look at your scans if Covid lungs are not brought up. ~Kar

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/9/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/1/2018 External: Liver Targeted Therapy 2/15/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/18/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)
Log in to post a reply

Apr 5, 2021 10:27PM moth wrote:

Thank you Tina. Glad you're feeling better now!

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Apr 6, 2021 08:07AM pabbie wrote:

Update from Pabbie.,

Onc will be able to remove my recurrence on my right breast mastectomy scar., it's not attached to the chest wall. But I have to meet with a plastic surgeon before surgery just in case my surgeon can't find enough skin to sew me up. The plastic surgeon will supply some skin from my side close to my back.

Not sure we can biopsy the lung met., it's not in an easy spot plus she considers it small. I'm also meeting with a medical oncologist to discuss chemo. That's all for now. One day at a time. Take care to all.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 6, 2021 08:28AM DivineMrsM wrote:

I’m so grateful for all of your input.

My onc called and said the findings on this scan aren’t significant enough to make any changes in my current treatment. She does not think there is a need for a biopsy, and only would do that had there had been a significant jump in nodule size, say from 3 mm to 10 mm. I raised the issue of my having Covid in January and would that be affecting the scans, and she said I made a good point, that it’s a possibility. She said we will monitor all of this. I do trust her knowledge base.

The cancer center moved into its new, state of the art wing of the hospital last year and the sad part is it’s become much less personable. Before that, I had a direct phone number to my onc’s nurse who returned every call on the same day. Now, my call goes to a nurse who isn’t even at the hospital! She puts my message through to MyChart and I wait for a call. It’s always a different nurse when I call, and they do not know my name or face. I always worry about being forgotten about.

Also, I don’t think I’m talking specifically to oncology nurses. The one yesterday was putting fear into me by alluding to bad results on my scan reports which she could see but I hadn’t accessed yet and telling me she’d mark my call a high priority and to call back in a few hours if I hadn’t heard from the doctor. My onc and her nurse are never, ever alarming.

My onc (and her nurse) will both retire this year, they’re only working 3 days a week. I only have one more visit with her. They’ve been my medical team for 10 years.

found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
Log in to post a reply

Apr 6, 2021 11:15AM Sunshine99 wrote:

Divine, I'm sorry you're dealing with hospital stuff like that. I can message my MO via my patient portal, and I usually hear back from her nurse the same day. My MO from 12 years ago retired, and I have a new MO. I like her and she's young, so hopefully she won't be retiring any time soon. We need that personal touch, right?

Cancer has progressed to my bones. I pray that it never enters my soul. my-sunny-side-up.com Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
Log in to post a reply

Apr 6, 2021 12:33PM Sadiesservant wrote:

Divine, I'm sorry as well that you are dealing with issues accessing your medical team and even more sorry you are losing your MO. I live in fear of losing mine. He's technically been treating me since 2001 as he was my MO when I was initially diagnosed as stage IIa. We have a good rapport and understand each other so the though of breaking in another MO... eek! I am also fortunate that he provided me with his email address after I was diagnosed with MBC. I try very hard not to abuse the privilege but am so appreciative that I have a direct line to him if I have any questions/concerns. He's very responsive, typically replying within minutes if things aren't too crazy for him. Very lucky...

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
Log in to post a reply

Apr 7, 2021 12:35AM SusaninSF wrote:

During a liver biopsy, the Interventional Radiologist noticed that I had a large pleural effusion, 2 liters in my right lung! I had been complaining about extreme shortness of breath and severe pain in my shoulder/neck on my right side for weeks. I was sent to a Respiratory Screening Clinic just a few days earlier and after a bunch of swab tests and an x-ray, was told there was nothing wrong. The IR tried to remove the liquid but about halfway through, he had to stop because the pain in my shoulder was too severe when I coughed. He was able to remove 850 ccs. A week later, went to my Interventional Pulmonologist who removed another 800 ccs before, again, the pain was too great in my shoulder when I coughed. The removal process causes coughing. He suggested I get a Pleurx so I could drain the fluid every day myself.

Has anyone else gotten a Pleurx? If so, what was your experience? I dread not being able to swim for 3-4 months and wonder if I will be able to do yoga with it. At the same time, I can't keep going through the roller coaster of having fluid build-up and getting Thoracenteses. Prior to this episode, I had one Thoracentesis a year ago when he removed 500 ccs. Not so bad but I wonder if the build-up will increase more rapidly going forward.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

Apr 7, 2021 11:01AM SusaninSF wrote:

Thanks Dee! The positive experiences of your sister and uncle really help lower my stress over this procedure.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

Apr 7, 2021 11:02AM DivineMrsM wrote:

I went back several pages on this thread to read up on what others have experienced with lung mets. One thing I came across was the mentor video. SusaninSF, was that you?I well remember Ann Sieberman from this forum back when I joined. She went by ‘ButDoctorIHatePink!’ She’s done remarkably well. I don’t have any information on the Pleurx; I hope you are able to learn enough about it to make the decisiOn whether or not to get it.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
Log in to post a reply

Apr 7, 2021 11:52AM SusaninSF wrote:

MrsM,

Yes! That's me with Ann. I haven't kept in touch with her recently. Glad she is still doing well. When we met, she said she was having a hard time but she seemed so strong and capable. She drove 1.5 hours each way for our shoot and the shoot took all day. She's very kind and humble.

Looks like you have also done well for a long time.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

Apr 7, 2021 01:42PM Sadiesservant wrote:

Hi Susan,

I was diagnosed with MBC as a result of a large pleural effusion. At one point they drained over 3 litres off of my right lung. I could barely walk 100 yards without gasping for breath at that point. They initially drained about a litre off of my lung when they did the biopsy which confirmed breast cancer but the fluid just came charging back. They drained another 1.5 litres a couple of weeks later but, as you have indicated, it's super painful and causes extreme coughing when they take too much.

At that point I had a PleurX catheter inserted and it was a godsend. It was a relatively simple procedure but I did stay in over night, partly to drain as much as possible. I didn't drain myself, I had homecare come twice a week, each time they would take about a 800-950 litres of fluid. We hoped that it would dry up sooner than it did but I think part of the problem was that once they got to the point that the fluid was almost gone, I would get a shooting pain in my lung and start to cough. That irritated the lining enough that I think it caused more fluid to be produced (my body produces lots of fluid - same thing after my lumpectomy/nodal dissection). The irritation didn't last long though... generally the day they drained and then it would be fine. I couldn't swim and had to cover up the insertion site of the catheter when I had a shower but otherwise lived a completely normal and active life. I have a dog so do lots of walking and I worked full time.

After about five months the fluid suddenly stopped. I had the catheter removed at that point and, with the exception of a few small pockets of loculated fluid, have never had a repeat. Wishing you much success. It's terrible dealing with the SOB.

Pat

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
Log in to post a reply

Apr 8, 2021 02:47PM KarPC wrote:

Hi Susan, I am not familiar with your experience. I hope you can continue to swim and practice yoga. I get very grumpy when I have to take time off from exercise, so I understand your frustration. ~Kar

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/9/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/1/2018 External: Liver Targeted Therapy 2/15/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/18/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)
Log in to post a reply

Apr 8, 2021 05:19PM Hollyli1202 wrote:

Pat - Thank you for your comments on the pleurx drain. I have one scheduled to go in next Friday. I have had 5 thoracentesises done in the past four weeks. Drain 1: 1.1L. Drain 2: 1.35L. Drain 3: 1L. Drain 4: 1.25L. Drain 5: 1.7L. I have pleural thickening and also nodules in the pleural lining. I am currently on carboplatin/gemcitabine/keytruda for the my quick moving MBC. Prior to that, I was on Lynparza for 20 months. I have one more thoracentesis scheduled tomorrow - as I seem to always go to the ER on the weekends because the fluid build up is so quick - or they just don't drain enough. Ugh. I hate this.

Susan - I hope you get some relief in what ever direction.

Page 71 of 77 (2,306 results)