Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jan 6, 2012 10:53AM - edited Oct 12, 2013 09:32AM by bhd1

Posted on: Jan 6, 2012 10:53AM - edited Oct 12, 2013 09:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Page 72 of 237 (2,361 results)

Log in to post a reply

May 27, 2014 10:54PM Adnerb wrote:

I was on the fence about retiring from teaching, but the stage 4 diagnosis convinced me that I should do it this year.  I will miss all those little five year olds.  I like 2 year olds as well.  They are contrary (no! no! no!) and they are  more stable and sturdy than 1 year olds, but they still toddle.

Hugs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
Log in to post a reply

May 27, 2014 11:13PM GatorGal wrote:

Brenda, I retired from teaching three years after my stage IV diagnosis.  Was missing too much time due to chemo and was just so tired all the time.  Retired on disability and have never looked back.  I can now focus on doing fun things when I have energy and resting when I am tired.  It has really helped my quality of life.  It's also good to be able to plan trips around my chemo treatments!

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 4/10/2011 Taxotere (docetaxel) Chemotherapy 8/13/2011 Gemzar (gemcitabine) Chemotherapy 6/12/2012 Doxil (doxorubicin) Chemotherapy 12/11/2012 Taxol (paclitaxel) Chemotherapy 9/10/2013 CMF Chemotherapy 4/15/2014 Carboplatin (Paraplatin) Chemotherapy 12/16/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 9/8/2015 Navelbine (vinorelbine) Chemotherapy 12/22/2015 Halaven (eribulin) Chemotherapy 4/12/2016 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/14/2016 Ixempra (ixabepilone) Hormonal Therapy 7/26/2016 Arimidex (anastrozole)
Log in to post a reply

May 28, 2014 10:12PM naturelover wrote:

Glenna: My twins are 4 years old; they take turns letting Gramma run after them. I think they realize that I can't run in two different directions (LOL). They are a major reason that I still have the fortitude to keep moving forward--one step at a time!!! They are spending tonight with us (and their Mother)! My mother is 89 and I am 66. I don't have the energy to keep up with them but my mother is determined that we can take care of them and somehow we do it! I hope you have a ball with your grandbaby! They help us in our fight; they make us smile, laugh and cry all at the same time!

Brenda, thanks so much for thinking of me while I had no time to write for several days! My grandbabies had a terrible virus and we suspect that they got it at a fast-food play land-- no proof, of course, but it seems as though that's the culprit! The last two times they've had to go to the doctor and miss about 4 days of school. They won't be going again. Has anyone else ever had this happen?

I'm so glad that we are all able to enjoy our children and grandchildren (for those of us who are old enough). The special events in our children's lives are what make our days happy even when we are sick or tired from our meds, etc. I love hearing all about them too!

Judy

Dx 7/28/2005, IBC, Stage IV, mets, ER+/PR-, HER2-
Log in to post a reply

May 29, 2014 11:32AM Carolben wrote:

Glenna, welcome back,so so happy to hear you are stable - go dance with that stable boy!!  Such a beautiful pic of your daughter's wedding - how great that you were there and able to enjoy it!

All this talk about grandkids - I'm not sure when my son will get round to finding a good woman, I know he wants to have kids.  So I've adopted my sister's grandkids as my surrogates, and I do love spending time with them.  The eldest is Emma at 7, - when I said her grandad can fix anything, she said to me, 'can he even fix you?'  They are so precious, but live about 1000 km away, so I usually only get there a couple of times a year.  My closest friend has 2 grandkids here, 5 and 3, and we took them to the next town to us today, when I went to see my surgeon.  We had time to kill so we stopped at a park where they had just cut the grass and we ended up throwing the clippings at each other - they are good medicine, as you say.  Also good exercise!

CarolSue, such great news from your scan too!  I hope the Herceptin & Perjeta will continue the good work, and not be too hard on your system.  Well done for getting the chemo done.  I seem to live from scan to scan - also have them every 3 months.  Next one coming up at the end of next month.  I guess if we get scanxiety, I also get very scanxious lol!  I get the report e-mailed to me and opening that mail is so scary, I always find I've held my breath.  I've been stable now since November - please God may it continue for a long while.  I really hope your next scan will be more good news!

How are you doing, SusaninSF?  I remember how tired I was from radiation - hope that will improve for you.  I also hope that the rads did a lot of damage to those brain mets, when will you know?  I get a very tight chest and/or a feeling of something heavy on my chest.  It seems to happen more often during chemo (am on Xeloda), but you are so right about using your lungs with exercise - I do yoga and walk, that's my exercise - some days just sweeping the floor is exercise enough!!  Agree with you too about the walks with friends, and we're on the sea, so beach walks, even in winter, are always good.  And my lungs feel better for the exercise, gentle as it is!  

Brenda, you're back on the Carbo/Gemzar combo aren't you?  How's it going?  Hope it's treating you well and will kick butt for those mets.  It is scary knowing there are 'numerous' nodules all over my lungs (like you) - and my onc reckons that if we didn't get rid of them with Xeloda in the first 4 - 6 cycles, they are probably there to stay, dammit.  Whatever, stable is good.

I feel so tired of cancer, I think of it at some stage every day, I'm tired of treatment, tired of having my life revolve around scans, doctors, chemo, side effects, blood tests; tired of side effects and tired of being tired!  I'd love to just be able to shut the door on all of this and just forget about it for a while.  My old life is gone, and I really am struggling to find my feet with this new life.  I think that maybe sometimes God does give us more than we can handle so that we have to learn to surrender and trust.

love, courage and grace. Mets to lungs Feb 2013, 8 Dec 2014 brain mets Dx 5/14/2012, DCIS, 2cm, Stage I, Grade 2, 0/1 nodes, ER-/PR-, HER2- Surgery 5/22/2012 Mastectomy: Left Chemotherapy 6/21/2012 AC Radiation Therapy 9/24/2012 Breast Dx 2/4/2013, Stage IV, mets Chemotherapy 2/14/2013 Taxol (paclitaxel) Chemotherapy 11/19/2013 Xeloda (capecitabine) Chemotherapy 7/17/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 12/14/2014 Brain Dx mets
Log in to post a reply

May 30, 2014 12:33AM Adnerb wrote:

Hi Carolben,

Yes, I'm back to my first line of treatment, Gemzar/Carboplatin.  I've only had 4 treatments (1 and 1/3 cycles) and my breathing is much better.  The gemzar is so annoying, though.  This time I have a rash on my chest, a disgustingly white tongue and fatigue.  These s/e's are being addressed with dosage change and an antibiotic for my mouth.

I am hoping and praying that the xeloda is working its magic on your lung mets.  What type of s/e's do you have?  Are you reporting everything to your doctor?  It's amazing how a dosage change can help!

Like you, I am tired of cancer.  I am not ready to surrender, though.  I will "rage, rage, against the dying of the light".

Love,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
Log in to post a reply

May 30, 2014 09:44AM TarheelMichelle wrote:

Carolben, I surely understand your struggle with this new life. I'm struggling too. My son is 15-going-on-16, and between the Tamox fatigue and the morphine for the pain, it's exhausting just to drive him to school and pick him up. (And I don't do it all the time, just every other week.) I miss cooking, gardening, doing something fun every night. I miss working, I miss remembering things. 😜  I am so grateful to be alive and I'm blessed beyond measure. But I feel happiest when I'm productive and I just don't have the energy to be productive. 

Ronda - Extensive mets to lungs & bones. My life is Stage IV precious. Celebrating 10 years with Stage IV 12/2021 Dx 2/14/2008, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/16/2008 Dx 12/19/2011, Stage IV, metastasized to bone/lungs, mets, ER+/PR+, HER2- Hormonal Therapy 1/31/2012 Aromasin (exemestane) Hormonal Therapy 12/18/2012 Faslodex (fulvestrant) Hormonal Therapy 7/16/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/23/2014 Reconstruction (left) Radiation Therapy 11/21/2014 External: Bone Targeted Therapy 11/16/2015 Afinitor (everolimus) Targeted Therapy 5/19/2016 Hormonal Therapy 5/31/2016 Femara (letrozole) Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

May 30, 2014 10:53PM Adnerb wrote:

Hi Ronda,

So sorry to hear about your pain.  I don't even know how you can drive while on morphine!  Pretty soon your son should be able to drive himself?  I don't remember what the right age is.

You have been on tamoxifen since 7/8/13.  Is it working at least?  What did your last scan say?

Gentle hugs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
Log in to post a reply

Jun 2, 2014 07:56AM GatorGal wrote:

resting today after a wild weekend with my three oldest grandchildren (9, and two 6 year olds).  Do 'to know whose idea it was (ha ha, mine) to get the cousins together for the weekend!  My Friday with the two year old was a piece of cake by comparison.  Luckily I had hubby to help over the weekend!  This chemo also leaves me feeling tired about day 3-5 and of course that was the weekend!  

Ronda, noticed you recently had reconstruction.  Is that why you are on morphine or is the pain from your cancer?

Carolben, my lung nodules seem to be here to stay as well but onc feels good as long as they stay in my lungs.  I've sure tried enough different treatments to get rid of them!  I think I was NED once but a long time ago!  I'm happy with stable for now!  Celebrating 6 years of stage IV living.

Brenda, when is your official retirement date?

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 4/10/2011 Taxotere (docetaxel) Chemotherapy 8/13/2011 Gemzar (gemcitabine) Chemotherapy 6/12/2012 Doxil (doxorubicin) Chemotherapy 12/11/2012 Taxol (paclitaxel) Chemotherapy 9/10/2013 CMF Chemotherapy 4/15/2014 Carboplatin (Paraplatin) Chemotherapy 12/16/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 9/8/2015 Navelbine (vinorelbine) Chemotherapy 12/22/2015 Halaven (eribulin) Chemotherapy 4/12/2016 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/14/2016 Ixempra (ixabepilone) Hormonal Therapy 7/26/2016 Arimidex (anastrozole)
Log in to post a reply

Jun 2, 2014 11:06AM tryn2staycalm wrote:


Glenna - whatever your doing keep it up!  I don't know how you did it (kids get together) after doing chemo.  When I did chemo I was in bed for day 2-6!  I know all chemo's are different and we all react differently too but wtg!

Cathy

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/12/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
Log in to post a reply

Jun 2, 2014 10:00PM Adnerb wrote:

Glenna, I haven't been at work since September, 2013 (short term disability).  My official retirement date is the end of the 13/14 school year, which is June 18, 2014!

My lowest energy days are also days 3 to 5!  Yesterday I was at Michaels.  I was in a long line holding 2 picture frames.  They were not even heavy, but they might as well be 20 pounds each!  The fatigue was that much.

So today was my appointment with the doctor.  I tried to get him to lower my gemzar dosage.  I also have a rash on my chest.  He said he will give me Procrit on Tuesday.

Hugs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)

Page 72 of 237 (2,361 results)

Scroll to top button