Join Us

We are 225,830 members in 83 forums discussing 164,225 topics.

Help with Abbreviations

Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jan 6, 2012 11:53AM - edited Oct 12, 2013 10:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
Log in to post a reply

Page 72 of 77 (2,306 results)

Posts 2131 - 2160 (2,306 total)

Log in to post a reply

Apr 8, 2021 06:31PM Sadiesservant wrote:

Holly. Sorry to hear that you are having so much trouble with the fluid. Those constant thoracentesis procedures can be draining - pun intended! It's really hard on your lung and they really aren't pleasant. I am sure the PleurX will be a huge benefit to you. Good luck!

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
Log in to post a reply

Apr 10, 2021 06:18PM phet7178 wrote:

Hi lung mets crew. I have mets to both lungs (one nodule on each) as well as in mediastinal nodes. I am on gem/carbo and my first set of scans, after 3 cycles, showed some shrinkage and some stability (the nodules shrank about 1/3 and the nodes are stable or a bit smaller). I'm triple negative so I had to go straight to chemo.

I've been mostly asymptomatic since diagnosis as Stage 4 in November. But I've become very conscious of my lungs, and especially any wheezing or breathlessness. In the last few weeks, I've noticed a slight wheeze when I wake in the morning and in the evening. Sometimes it's when I breath in, sometimes when I breath out, and only ever when I breath through my mouth. I feel a bit 'phlegmy' (ew) and it feels like noisy breathing coming from the top of my throat. If I drink some water or clear my throat it goes away.

Have others experienced this? I know a wheeze is common with lung mets but I'm not sure what it is meant to sound like - this is only audible to me, not the people around me. I mentioned it to my oncologist but she thinks it's the chemo (? does gem/carbo do this? I am very anaemic at the moment which makes me breathless when I walk up the stairs, but this noisy breathing happens more if I wake in the night etc).

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Dx 11/24/2020, IDC, Stage IV, metastasized to brain/lungs, Grade 3, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 1/18/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Log in to post a reply

Apr 10, 2021 07:12PM figtree wrote:

Phet, I occasionally have “wheezing”. Just like yours, it’s only audible to me. I don’t think it’s related to any of medications I took. I too am not sure where it’s coming from.

Tx history: letrozole+Ibrance 6/2019-11/2020; Xeloda 12/2020-3/2021; Afinitor+Aromasin 3/2021-6/2021; Fulvestrant+Verzenio 6/2021-currently Dx 4/2011, IDC, 3cm, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Dx 4/2019, IDC, Stage IV, metastasized to bone/lungs/other, ER+/PR+, HER2- Dx 9/2021, IDC, Stage IV, metastasized to bone/liver/lungs/other
Log in to post a reply

Apr 10, 2021 08:49PM - edited Apr 10, 2021 08:51PM by DivineMrsM

Hi there, phet. I've mostly dealt with bone mets but the CT scan I had at the end of March showed a small amount of activity in the lungs. In January, I'd had Covid, which included having a fever for 14 days and a severe cough the entire time. I feel mostly recovered from it, but still feel slightly out of breath after climbing stairs. And tho not often, once in awhile, I can hear a wheeze in my breath.

I asked my oncologist if having Covid could be responsible for some of the lung findings on the scan. She said it was possible but they just don't know enough about Covid to determine exactly if or what.

Just yesterday, after reading the scan results over yet again and trying to understand them, I decided to look up some articles and videos on improving lung capacity. Basically, simple breathing and deep breathing exercises that can be done a few time during the day. I'm a lazy, shallow breath breather as it is, and I think the exercises may help me become more aware of my breathing habits. There are quite a few articles and videos on the subject to choose from. I did some exercises already and want to continue to see if I notice any improvement in my daily life and on the next scans.

I'm no expert on the topic, but I thought I'd let you know my train of thought. Maybe you could look up and try some breathing exercises to see if they help.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
Log in to post a reply

Apr 11, 2021 10:50AM ilowen wrote:

Phet, I experienced wheezing similar to what you have described after about 3 months being on treatment. At my following appointment (the wheezing had stopped by this time), my doctor said my lungs sounded great and I no longer had any decreased breath sounds, which I had since diagnosis. I haven’t experienced the wheezing since.

Dx 10/20/2020, IDC, Left, 4cm, Stage IV, metastasized to bone/liver/lungs, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 11/19/2020 Femara (letrozole), Zoladex (goserelin) Targeted Therapy 11/19/2020 Kisqali Radiation Therapy 11/25/2020 External: Bone Targeted Therapy 12/15/2021 Piqray (alpelisib) Hormonal Therapy 12/15/2021 Faslodex (fulvestrant), Zoladex (goserelin)
Log in to post a reply

Apr 11, 2021 01:26PM Sadiesservant wrote:

Hi All, I also have intermittent wheezing that I assume is a function of the damage to my right lung from the pleural effusion. Like figtree, I don’t think anyone else can hear it.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
Log in to post a reply

Apr 12, 2021 12:50PM phet7178 wrote:

Thank you everyone :) It's such a stress isn't it, always noticing every little thing and wondering if it's the cancer. Ilowen's answer has reminded me that when I went into hospital triage with a temperature a week or so ago (I'm on gem/carbo chemo so have to be checked out for an infection) the registrar listened to my chest and said everything sounded great there. If I had mediastinal wheezing he should have picked it up with the stethoscope I hope? So perhaps it is just this long term effect of the chemo and being a bit 'flu-y'. I hope so. I'll also try the suggested breathing exercises! x

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Dx 11/24/2020, IDC, Stage IV, metastasized to brain/lungs, Grade 3, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 1/18/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Log in to post a reply

Apr 12, 2021 02:37PM annadou wrote:

Hi All

I too have that wheezing almost in the throat. It started after the broncoscopy and starting I branch. It happens when I’m lying down at night and very annoying!

A question - hope it’s not stupid!

I’m due to start the 4 th cycle of Ibrance/Faslodex and also due for the covid jab. im supposed to get scans soon so how can they evaluate the medistinal node activity and if the treatment is working if the covid jab can make your lymph glands swell?

Best to all

Ann

Anna Dx 3/13/2009, IDC, Left, <1cm, Stage IIB, Grade 2, 4/21 nodes, ER+/PR+, HER2- (SPOT) Dx 12/7/2020, IDC, Right, Stage IV, metastasized to other, ER+/PR+, HER2-
Log in to post a reply

Apr 12, 2021 04:36PM SusaninSF wrote:

Pat,

Thank you SO much for sharing your experiences with pleural effusion and pleurx. I will see the Interventional Pulmonologist on Thursday morning and we will see what is behind my SOB. I'm sure it's more fluid in my lung following my Thoracenteses on 2/24 and 3/13. If it is fluid, I can have a pleurx put in on the same day. Crossing my fingers that it's not due to growing lung tumors.

Holly,

Hoping for the best with your procedure on Friday.

I have wheezing sometimes with exertion. I often have a rattling in my throat/lungs. It feels like it's mucous at the back of my nose but doesn't go away if I breathe through my mouth.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

Apr 16, 2021 08:34AM pabbie wrote:

My lung biopsy results., I have lung cancer.

I'm being referred to a thoracic surgeon. I'll be having 2 surgeries., one to remove the lung cancer and one to remove the bc recurrence on my right breast mastectomy side.

My oncologist said the lung cancer was caught early.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 16, 2021 10:12AM - edited Apr 16, 2021 11:15AM by DivineMrsM

Pabbie, those are very sobering biopsy results and I'm sure something of a shock to you. It is a lot to take in. I'm sorry you're going through this. It sounds promising that the lung cancer was caught early. Sending you well wishes.



found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
Log in to post a reply

Apr 18, 2021 07:08AM pabbie wrote:

Thank you for your kind words. Take care of you too.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 18, 2021 07:10AM pabbie wrote:

Thank you Dee. Your sister's story is inspiring. I meet with my thoracic surgeon on Thursday.

Take care to you too.

March 2021 Recurrence May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Apr 18, 2021 11:07PM Bright55 wrote:

hi Pabbie

All the best with follow up treatments


Great to hear that the lung nodule was diagnosed correctly and treament to start asap

Bright in hope


Dx 2011, DCIS, Right, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 2016, Right, 2cm, Stage IV, metastasized to lungs, ER+/PR+, HER2- Hormonal Therapy 7/9/2016 Femara (letrozole) Targeted Therapy 11/2/2019 Afinitor (everolimus) Hormonal Therapy 10/8/2020 Faslodex (fulvestrant) Targeted Therapy 10/8/2020 Kisqali Hormonal Therapy Liquid tamoxifen (Soltamox) Surgery Mastectomy: Right Hormonal Therapy Aromasin (exemestane)
Log in to post a reply

Apr 19, 2021 03:16PM moth wrote:

Pabbie, best wishes with the treatment!

I had a phone consult with respirology last Friday afternoon due to ongoing intermittent shortness of breath/pneumonitis following rads for my lung met in Dec.

I'm supposed to have spirometry & lung function tests this week + a fresh chest xray and then they're to make suggestions this Friday. Not sure how it will work out as we've got 3rd wave of covid swamping hospitals so all respiratory specialists are kind of busy atm. We're holding my immunotherapy while we wait for respirology to decide what to do so I'm hoping I can these tests and a treatment plan from them soon.

I still don't even know if the rads worked on the lung met. Too messy for the radiologist to see last CT scan. I have this cxr coming up and then a CT with contrast on May 1 which hopefully will show us more. It will be very frustrating if the met is still there & all I got for my troubles was radiation damage to the lung ... :( really hoping that's not the case

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Apr 21, 2021 08:15PM KarPC wrote:

Moth, I hope you can get your tests and scans soon. Hoping the radiation did the job. I bet it did! I am looking into getting SBRT or something similar for my lung nodules, so I am extra interested in your experience.

Susan, how did your appointment go last Thursday?

I finally saw a lung specialist today, and he's ordering a few tests to see what's up with my stressed lungs from Covid-pneumonitis-cancer. I am improving since I stop everolimus. The lung issues we all are going through can be scary. ~Kar

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/9/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/1/2018 External: Liver Targeted Therapy 2/15/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/18/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)
Log in to post a reply

Apr 28, 2021 02:30PM rachel5738 wrote:

After being diagnosed with breast cancer in 2010, found out today that it has spread to my lungs. Ten years later. I’m still in that stage of confusion and doctors and more scans. Not what I at all expected. It was found first in a random scan done when I had to go to emergency for diverticulitis that randomly happened. Thank you to everyone for sharing your stories so I can learn this new reality.

April 2021; Stage 4, lung Mets; Wedge resection. One tumour idea tied as neuroendocrine. August 2020;Breast Cancer Stage II, Grade 1: Treatment Plan: FEC-T X6/Rads 25+5/Tamoxifen 5 years; Cervical Cancer Stage 1B, Treatment plan: Rad Hyst. Dx 7/5/2010, IDC, 1cm, Stage II, Grade 1, 1/7 nodes, ER+/PR+, HER2- Dx 4/28/2021, Right, Stage IV, metastasized to lungs
Log in to post a reply

Apr 28, 2021 02:50PM moth wrote:

Hi rachel5738, I'm sorry this is happening to you. It sucks a lot.

hang in there & let us know what your doctors are saying and what the scan results are.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Apr 28, 2021 07:08PM rachel5738 wrote:

Thank you so much for the support. It’s a bit of a fog today for sure. They are doing biopsy early next week to confirm but thank you for the tips to ask. I can’t express how appreciative I am.

April 2021; Stage 4, lung Mets; Wedge resection. One tumour idea tied as neuroendocrine. August 2020;Breast Cancer Stage II, Grade 1: Treatment Plan: FEC-T X6/Rads 25+5/Tamoxifen 5 years; Cervical Cancer Stage 1B, Treatment plan: Rad Hyst. Dx 7/5/2010, IDC, 1cm, Stage II, Grade 1, 1/7 nodes, ER+/PR+, HER2- Dx 4/28/2021, Right, Stage IV, metastasized to lungs
Log in to post a reply

May 1, 2021 07:16PM SusaninSF wrote:

Kar,

Thanks for checking up on me. Had another 800 mls of pleural fluid when I saw my Interventional Pulmonologist so he put in a Pleurx. My only other choice would be surgery and that may not work and is riskier.

The first few days it was very painful but gradually got better. I'm even able to continue with my yoga and dance. I was on a MWF drainage schedule but I spoke to a friend who did it every day and was dried up after two months. So I switched to everyday drainage. With help from my husband, the drainage has become pretty quick, about 15 minutes from start to finish. Always worried about the risk of infection since it's not like a port under your skin, the catheter goes straight into the pleural space in your lung. No swimming or bathing which would be a big drag since I have a trip to Hawaii in August. Crossing my fingers I will have it out before my trip.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

May 1, 2021 09:40PM SusaninSF wrote:

Thanks Dee! And congratulations to you that the ARV-471 is working for you!

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

May 2, 2021 08:35PM KarPC wrote:

Susan, I am glad to hear you are able to do yoga. Hopefully it will resolve in time for your Hawaii trip!

I am getting my first lung biopsy tomorrow. I am a bit nervous. This will be my first biopsy of my lung nodules because they were too small to biopsy over the past few years.

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/9/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/1/2018 External: Liver Targeted Therapy 2/15/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/18/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)
Log in to post a reply

May 3, 2021 01:26AM - edited May 3, 2021 10:46AM by SusaninSF

Kar,

Sorry to hear that your lung tumors have grown. I've had two lung biopsies and they seemed to be straightforward with low risk. However, with the second one, after doing seven cores, they were unable to find any cancer. I definitely have lung mets but they were biopsying a spot where I have a large mass that was previously radiated. That area may be necrotic. The two active, smaller tumors were too close to my heart to biopsy. So ironic that we spend all our time trying get rid of cancer but when you need a sample, they can't find any cancer.

Hope you have a safe and productive biopsy!

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

May 8, 2021 12:48PM rachel5738 wrote:

I have my lung biopsy coming up. The one nodule is deep so they said they would be consulting with the radiologist to see if they are able to get to it or they have to do more invasive. I won’t lie - the thought of this lung biopsy is so nerve racking. Just did a bone scan last week so hopefully within the next week we know what we are looking at. For those that have done the lung biopsy - have you done the needle or other?

April 2021; Stage 4, lung Mets; Wedge resection. One tumour idea tied as neuroendocrine. August 2020;Breast Cancer Stage II, Grade 1: Treatment Plan: FEC-T X6/Rads 25+5/Tamoxifen 5 years; Cervical Cancer Stage 1B, Treatment plan: Rad Hyst. Dx 7/5/2010, IDC, 1cm, Stage II, Grade 1, 1/7 nodes, ER+/PR+, HER2- Dx 4/28/2021, Right, Stage IV, metastasized to lungs
Log in to post a reply

May 8, 2021 05:00PM MissMonty wrote:

Hi Rachel,

I had a CT Guided lung biopsy where the needle was inserted into my chest. I was awake, but mildl sedated. For me, it was a very straight forward procedure, although the results (de novo stage IV) weren’t what I was hoping for. That lung biopsy was almost 4 years ago. (June/2017). I had the procedure at Princess Margaret.

I hope it all goes well for you. I’m happy to answer any questions you have. I know it’s a very scary and stressful time.

Anna

Hormonal Therapy 6/13/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/16/2017, IDC, Left, 4cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR-, HER2- Chemotherapy 8/27/2017 Xeloda (capecitabine) Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
Log in to post a reply

May 8, 2021 06:27PM rachel5738 wrote:

Thanks Anna. I will definitely reach out to you. I had my first cancer treatment at PMH. Now I’m out in Mississauaga so will be doing my treatment here at Credit Valley

April 2021; Stage 4, lung Mets; Wedge resection. One tumour idea tied as neuroendocrine. August 2020;Breast Cancer Stage II, Grade 1: Treatment Plan: FEC-T X6/Rads 25+5/Tamoxifen 5 years; Cervical Cancer Stage 1B, Treatment plan: Rad Hyst. Dx 7/5/2010, IDC, 1cm, Stage II, Grade 1, 1/7 nodes, ER+/PR+, HER2- Dx 4/28/2021, Right, Stage IV, metastasized to lungs
Log in to post a reply

May 8, 2021 07:58PM SusaninSF wrote:

Rachel,

I have had two lung biopsies. Both times, they took some cores through my back. Like Anna's experience, they were CT-guided and I was only partially sedated. The procedures were easy and painless but the second was unsuccessful because they weren't able to find any cancer. I have a large mass in my lung that was originally 4cm. It was radiated so, apparently, it was all necrotic tissue. Or they just missed the right spots. I have two other tumors that are too close to the heart to be biopsied.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
Log in to post a reply

May 10, 2021 01:02PM moth wrote:

I wasn't sedated for my lung biopsies, just given a local. It was boring. Just a lot of being still. I didn't feel pain, just occasionally a bit of pressure.

The most important thing from my perspective is to bring a book & make sure my phone was fully charged &/or bring charger or battery bank because they make you stay for hours afterwards and do repeat chest xrays to make sure your lung hasn't collapsed.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

May 10, 2021 08:51PM KarPC wrote:

Rachel, I had my lung biopsy last Monday. I was nervous for it, but it went smoothly. The needle went in under my armpit. They were planning to lightly sedate me so that I would be awake and coherent during the procedure. They ended up knocking me out! I had a nice long nap. I was felt slight discomfortable for 2 days before returning to normal. ~Kar

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/9/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/1/2018 External: Liver Targeted Therapy 2/15/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/18/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)
Log in to post a reply

May 11, 2021 09:27PM rachel5738 wrote:

Thanks for the insights - it’s so strange that it’s now like a hurry up and wait. I have the biopsy booked and they mentioned to ensure I know that I may be there for 8+ hours so book will be my friend.

Waiting to hear back for bone scan - they didn’t have the results yesterday so I’m waiting for that as that’s the last scan that I had to do to understand if there are any other things to be concerned about.

April 2021; Stage 4, lung Mets; Wedge resection. One tumour idea tied as neuroendocrine. August 2020;Breast Cancer Stage II, Grade 1: Treatment Plan: FEC-T X6/Rads 25+5/Tamoxifen 5 years; Cervical Cancer Stage 1B, Treatment plan: Rad Hyst. Dx 7/5/2010, IDC, 1cm, Stage II, Grade 1, 1/7 nodes, ER+/PR+, HER2- Dx 4/28/2021, Right, Stage IV, metastasized to lungs

Page 72 of 77 (2,306 results)