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Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jan 6, 2012 11:53AM - edited Oct 12, 2013 10:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Sep 27, 2021 01:19PM moth wrote:

GR4C1E, wow I haven't heard of an abraxane shortage. can you have taxol or are you super allergic?

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Sep 27, 2021 03:06PM GR4C1E wrote:

Moth,

I had Taxotere back in 2011 - 2012 and I tolerated it pretty well. I struggled with the side effects of the pre-chemo Decadron dose pack and they finally stopped prescribing it because the steroid crash was brutal for me, and I did okay without it. Of course back then, the Taxotere (+ Cytoxin) was administered prophylactically post bilateral mastectomy, so it was a short duration - probably once every couple of weeks for about 4 months.

I'm definitely freaking out over the change. I just broke up with my previous MO (one change) and two Abraxane treatments in - ANOTHER CHANGE! I was hoping for stability, both in my MO and my treatment. I have an awesome MO now, so his office called today to let me know what was going on. If I were still with the other MO they would have told me when I showed up for treatment! So this is definitely a better situation, but I'm still stressing out.

Once I get past my next infusion - whatever it may be - I'm sure I'll be fine. (I hope - maybe - I think)

I don't know if the shortage is world wide, or even country wide. We've been having all sorts of issues in the US getting ships into ports as well as transportation issues on the ground because of flooding and tornado damage. Not to mention that a few neighboring counties in Pennsylvania where I live are still awaitng FEMA assistance. On average, we have 12 tornadoes a year. This year, we've had 20. It could be a situational shortage because of where I live.

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/24/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/22/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/15/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/6/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
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Sep 27, 2021 03:24PM - edited Sep 27, 2021 03:25PM by DivineMrsM

Gracie, I can relate to the cancer panic cycle. I take the generic of Xeloda, capecitabine. For awhile I was paying about $300 a month for it through a mail order pharmacy. Then I found a coupon at Good Rx and was able to get it locally for about $50 for several months. So I dropped the prescription off last Friday. They said they had to order it and it would be in today. But today Kroger pharm said they can't get it distributed to them. It really pisses me off. I figure Krog's can't make money off it so it's not worth their trouble. Or is there a shortage. I made a few calls to the cancer center and a nurse is checking in to it. But I'll probably have to go back to paying hundreds of dollars a month for it. Other people have said they only pay a few dollars to get it. The price discrepancy is beyond irritating. Nothing ever seems to go smoothly for very long.



found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Sep 27, 2021 03:29PM GR4C1E wrote:

AlabamaDee,

I'm off Gemzar because it failed miserably and I found an new MO who said what I was thinking: "why did they take you off Abraxane if it was working?" and they put me right back on and Abraxane regimen. So, now here I am.

My last scan was two weeks ago after the Gemzar failure which lead to significant cancer regrowth, coughing and breathing issues and a fractured rib. Ouch.

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/24/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/22/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/15/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/6/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
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Sep 28, 2021 01:31PM GR4C1E wrote:

Bristol Myers Squibb doesn't have a press release on their website so I don't know how accurate this information is.

https://www.ashp.org/drug-shortages/current-shortages/drug-shortage-detail.aspx?id=760&loginreturnUrl=SSOCheckOnly

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/24/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/22/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/15/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/6/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
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Sep 28, 2021 02:06PM moth wrote:

ugh I just checked the Canadian drug shortage website & abraxane is short here as well due to manufacture delay. My next dose is in just over 2 weeks.

I hope we can get our meds!!


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Sep 28, 2021 02:28PM GR4C1E wrote:

I was really hoping it was a transportation and logistics issue. I guess we'll have to wait and see how this plays out. I have an appointment tomorrow to speak with my MO about this. I'll follow up and let you know what he suggests.

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/24/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/22/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/15/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/6/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
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Sep 29, 2021 04:49PM GR4C1E wrote:

Update: My MO says it may be a month or more before supplies of Abraxane become available. I start Taxotere next week while I wait.

This really sucks.

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/24/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/22/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/15/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/6/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
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Sep 29, 2021 05:05PM GR4C1E wrote:

AlambamaDee-

Yeah, I'm not happy about it but I have a plan. My MO was actually so stressed out it made me feel better! He's had a horrible couple of days rescheduling patients. Thanks for the cheers!

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/24/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/22/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/15/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/6/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
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Sep 29, 2021 06:49PM SusaninSF wrote:

Would like to fly to see my parents in Honolulu but I'm worried that the lower pressure during the flight might compromise my breathing. The last time I had plans to go, my MO said, "Absolutely not." So I had to cancel the trip.

Has anyone used a Portable Concentrator to fly or for other reasons? I don't normally use oxygen and my saturation is 97 without a mask. However, I have some trouble breathing through a mask and will have to wear one for the entire 5-7 hour flight. I'm also concerned that I will become anxious and panic if I feel like I can't breathe after take-off since it will be hours until we will be able to deboard. The units are very expensive. A good, light one with the battery capacity for such a long flight is $2,495. I was looking at a Caire FreeStyle Comfort model.

My Dad turns 89 next month and I haven't seen my family since the COVID lockdown. I worry that he will become sick or even die and I won't be able to see him before then so it's important to me that I be able to go.

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
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Sep 30, 2021 05:50PM Anotherone wrote:

Susan, the airline possible has an exemption policy for masks - may be worth enquiring.

Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. On Kadcyla now as had progression on H&P Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/16/2019 Abraxane (albumin-bound or nab-paclitaxel) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy External: Chest wall Targeted Therapy Herceptin (trastuzumab)
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Oct 1, 2021 11:10AM SusaninSF wrote:

Thanks Anotherone. I think this is true but it may not be safe for me to be in the plane without a mask.

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
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Oct 1, 2021 08:34PM KarPC wrote:

Susan - I feel for you! I have family in Hawaii too plus it's my fave place to be but I get too scared to fly. It's such a long flight. I hope you can find a solution. If you were to get an exception, maybe one of those face shields would help - and an Ativan!

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/9/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/1/2018 External: Liver Targeted Therapy 2/15/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/18/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)
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Oct 2, 2021 06:50PM SusaninSF wrote:

Thanks KarPC! The Ativan is a great idea. I took one for the first time last week before an MRI and it definitely helped me to relax. I never used to get anxious during an MRI but I've become increasingly fearful of every procedure. You'd think I'd become more comfortable over time instead of less. Now I'm anxious I will become anxious! Crazy.

I wrote to my Pulmonary Surgeon and he said that I shouldn't fly for AT LEAST 8 weeks after my VATS procedure because the change in pressure could cause the pleural space to open up again. Glad I asked because that was never mentioned to me before. Now I'm wondering what else I shouldn't do that that they haven't told me.

I do feel so grateful that the VATS procedure was successful.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
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Oct 2, 2021 10:18PM KarPC wrote:

Susan - I am so glad you got an answer about flying before you made the trip!

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/9/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/1/2018 External: Liver Targeted Therapy 2/15/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/18/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)
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Oct 3, 2021 03:53PM Anotherone wrote:

Susan, what type of mask are you using ?

Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. On Kadcyla now as had progression on H&P Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/16/2019 Abraxane (albumin-bound or nab-paclitaxel) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy External: Chest wall Targeted Therapy Herceptin (trastuzumab)
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Oct 3, 2021 11:39PM SusaninSF wrote:

Anotherone,

Since I had lung surgery, I've had trouble breathing through anything but those paper surgical masks. When I'm walking outside, I don't wear a mask because it's harder for me to breathe when I'm walking. Any suggestions of masks that are easier to breathe through?


Mets to brain, lung, liver, eye, femur bone. 1/6/22 started on ARX788 trial. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy: Left, Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy: Right Dx 3/29/2014, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External: Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External: Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External: Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 11/2/2021 Halaven (eribulin) Radiation Therapy 12/21/2021 External: Bone Targeted Therapy 1/6/2022
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Oct 4, 2021 03:12AM Piksie wrote:

Novagirl - my search for lymphangitic carcinomatosis brought me to your recent discussion on your diagnosis. After 2.5 years on Ibrance and Zoladex, progression took me to three months of Faslodex and Zoladex, which failed miserably. I'm one week into Xeloda with moderate optimism, but my CT yesterday has confirmed the suspicion in June of lymphangitic carcinomatosis. It confuses me as I have no pulmonary symptoms, but the final impression was "worsening metastatic disease with increasing lymphangitic carcinomatosis and osseous metastatic disease." WTF!!!

I haven't spoken to MO about it, but Dr Google has me SCARED! The report mentions both lungs, upper and lower. I can't imagine that any procedure could cover it all. I need SOME lung! Maybe I'm wrong? Or is systemic treatment my only option?

I've been sailing along with minimal SEs and living a full life. I work full time, I have two active teenagers, an active social life. I've been traveling with my kids (pre-COVID, but planning the next few), etc. And along comes this freight train. I'm looking forward to a girl's cruise in two weeks, but if I can act immediately, I'll gladly pass on the cruise. Is he going to say "drop everything, we can help", or "go ahead and cruise. There's nothing we can do"?

I'm sorry for dumping my self-pity here; I know we're all in the same boat. I just don't want to tell my family and friends for fear that they'll Google. This forum and you all are so insightful, educational, emotionally supportive. Thank you.

Novagirl - how are you?

Dx 12/12/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2- Dx 12/12/2015, IDC, Left, 6cm+, Stage IIB, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 1/26/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Surgery 10/13/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/17/2018, IDC, Left, <1cm, Stage IIB, Grade 2, 18/18 nodes, ER+/PR+, HER2- Hormonal Therapy 7/27/2018 Arimidex (anastrozole) Hormonal Therapy 7/28/2018 Zoladex (goserelin) Surgery 8/16/2018 Lymph node removal: Left; Reconstruction (left): Silicone implant Chemotherapy 9/11/2018 AC + T (Taxol) Dx 12/25/2018, DCIS/IDC, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes, Chest wall, Bone Targeted Therapy 3/25/2019 Ibrance (palbociclib) Dx 6/2021, IDC, Stage IV, metastasized to lungs Hormonal Therapy 6/13/2021 Faslodex (fulvestrant) Chemotherapy 9/23/2021 Xeloda (capecitabine) Chemotherapy 11/8/2021 Halaven (eribulin) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 4, 2021 04:46PM Sadiesservant wrote:

Piksie. So sorry to hear about this recent diagnosis. Please keep in mind that Dr. Google has a terrible bedside manner and can be a bit deceiving! While I am not familiar with lymphangitic carcinomatosis, it sounds like you are doing well (with no pulmonary symptoms). From what I read most patients with this diagnosis need oxygen etc. so hoping it's being flagged as early signs and getting you on a treatment that works will reverse the situation.

I would encourage you to reach out to your MO for clarification as soon as you can. I hate to think of you worrying in the absence of your MO's expert opinion.

Hugs.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
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Oct 4, 2021 05:02PM Anotherone wrote:

Susan

I understand. I am not sure it is possible to find proper filtration mask which is easy to breeze through. Some of them have a valve on so at least exporing may be easier ..

I asked because since covid is airborne unless you use really tight mask any other mask is unlikely to do much to stop it so I do not think not wearing it would be any more dangerous ..


Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. On Kadcyla now as had progression on H&P Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/16/2019 Abraxane (albumin-bound or nab-paclitaxel) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy External: Chest wall Targeted Therapy Herceptin (trastuzumab)
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Oct 4, 2021 07:28PM Sdak1403 wrote:

hello, I’m new to this group so please forgive my newbie-ness. 2009 r mastectomy with axillary dissection her2 positive. 2019 left mastectomy dcis. Today was told I have a 1.8 cm nodule in r lower lobe. Follow up soon with PET/CT. My question: how to know if this is mets or primary? I was a former smoker in my early 20’s

Thanks so much in advance

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Oct 4, 2021 07:31PM moth wrote:

Hi Sdak, they might want to do a biopsy. That's really the only way to be sure what it is.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 4, 2021 07:37PM Sdak1403 wrote:

My doc asked if I was a former smoker and I sort of hem hawed…cancer is often not by choice except in the case of smoking which is, my bad choices as a young adult now at 61 I may be paying for that? Would the biopsy be under general anesthesia?

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Oct 4, 2021 07:46PM moth wrote:

My 2 lung biopsies were under local.

Also about 10% of lung cancer cases are in never smokers so I think they're just considering odds.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 4, 2021 08:25PM Sdak1403 wrote:

thanks so much for this...I have been really beating myself up about this today!!!

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Oct 4, 2021 09:10PM Sadiesservant wrote:

SDak, given your BC diagnosis I would think your MO is looking at all possibilities as Moth suggests. I’m unsure from your post if you have been diagnosed with later stage cancer. There are cases where lung nodules are benign. Only the biopsy can say for sure. I know it’s difficult but you need to avoid jumping to any conclusions. Easier said than done I know. Sending a virtual hug!

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
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Oct 5, 2021 10:27PM Piksie wrote:

Hi there! So I emailed and chatted with MO yesterday and today about the lymphangitic carcinomatosis from my chest CT. He has doubts about the validity of the diagnosis and hypothesized that the most recent RO wrote the summary based on the June scan, which said "can't rule out lymphangitic carcinomatosis." without really digging further. He's always downplayed things rather dramatically, but this time, I'm going to believe him. I don't have the lung capacity that I did a year ago, but I'm not suffering in the way you'd expect. And... even if it was true, the preferred treatment would be Xeloda, which I just started 10 days ago. So I'm ahead of the game, and I'm going on a cruise. :)

Sadie, thank you for your "cooler head".

SDak, I hope you get answers soon.

Dx 12/12/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2- Dx 12/12/2015, IDC, Left, 6cm+, Stage IIB, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 1/26/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Surgery 10/13/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/17/2018, IDC, Left, <1cm, Stage IIB, Grade 2, 18/18 nodes, ER+/PR+, HER2- Hormonal Therapy 7/27/2018 Arimidex (anastrozole) Hormonal Therapy 7/28/2018 Zoladex (goserelin) Surgery 8/16/2018 Lymph node removal: Left; Reconstruction (left): Silicone implant Chemotherapy 9/11/2018 AC + T (Taxol) Dx 12/25/2018, DCIS/IDC, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes, Chest wall, Bone Targeted Therapy 3/25/2019 Ibrance (palbociclib) Dx 6/2021, IDC, Stage IV, metastasized to lungs Hormonal Therapy 6/13/2021 Faslodex (fulvestrant) Chemotherapy 9/23/2021 Xeloda (capecitabine) Chemotherapy 11/8/2021 Halaven (eribulin) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 5, 2021 10:32PM Sadiesservant wrote:

Good girl! Enjoy

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
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Oct 19, 2021 10:52PM rachel5738 wrote:

Hi all - sorry catching up on a few posts - sorry to see others in the same situation. I had wedge resection done earlier in summer on my right lung which had two areas - the thoracic surgeon felt that it would be good to be aggressive and get them out - took about a full month to recover - I have a small nodule in left lung that hasn’t changed in size so they are leaving it right now. Just had PET and nothing else at this point. I was a little worried of recovery from wedge resection as I had awful time with lung biopsy as lung collapsed multiple times but am glad to say it worked out. I meet surgeon again on Thursday to see if he wants to do anything on left lung or follow oncologist recommendations. 

April 2021; Stage 4, lung Mets; Wedge resection. One tumour idea tied as neuroendocrine. August 2020;Breast Cancer Stage II, Grade 1: Treatment Plan: FEC-T X6/Rads 25+5/Tamoxifen 5 years; Cervical Cancer Stage 1B, Treatment plan: Rad Hyst. Dx 7/5/2010, IDC, 1cm, Stage II, Grade 1, 1/7 nodes, ER+/PR+, HER2- Dx 4/28/2021, Right, Stage IV, metastasized to lungs
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Oct 23, 2021 08:13AM Sdak1403 wrote:

Thanks rachel5738. I was retating what the Thoracic surgeon said to me and just as you said, how can one know with out question what kind of cancer we're going to be working with without looking at it under the scope? 🤷♀️

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