Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jan 6, 2012 08:53AM - edited Oct 12, 2013 07:32AM by bhd1

Posted on: Jan 6, 2012 08:53AM - edited Oct 12, 2013 07:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Jun 25, 2014 06:55PM susaninsf wrote:

Carol,

So happy to hear that you are side effect free and able to get out!  Also good news about your tumor markers coming down.  Sending positive energy your way that your next scan will have even better news!

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Reconstruction (Right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy; Mastectomy (Right) Dx 3/29/2014, DCIS, Left, 4cm, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External Local Metastases 4/28/2014 Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External Local Metastases 1/8/2015 Radiation therapy: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External Local Metastases 11/27/2017 Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External Local Metastases 10/23/2019 Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Other Chemotherapy 11/2/2021 Other Targeted Therapy 1/6/2022 Targeted Therapy 6/24/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
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Jul 2, 2014 08:09AM Carolben wrote:

Oh well, back to basics again - scan shows progression of existing mets in lungs plus "numerous new nodules visible".  So it's goodby Xeloda for me, hello Gemzar/Cisplatin.  Damn, I've been feeling so well lately that I thought they'd find NED, (bit optimistic, I guess)!!

Brenda you are on Gemzar/Carboplatin aren't you?  Did you loose your hair?  I'm doing an infusion a week for 2 weeks then 1 week off.  I hope to get good results as you did.  There is an enlarged hilar lymph node, which they want to watch - not sure exactly still what that signifies.  The cancer has already been in my blood and lymph systems, to get to the lungs.  

Had an ultrasound of liver, pancreas etc and all is clear there,thank God; waiting for results from bone scan.

After being on Xeloda and keeping my hair, it feels like I'm going back to 'serious' chemo again now - that's strange, but I guess it's the sitting and getting the infusion at the oncology unit, loosing hair etc - it's so obvious to everyone, whereas with hair people don't know you're on chemo.  Oh well, it could be worse, I'm still feeling well, so am determined to enjoy each day of feeling like that!

love, courage and grace. Mets to lungs Feb 2013, 8 Dec 2014 brain mets Dx 5/14/2012, DCIS, 2cm, Stage I, Grade 2, 0/1 nodes, ER-/PR-, HER2- Surgery 5/22/2012 Mastectomy: Left Chemotherapy 6/21/2012 AC Radiation Therapy 9/24/2012 Breast Dx 2/4/2013, Stage IV, mets Chemotherapy 2/14/2013 Taxol (paclitaxel) Chemotherapy 11/19/2013 Xeloda (capecitabine) Chemotherapy 7/17/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 12/14/2014 Brain Dx mets
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Jul 2, 2014 10:34AM Adnerb wrote:

Carolben, I only lost a little bit of hair, then it grew back while on treatment.  Not all people lose hair with this combo.  I think you will finally zap those nasty lung mets with your new treatment.  Your attitude is a big, big plus!!!

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jul 2, 2014 04:01PM susaninsf wrote:

Carolben,  

In my initial PET/CT scan I had "Extensive confluent mediastinal and hilar lymphadenopathy" but two months later it said "Interval resolution of FDG avid mediastinal and hilar lymph nodes".  In other words, the problem went away.  The way I look at it is that my lymph nodes were working hard to combat my many metastatic sites (brain, eye, breast, lung) of which I wasn't even aware.  Once I started treatment, lifestyle changes, etc. my tumors started to shrink and become less active and my lymph nodes no longer needed to work as hard.  I think of lymph node enlargement as more of a red flag that something is going wrong somewhere than a problem with the node itself.  Perhaps the more medical knowledgeable can pipe in.

Glad you are feeling well.  That is the most important.  That's what I try to focus on.  Like someone posted, "I look fine on the outside but on paper I look like hell".  I always say, "I feel fine but on paper I look like hell".

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Reconstruction (Right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy; Mastectomy (Right) Dx 3/29/2014, DCIS, Left, 4cm, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External Local Metastases 4/28/2014 Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External Local Metastases 1/8/2015 Radiation therapy: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External Local Metastases 11/27/2017 Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External Local Metastases 10/23/2019 Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Other Chemotherapy 11/2/2021 Other Targeted Therapy 1/6/2022 Targeted Therapy 6/24/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
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Jul 2, 2014 06:33PM roberta37 wrote:

Well I knew it wasn't gong to be bood news when the oncologist called late last week to say he needed to see me right away this week.  Turns out the new blood test and scan showed more pregression and it is now confirmed in my liver and lung.  So he wanted to switch me right away to do chemo and do a biopsey of the liver as my liver numbers are terrible and the CT confirmed it was in my liver.  I'm all for throwing at whatever needs to be done to try and stop progression.  My oncologist just wanted me to know how serious this is but I'm not throwing in the towel just yest.  I had a really crappy week last week and just started feeling human in the last two days.  What are people's thought on juicing?  I know some think you are just fueling the cancer and now that he confirmed it has spread rapidly I'm wondering if I'm doing just that.  I come here to get my boost I need to keep thinking positive :)

Dx 2/23/2008, IDC, 3cm, Stage II, Grade 3, 3/5 nodes, ER+/PR+, HER2-
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Jul 2, 2014 06:52PM tryn2staycalm wrote:


Hi Ladies - sorry to hear of some progression here.  Not sure about the juicing.  I was told I should try it from a lady I know who also has had bc.  I am day 14 on the palbo drug trial and go in for my first blood work and see MO tomorrow.  My lymph node near left lung was noted swollen a couple months ago too and my MO said it was noted in the latest scan.  I will try to remember to ask him about it tomorrow.  Hoping your right SusaninSF and it is just holding the river from overflow and will go away too!  Wish you all find what works and with few side effects.  The worst one for me is the lack of appetite.  I force myself to eat but still better than the chemo was!

Cathy

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/11/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
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Jul 2, 2014 09:41PM Adnerb wrote:

Roberta, I have a Nutri-Bullet  and I'm so used to juicing with it that I miss it when I skip a day.  50% kale or other green vegetable and 50% fruit.  I don't know if it keeps the cancer stable, but it helps me get "regular" in the digestive department.  Sorry about your latest development.  Your BC was in remission all those years, it must be very disappointing to have it come back.  The good news is there is so much you can do to treat metastatic disease nowadays.  There's more in your particular arsenal if your BC is still hormone positive.

I guess our oncologists do not worry too much about lymph node involvement if we already have the mets.  It's like worrying about stage 3 when stage 4 is waiting to get attention.

Cathy, I had no appetite right after my stage 4 diagnosis.  I had fear of imminent death and anger at the injustice of it all.  Then chemo and flu like symptoms.  My onc prescribed "Megace" in syrup form.  It gave me back my appetite.  It's also supposed to help ER+ breast cancers.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jul 2, 2014 10:38PM susaninsf wrote:

Roberta,

So sorry to hear about your progression.  Definitely don't throw in the towel yet.  I'm in a group of MBC women in my city and some of the women have been living with MBC for a long time, one woman for 15 years!  Many have come back from very dire situations to live almost normal lives.  Have you read the book "Radical Remission"?  That book really inspired me.  It's available on Kindle.

Hugs, Susan

Mets to brain, lung, liver, eye, femur bone. Dx 2000, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/31/2000 Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Reconstruction (Right) Dx 2008, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/2/2008 Mastectomy; Mastectomy (Right) Dx 3/29/2014, DCIS, Left, 4cm, Stage IV, metastasized to brain/bone/lungs/other, mets, ER+/PR-, HER2- Hormonal Therapy 3/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/28/2014 External Local Metastases 4/28/2014 Brain Chemotherapy 10/30/2014 Xeloda (capecitabine) Radiation Therapy 1/8/2015 External Local Metastases 1/8/2015 Radiation therapy: Bone Radiation Therapy 6/6/2016 External Hormonal Therapy 11/16/2016 Faslodex (fulvestrant) Targeted Therapy 12/21/2016 Ibrance (palbociclib) Radiation Therapy 11/27/2017 External Local Metastases 11/27/2017 Brain Hormonal Therapy 8/21/2018 Femara (letrozole) Targeted Therapy 8/21/2018 Piqray (alpelisib) Chemotherapy 4/23/2019 Taxol (paclitaxel) Chemotherapy 6/19/2019 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 10/23/2019 External Local Metastases 10/23/2019 Brain Immunotherapy 10/25/2019 Targeted Therapy 2/18/2020 Trodelvy (sacituzumab govitecan-hziy) Dx 3/8/2021, Stage IV, metastasized to liver Hormonal Therapy 3/12/2021 Aromasin (exemestane) Targeted Therapy 3/16/2021 Verzenio Chemotherapy 9/8/2021 Other Chemotherapy 11/2/2021 Other Targeted Therapy 1/6/2022 Targeted Therapy 6/24/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
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Jul 3, 2014 06:22AM GatorGal wrote:

alert ... Name change. Finally took the advice of other members and took my real name off. Since I'm a gator fan (having graduated from UF) I am now GatorGal. 

Sorry to hear of progression ... Hoping new meds will do the trick.  I am on carbo now and still have a full head of hair.  Also did gemzar and did not lose my hair.  I lost it on taxotere but not since then and have been in quite a few chemos in the last 4 years.  We just have to keep looking for that magic bullet!!

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 4/10/2011 Taxotere (docetaxel) Chemotherapy 8/13/2011 Gemzar (gemcitabine) Chemotherapy 6/12/2012 Doxil (doxorubicin) Chemotherapy 12/11/2012 Taxol (paclitaxel) Chemotherapy 9/10/2013 CMF Chemotherapy 4/15/2014 Carboplatin (Paraplatin) Chemotherapy 12/16/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 9/8/2015 Navelbine (vinorelbine) Chemotherapy 12/22/2015 Halaven (eribulin) Chemotherapy 4/12/2016 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/14/2016 Ixempra (ixabepilone) Hormonal Therapy 7/26/2016 Arimidex (anastrozole)
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Jul 3, 2014 06:43AM Carolben wrote:

thanks all, and your explanations of the lymph nodes is very helpful! Just another thing to watch! 

Sorry you are back here, Roberta! I sometimes juice, mainly when I'm not eating fruit or enough veggies, but on the whole I just try to get a variety of food into me. My appetite is also not great, tho I do get days when I'm suddenly hungry. It's like my body wants to make up for eating less, that way I manage to stay at more or less the same weight too. I can't get crazy about feeling I have to eat this or that specifically, I follow my body's messages, & when it calls out for red meat or whatever, I eat that.  But I'm not one to talk, my eating habits have never been very good, even tho Im not a junk food fan at all, & like "healthy" food, I'm just an 'erratic eater'.

Have heard of the Nutribullet, Brenda, it must be better as you get to keep the fibre, as opposed to juicing. I think attitude does have a lot to do with quality of life. If I feel positive, even tho what they say is not so positive, then my reality right now is good. And so the qol is good, maybe it's living a bit in denial, or never never land, but it does no harm. We are all amazing women facing probably one of the greatest challenges in life - living with a stage iv disease. It's not for sissies!!  Thanks for the reassuring words re Gemzar/Cusplatin, it always helps to hear from someone who's done the same chemo! I can't handle thin or patchy hair, I'll probably shave it then & maybe it'll grow back during the rest of the treatment. I'm also hoping this combo will kick some serious butt!

Cathy, how did your appointment with your MO go? Hope you got good news!

Susan, Love what you say about looking like hell on paper, but feeling fine - so true! Thanks for a very clear and positive explanation of the lymph nodes. I don't like not understanding things, & you cleared that up!  I'm in awe of you living with extensive mets and still being so positive! Are you on any chemo now, after your rads?

love, courage and grace. Mets to lungs Feb 2013, 8 Dec 2014 brain mets Dx 5/14/2012, DCIS, 2cm, Stage I, Grade 2, 0/1 nodes, ER-/PR-, HER2- Surgery 5/22/2012 Mastectomy: Left Chemotherapy 6/21/2012 AC Radiation Therapy 9/24/2012 Breast Dx 2/4/2013, Stage IV, mets Chemotherapy 2/14/2013 Taxol (paclitaxel) Chemotherapy 11/19/2013 Xeloda (capecitabine) Chemotherapy 7/17/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 12/14/2014 Brain Dx mets

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