Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 02:09AM - edited Oct 28, 2021 01:22PM by moderators

Posted on: Jun 22, 2012 02:09AM - edited Oct 28, 2021 01:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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May 5, 2022 04:09PM beth1965 wrote:

I am thinking it’s a combination of the drugs I am on and the skull Mets

Bigpeaches it feels like that to me too I have a lot of skull Mets so probably why I am losing so much and yes definitely need a hat or maybe some bandanas for summer

Cyathea and Star17 I am not on same drugs but have just learned of a few woman that got hair loss from ones I am on

So it does seem the combination of drugs and skull Mets is going to make me bald soon

I remember thinking at least I won’t lose my hair again as I am not on chemo but turns out I will anyways soooo frustrating

Looking for hope Surgery 2/1/2012 Lymph node removal; Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Radiation Therapy 8/14/2012 Breast, Lymph nodes Hormonal Therapy 9/27/2012 Faslodex (fulvestrant), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 11/7/2013 Aromasin (exemestane) Local Metastases Radiation therapy: Bone
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May 7, 2022 11:45AM emac877 wrote:

Beth1965 - I was going to suggest it may be the combo of drugs you are on. My hair is progressively thinning, on the crown and on the top,and I believe it's the combo of Faslodex and Verzenio. I am on Xgeva for bone mets but I don't think that plays as much of a role. It's definitely one of the harder struggles I have with stage IV.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 3/21/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 6/7/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/10/2019 Radiation Therapy 12/22/2019 External Local Metastases 12/22/2019 Radiation therapy: Bone Targeted Therapy 1/6/2020 Verzenio Hormonal Therapy 6/22/2021 Faslodex (fulvestrant)
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May 7, 2022 03:41PM karenfizedbo15 wrote:

Hi All, after a very tough week I’m still standing! Rads to the biggest met in my spine, nicked my stomach so a couple of nausea days plus trying to manage referred pain from the met. Never had rads before so it was an experience that the procedureitself is painless but you MUST keep on top of the pain meds because it gets worse before better. Read this here before, but you all know what it’s like. Sometimes you have to experience it.

Surgery 9/6/2007 Lymph node removal; Mastectomy; Mastectomy (Right); Reconstruction (Right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/3/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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May 7, 2022 04:06PM sunshine99 wrote:

karen, I'm glad you're still standing! It's tough to stay ahead of the pain, right?

my-sunny-side-up.com Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External Local Metastases 5/5/2020 Radiation therapy: Bone Radiation Therapy 5/12/2020 External Local Metastases 5/12/2020 Radiation therapy: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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May 7, 2022 06:47PM sadiesservant wrote:

Karen, I feel your pain, literally. I’ve had several rounds of radiation for spine mets (one hip) and underestimated the impact of rads close to the stomach once. Went back to work and then suddenly thought, I’m going to be sick! I managed to make it to the parking garage to go home, thankfully had the presence of mind to take bags with me, tossed my cookies and split!

I just had the first session of five to C7, T1 and T2. I’ve been dealing with significant shoulder pain and numbness in my right arm for about seven weeks. At times the pain was all consuming and made it impossible to sleep. It was a bit of trial and error finding pain meds that were effective but a combo of gabapentin and hydromorphone did the trick. (Note, to self, morphine is a total no go for me! Couldn’t keep anything down.) The neurological symptoms kept worsening. MRI revealed a new lesion that is invading the epidural area and nerve roots. I’m now also on a pretty high dose of steroids which is completely messing with my sleep…. So 😴. Fortunately the pain is under control although everyone seems to be predicting quite a bit of a pain flare. Judging by how I felt after one dose, I suspect they are correct this time. Previously I didn’t have much trouble with the exception of the c-spine for skull mets which was sore for a bit.

Hope the pain eases and glad you nuked any troublesome mets.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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May 8, 2022 08:20AM cyathea wrote:

Karen and sadiesservant, I’m sorry you are having pain and other issues. I can’t relate completely because my pain is generally mild at this point, but I’m sending you both virtual hugs. (((Hugs))

Dx 6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2- Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Chemotherapy 8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 10/8/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 10/10/2019 Herceptin (trastuzumab) Surgery 3/17/2020 Lymph node removal; Lymph node removal (Left): Sentinel, Underarm/Axillary; Lymph node removal (Right): Sentinel, Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 4/15/2020 Other Radiation Therapy 5/31/2020 3DCRT: Breast, Lymph nodes Local Metastases 5/31/2020 Radiation therapy: Bone Hormonal Therapy 8/20/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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May 9, 2022 08:48AM karenfizedbo15 wrote:

Thanks All. Feeling more like myself now. I start Vinorelbine next week…my last oral chemo option. Also, like many of you, sleep and comfort issues - or lack thereof -have been on my mind so I took the plunge and bought an electric adjustable bed ( King size). It arrived today so I’m away to play on it!

Surgery 9/6/2007 Lymph node removal; Mastectomy; Mastectomy (Right); Reconstruction (Right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/3/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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May 9, 2022 08:58AM emac877 wrote:

Karen I'm excited for you and your new bed. I splurged and bought one last year (Queen size) and love it. It doesn't always solve all my sleep issues but it helps. I hope yours gives you a good nights sleep.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 3/21/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 6/7/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/10/2019 Radiation Therapy 12/22/2019 External Local Metastases 12/22/2019 Radiation therapy: Bone Targeted Therapy 1/6/2020 Verzenio Hormonal Therapy 6/22/2021 Faslodex (fulvestrant)
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May 9, 2022 10:49AM anne16 wrote:

Hi Ladies,

When you are going through radiation do you stop all supplements and vitamins until you are done with treatment?

We just bought a new bed a few months ago and now I am wishing we had an electrical bed. Our bed is somewhat high and it is hard for me to get out of it. Uuugh! Did you get sleep number bed?

Stage 4; 2/16 nodes; ER+/PR+; Her2-; 12 years NED
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May 9, 2022 12:02PM cowgal wrote:

Anne16 - My MO doesn't want me to take supplements or vitamins any time, except calcium and vitamin D but I think that the thought is to be off of them while going through radiation if you are taking them. I would check with your MO to be sure.

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