Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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May 9, 2022 03:11PM sadiesservant wrote:

Anne16, same deal here. Many supplements interact with chemotherapy and other treatments. I tried one to boost my blood and was told to stop with Xeloda. I work to ensure I get all the vitamins I need from my diet which is probably the best way to go for me as I need to work to keep weight on

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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May 9, 2022 07:31PM star2017 wrote:

Yes, I stopped regular vitamins. She said I could continue with the calcium.

CURRENT: Stage IV since 2020, bone mets to rt hip, sacrum, femur, all treated with radiation. Taking Lynparza daily. Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy; Mastectomy (Right); Reconstruction (Right): Tissue Expander Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Silicone implant Radiation Therapy 5/21/2018 Whole breast: Breast, Lymph nodes Surgery 10/24/2018 Reconstruction (Left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy Verzenio Radiation Therapy External Hormonal Therapy Faslodex (fulvestrant) Local Metastases Radiation therapy: Bone
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May 10, 2022 11:22AM sunshine99 wrote:

That's so interesting, because calcium is one thing I'm NOT supposed to take. My bones were leaching calcium. I don't take a multi either. I do take Vitamin D and magnesium.

my-sunny-side-up.com Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External Local Metastases 5/5/2020 Radiation therapy: Bone Radiation Therapy 5/12/2020 External Local Metastases 5/12/2020 Radiation therapy: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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May 10, 2022 11:38AM beth1965 wrote:

went for dr appointment she told me it showed some cancer has reduced (yay) and in different area stayed the same (skull) (still sorta yay ) and in other area looks like it progressed (wtf)

I did not think this was possible is this normal she said maybe progression is a flare but can’t be sure ye

Looking for hope Surgery 2/2/2012 Lymph node removal; Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Radiation Therapy 8/15/2012 Breast, Lymph nodes Hormonal Therapy 9/28/2012 Faslodex (fulvestrant), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 11/8/2013 Aromasin (exemestane) Local Metastases Radiation therapy: Bone
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May 10, 2022 01:53PM edge_of_no_return wrote:

hello all - is there anyone in this thread who has oligometastatic bone mets and is, or is considering, treating with targeted radiation only and NO meds at all?

Dx 11/2016: right, IDC stage 1 grade 3, ER/PR+, HER2-. lumpectomy + sentinel dissection 1/2017. whole breast radiation only, opted out on meds. NED until 2021. MBC Stage IV Dx 9/2021: L1 vertebrae & possible rib 1. started arimidex & ibrance 12/2021, stopped 5/1/2022, re-evaluating. radiation scheduled for June 2022.
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May 10, 2022 03:05PM sadiesservant wrote:

beth1965, unfortunately, yes, it’s possible. There can be a lot of heterogeneity in the cancer in our bodies with one area responding to a treatment and another area not. I’ve had situations with my bones where everything looked stable elsewhere but I clearly had subtle progression in specific bone mets that were causing some issues.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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May 11, 2022 06:24AM beth1965 wrote:

sadie - it’s such a strange thing our bodies can do. It totally baffled me.Glad to know it’s not just me I appreciate your reply

Looking for hope Surgery 2/2/2012 Lymph node removal; Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Radiation Therapy 8/15/2012 Breast, Lymph nodes Hormonal Therapy 9/28/2012 Faslodex (fulvestrant), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 11/8/2013 Aromasin (exemestane) Local Metastases Radiation therapy: Bone
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May 11, 2022 12:26PM - edited May 11, 2022 12:27PM by sharware

Hi Edge - I initially had a bone met in one spot in 2018 and underwent SBRT radiation to zap it for curative measures. It worked at that time (I did take exemestane also). However, in 2020, four more bone mets showed up and I started on Ibrance, Faslodex and Xgeva injections as a systemic treatment. Currently, I am in discussions with my radiation oncologist to zap these other four bone mets. We'll make the decision soon and I'll let you know how it goes. Good luck to you!

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May 11, 2022 12:35PM sharware wrote:

Hi Sunshine - I am in the same boat with you. My bones were leaching calcium into my bloodstream and it was so bad that my kidneys shut down from hypercalcemia. I was hospitalized in February for several days while many bags of saline solution was run through me. Since then my calcium levels are still just over normal and I’ve had two more bags of saline in the oncologist’s office. I’ve even started watching my calcium intake in foods. I hope you are doing better now. I have bloodwork tomorrow and will know how my calcium is doing then. Good luck to us both!

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May 11, 2022 02:09PM sunnidays wrote:

Hi all, this is probably a technical question and it only occurred to me today I recured with bone mets while I was on tamoxifen I had been on it 7 years when this happened the oncologist put me on letrozole and a CDK46 inhibitor and it is working so far scans again at the end of May, what I want to know is if an antihormonal failed me why does it work when a CDK46 inhibitor is added to it? Plus does anyone know if outcomes are worse if you recure while on anti-hormones?
Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-

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