Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Aug 6, 2022 01:38PM sunnidays wrote:

I'm just wondering at what stage did people get radiation? im still taking over the counter medication which is controlling the pain in my hip but I am taking it almost every day the radiation oncologist said come back when ever I feel I need to, he said he would give me 5 session when I came back. Would there be any advantage in waiting or should I do it now, he also said it lasts about 2 years but I can have it again if I need it.

Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
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Aug 6, 2022 02:26PM sondraf wrote:

Ah i got that too... "we can radiate more if you want". I had no idea what that meant at the time so I just said no and went with the five they gave me. I dont know if that meant my recovery (since radiation continues to work for quite some time, 10-12 weeks after the main event) was slower but it did the trick in the end.

Is your pain getting worse? Or are you just concerned about taking the daily painkillers? Ive had lesions radiated that weren't causing any pain, but to control growth. But I think its a personal issue, if its bothering you enough that you would rather it was zapped, then perhaps its worth a conversation. Did you get it done recently?

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy 11/29/2019 Ibrance (palbociclib) Surgery 11/28/2021 Lymph node removal (Right): Underarm/Axillary; Mastectomy (Right) Targeted Therapy 3/1/2022 Lynparza (olaparib)
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Aug 6, 2022 03:39PM sunnidays wrote:

I got a referral to a radiation oncologist from my oncologist because I thought the pain was getting worse but as soon as I got the referral it stopped go figer , but it's back again if it makes no difference when you have it I might just go back and get it done.

Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
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Aug 6, 2022 05:59PM positive2strong wrote:

Hi All, iI have been off the site for awhile probably trying to live without thinking about c every minute. I recovered from femur rod surgery and still walk with a limp but I was walking and doing things. Just when I planned a few trips for August and Sept my other side has the same pain just started up. Ok so I’m worried as hell …. I need to see those comments from long time survivors. I was on my week off of ibrance and about 8 days before falodex injections and my ibrance delivery was Kanoun 4 days late and then the pain started. My dr appt is a Monday and my injections. I too was told my Mets had shrunk but one of course the one on my side pelvic where I have the pain. Radiologist wanted to do radiation then onc dr said it could just be from me using it so much because of my other side with surgery, etc. I had no pain then. Ok this was Dec 2021 and that was also my last scan . I know I am long overdue my tumor markers were 45 down from 75 when I started. Monday I should get my next tumor market results. I was told they do them every other month. So when in despair I come back to all of you

Trying to b

PostivetoStrong

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy; Lumpectomy (Right); Lymph node removal Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Aug 6, 2022 07:23PM sadiesservant wrote:

Hi sunnidays. I have had numerous radiation treatments for issues related to bone mets. It is not always pain related, some have been to deal with nerve impingement that caused numbness and tingling. Early on I had treatment for pain which included sciatica in my right leg. I could barely stand in the morning with that one.

Ultimately, it’s about determining if it’s impacting your QOL. If it is, you shouldn’t hesitate to have it treated. You do have to keep in mind that there are normal aches and pains to consider. In the case of my hip, the radiation got rid of the sciatica but I still have some pain, probably a combination of osteoarthritis and bone mets. Not everything is cancer. 😊

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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Aug 7, 2022 12:21PM el_tigre wrote:

for radiation decisions it was 1, is it causing pain beyond tolerable by OTC pain meds 2, is it heavy in mets and likely to fracture and 3, is the place a weight bearing area.

I had spine = reason immense pain

I had right pelvis (femoral head) = pain and high risk of fracture due to area supports my wieght.

Both radiation were referrals and I have an open referral with my radiation ONC in case there are others areas we discuss that ight need zaps.

tigre

Dx 6/12/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 9/24/2015 AC + T (Taxol) Radiation Therapy 1/27/2016 Whole breast: Lymph nodes Hormonal Therapy 3/8/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 4/15/2016 Herceptin (trastuzumab) Targeted Therapy 12/9/2021 Kisqali Targeted Therapy 3/12/2022 Verzenio Targeted Therapy 6/1/2022 Piqray (alpelisib) Dx IDC, Other, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-
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Aug 7, 2022 01:39PM li77 wrote:

I had radiation to L2 and S2. They were both large mets, both causing a lot of pain, and prone to fracture. L2 actually ended up fracturing during radiation. There was so much cancer in that vertebrae that when the rads started working, the vertebrae just collapsed. It was awful, I can’t even describe, ended up admitted to the hospital for pain management. So I would definitely recommend having rads to prevent a fracture.


Lauren, De Novo Stage IV diagnosis at 44, January 2022. Mets to spine, ribs, iliac bones. Former attorney, current smart ass, mom to an awesome 10-year-old. F this shit. Hormonal Therapy 2/9/2022 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/14/2022 Other part Targeted Therapy 4/25/2022 Ibrance (palbociclib) Hormonal Therapy 4/25/2022 Femara (letrozole) Dx IDC, Left, 4cm, Stage IV, Grade 2, ER+/PR+, HER2-
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Aug 10, 2022 03:13PM mamadetres wrote:

Carol,

I was told by MD Anderson, that because I was in CA, I was not able to/allowed to have a 2nd opinion via a virtual visit. It had to be in-person. I am able to have virtual visits with my health care providers in CA.

<3

Chemotherapy 5/5/2015
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Aug 10, 2022 08:15PM sunshine99 wrote:

mamadetres, that makes sense. I didn't realize you were talking about a second opinion. :)

Carol

my-sunny-side-up.com Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External Local Metastases 5/5/2020 Radiation therapy: Bone Radiation Therapy 5/12/2020 External Local Metastases 5/12/2020 Radiation therapy: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Aug 12, 2022 08:22AM merkmurf wrote:

I am stage 3 (left side) stage 1 (right side) I had dmx, chemo, rads, and arimidex & Verzenio. Just had a pet scan and left side didn’t get clear margins after cancer. So PET scan showed cancer may still be there at chest/chest wall. Im still taking my meds, but have a referral to work with an integrative care doc also. Im juicing at least 40 oz of carrot juice a day and doing SQ1 protocol as much as possible, but minus supplements until I speak to someone who knows what will complement my meds.

Merkmurf Targeted Therapy 12/9/2021 Verzenio

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