Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
Log in to post a reply

Page 2717 of 2,719 (27,184 results)

Log in to post a reply

Sep 21, 2022 08:19AM el_tigre wrote:

sadiesservant - so sorry to hear about that. I hope the next line kicks it back for you. My first 2 lines of treatment failed and new this third line does not look promising. My next up is taxol to knock it back and maybe xeloda or another drug thereafter.

I was not sure if the numbness was mets or zometa since zometa has the stigma of jaw issues. Was your radiation tolerable to the head/neck area? I only have had radiation to mid spine and pelvis. I have had an ultra sound to the neck lymph nodes and the sound was crazy humming that the instrument emitted.

tigre

Dx 6/12/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 9/24/2015 AC + T (Taxol) Radiation Therapy 1/27/2016 Whole breast: Lymph nodes Hormonal Therapy 3/8/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 4/15/2016 Herceptin (trastuzumab) Targeted Therapy 12/9/2021 Kisqali Targeted Therapy 3/12/2022 Verzenio Targeted Therapy 6/1/2022 Piqray (alpelisib) Dx IDC, Other, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-
Log in to post a reply

Sep 21, 2022 12:22PM sadiesservant wrote:

I was nervous about the rads to my neck and skull as the list of possible side effects was a bit daunting but I found it very tolerable. I had little pain or discomfort. The biggest issue was losing my sense of taste. It’s so crappy as I’m a “foodie” but, after about six weeks, it was back to normal. 🥳

I’ve been pretty fortunate that none of the radiation treatments have caused major symptoms. My last dance to treat the lesion in my c/t spine gave me a sore throat for a week or two but again, tolerable.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
Log in to post a reply

Sep 22, 2022 03:12AM - edited Sep 22, 2022 01:21PM by anx789

hello, today is not a good day. I had open bone biopsy today and unfortunately initial diagnosis is cancer involving 20 cm long of fibula. Ortho said it’s very bad and he’s recommending radiation. I was told that radiation is done on the aggressiven one. Any thoughts?

Dx 9/25/2018, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 22, 2022 07:10PM cyathea wrote:

anx789, it’s sad and concerning when we hear news like this. ((Hugs)) Radiation can be used to help pain. It’s not just used for “bad” cases. I had rads to my spine. It was very scary, but it ended up not being bad at all. I hope it helps you as well

Dx 6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2- Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Chemotherapy 8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 10/9/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 10/10/2019 Herceptin (trastuzumab) Surgery 3/18/2020 Lymph node removal; Lymph node removal (Left): Sentinel, Underarm/Axillary; Lymph node removal (Right): Sentinel, Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 4/16/2020 Other Radiation Therapy 6/1/2020 3DCRT: Breast, Lymph nodes Local Metastases 6/1/2020 Radiation therapy: Bone Hormonal Therapy 8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Sep 22, 2022 07:37PM emac877 wrote:

Anx789 - I'm sorry, that kind of news is always hard to hear. I agree with Cyathea, I'm not clear what the radiologist means by "bad". Typically radiation is done for palliative pain control and I would imagine your doctor will have other treatments more specific to slowing or treating the cancer now that they know what they are dealing with.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 3/22/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/11/2019 Radiation Therapy 12/23/2019 External Local Metastases 12/23/2019 Radiation therapy: Bone Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 6/22/2021 Faslodex (fulvestrant)
Log in to post a reply

Sep 22, 2022 08:47PM nkb wrote:

So Sorry Anx789- what a shock! I also had radiation to some areas and they didn't show up again.

It is so important what people say- but, important to not fracture your leg- so many more complications and misery with that-Hoping the zaps will be easy and effective-

keep us posted

Dx 12/2011, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, 34/40 nodes, ER+/PR+, HER2- Surgery 2/4/2012 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 2/28/2012 AC + T (Taxol) Radiation Therapy 9/11/2012 Hormonal Therapy 10/21/2012 Arimidex (anastrozole) Dx 5/2017, ILC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 6/1/2017 Faslodex (fulvestrant) Targeted Therapy 6/1/2017 Ibrance (palbociclib) Targeted Therapy 3/13/2019 Afinitor (everolimus) Hormonal Therapy 3/13/2019 Aromasin (exemestane) Chemotherapy 3/10/2020 Xeloda (capecitabine) Targeted Therapy 9/13/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
Log in to post a reply

Sep 22, 2022 09:40PM anx789 wrote:

cyathea & nkb. Is radiation your first treatment on those areas?

Emac, Ortho Onc thinks it’s very aggressive because is spreads to 20 cm of bone (inside the bone). Once my main ONC receives the final pathology we can discuss treatment



Dx 9/25/2018, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 23, 2022 12:45AM nkb wrote:

Anx789- I had 5 zaps to R hip first- all other cancer was controlled by Xeloda. About 7 months later I had several new spots on L side and they each got one zap and I was able to continue Xeloda another 8 months. actually my PET shows a continued good response in those areas, but, my TMs have gone up dramatically and I have bone marrow mets also- so we moved on to Enhertu-

Dx 12/2011, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, 34/40 nodes, ER+/PR+, HER2- Surgery 2/4/2012 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 2/28/2012 AC + T (Taxol) Radiation Therapy 9/11/2012 Hormonal Therapy 10/21/2012 Arimidex (anastrozole) Dx 5/2017, ILC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 6/1/2017 Faslodex (fulvestrant) Targeted Therapy 6/1/2017 Ibrance (palbociclib) Targeted Therapy 3/13/2019 Afinitor (everolimus) Hormonal Therapy 3/13/2019 Aromasin (exemestane) Chemotherapy 3/10/2020 Xeloda (capecitabine) Targeted Therapy 9/13/2022 Enhertu (fam-trastuzumab deruxtecan-nxki)
Log in to post a reply

Sep 23, 2022 10:14PM cyathea wrote:

anx789, yes, I’ve only had two “zaps” to my spine. Chemo took care of the bone lesions, but my onc wanted to treat aggressively so I did radiation as well. So far, I have not had progression, so I feel very lucky. I’m hoping my bone scan next week will have good results so that maybe I can switch to annual scans instead of every 6 months

Dx 6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2- Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Chemotherapy 8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 10/9/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 10/10/2019 Herceptin (trastuzumab) Surgery 3/18/2020 Lymph node removal; Lymph node removal (Left): Sentinel, Underarm/Axillary; Lymph node removal (Right): Sentinel, Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 4/16/2020 Other Radiation Therapy 6/1/2020 3DCRT: Breast, Lymph nodes Local Metastases 6/1/2020 Radiation therapy: Bone Hormonal Therapy 8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Sep 25, 2022 11:05AM dutchiris wrote:

I had a biopsy on Friday. I get results on Wednesday. I anticipate my next treatment will be IV. Radiation oncologist recommended radiation to hip, pelvis, and sacrum. I have some swelling in the area of my sternal notch and right side of my neck. I am anxious not being on any treatment right now.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/22/2013 AC + T (Taxol) Surgery 6/19/2013 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right) Hormonal Therapy 7/2/2013 Radiation Therapy 7/15/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 8/10/2019 Femara (letrozole) Targeted Therapy 8/17/2019 Ibrance (palbociclib) Dx 4/7/2021, IDC, Stage IV, metastasized to other, Grade 3, ER-/PR+, HER2- Chemotherapy 5/14/2021 Xeloda (capecitabine) Targeted Therapy 6/20/2022 Piqray (alpelisib) Hormonal Therapy 6/20/2022 Faslodex (fulvestrant)

Page 2717 of 2,719 (27,184 results)

Scroll to top button