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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Bone Mets Thread

Topic: Bone Mets Thread

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Jun 22, 2012 04:09AM - edited Oct 31, 2012 03:07AM by Jac53

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

This is an easily readable Bone Mets Q&As from the Bone & Cancer Foundation:  http://www.boneandcancerfoundation.org/pdfs/Breast_Cancer_Q+A.pdf

Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jun 17, 2017 02:23PM - edited Jun 17, 2017 04:38PM by Micmel

Congrats Babs!!! Such a happy thing to hear. I am thrilled for you. Lita~ there you go again rocking that hat, looks like a lovely place to be, cheers to you holding your drink. I hope you enjoy every single second. You're amazing.

Here4support~ your mother is very lucky to have a sweet loving daughter. Just take a deep breath and help her realize she has her support system in place and she is safely with you all. She's not going anywhere anytime soon. It's just going to be what they call a battle. Lita is one of those ladies I was talking about when i meant good information and experience, my mets in my back hurt also, I take 5mg Percocet a few times and a day to help take the edge off and it works great, she is right though, they do hurt. But then again life hurts. Remember, you , that precious baby and her DH (your dad) Is her world, and as long as you support her and she knows you're there every day, she will take the time she needs to adjust to the shock. We are all here for you. Big hugs ~M~

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 11/6/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jun 17, 2017 03:41PM IntoLight wrote:

Babs, congratulations! Grandbabies are one of the things that keep me fighting.

Star, I was dx with stage IV from the beginning with bone and liver mets, and have never had chemo. But they started me on targeted therapy and I am doing very well with my mets resolved now, 13 mos later. Yes, ask a lot of questions. What is the goal? I think targeted therapy for some bc is a new approach from years past because it gives good results with minimal ses and raises the living standard. I questioned it at first also because I didn't know anything, but I am now thankful for this approach.

Chris

Shining the light of God's grace to the world. Dx 5/20/2016, Left, 3cm, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jun 17, 2017 07:39PM - edited Jun 17, 2017 07:41PM by Lita57

Went to the Monterey Bay Aquarium and got this sea otter for my dd. DH and I got to watch them being fed. Couldn't get any good shots of that however, too many people in the way.

This little guy's name is "Nemmy" because he's holding a sea anemone.

Stage IV Occult, Amorphic right from the gate. New Brain Mets Aug 2017. I've been dragged into an arranged marriage that I didn't agree to, & divorce is totally off the table now that I'm married to Mr. Cancer. STAGE IV LIVES MATTER! Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/26/2016 External: Bone Targeted Therapy 5/15/2016 Chemotherapy 5/22/2016 Xeloda (capecitabine) Radiation Therapy 4/20/2017 External: Bone Dx 8/23/2017, IDC, 5cm, Stage IV, metastasized to brain, Grade 3, ER+/PR+, HER2-
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Jun 17, 2017 09:20PM Bigbhome wrote:

Looks like so much fun, Lita! Love Monterey!

C

Dx 5/2012, IBC, Left, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- Radiation Therapy 4/16/2017 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Ibrance (palbociclib)
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Jun 17, 2017 09:20PM Bigbhome wrote:

Looks like so much fun, Lita! Love Monterey!

C

Dx 5/2012, IBC, Left, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- Radiation Therapy 4/16/2017 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Ibrance (palbociclib)
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Jun 18, 2017 09:11PM MJHJAN1014 wrote:

Anyone know about Momallthetime and Dani? Haven't seen a post in a while and I feel concerned.

Love to all my MBC sisters, MJH

Dx 1/10/2014, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 1/29/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 2/9/2014 Breast Chemotherapy 3/4/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 6/10/2016, IDC, Right, 1cm, Stage IV, metastasized to bone/liver, Grade 3, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jun 18, 2017 11:03PM artistatheart wrote:

MJH. Very good question......MOM?

Dx 7/22/2015, ILC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 8/10/2015 Femara (letrozole) Targeted Therapy 8/25/2015 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jun 18, 2017 11:36PM zarovka wrote:

Last post June 6. Mom was busy vetting trials for Dani at that time ... but that's 12 days ago. MOM?

>Z<

PM me if you would like to join a BCO Stage IV FitBit Community. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/17/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Jun 19, 2017 07:01AM babs6287 wrote:

Mom has been running with Dani to all the apptments prêtrial. She's been crazy busy. I'll tell her you're all asking about them.

Babs

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/24/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/21/2012 AC + T (Taxol) Radiation Therapy 1/21/2013 Breast, Lymph nodes Hormonal Therapy 3/22/2013 Aromasin (exemestane) Surgery 8/29/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/30/2013 Reconstruction (left) Surgery 1/28/2014 Reconstruction (left) Surgery 5/18/2014 Reconstruction (left) Surgery 10/17/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/17/2015 Femara (letrozole) Targeted Therapy 3/14/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/24/2015 Chemotherapy 1/1/2016 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/27/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/10/2017
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Jun 19, 2017 07:13AM Lynnwood1960 wrote:

I was wondering about her too!

Dx 4/6/2015, ILC, Right, 3cm, Stage IV, Grade 2, 0/12 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib)
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Jun 19, 2017 03:36PM babs6287 wrote:

Spoke with Mom. She's just been busy with Dani. Studies are a hugh time commitment!!!!

Got back my scan results. More larger and hotter spots in liver and thoracic areas and spine too. Wish something would work for a longer time. Onto Halaven so will lose my hair that was finally growing back. It will be a hot summer under this fricking wig. But I need to be a part of my grandson to be in Decembers life so onward and upward!

Any input in this new chemo would be appreciated!!!!

My 2 granddaughters from yesterday!!!

Babs


Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/24/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/21/2012 AC + T (Taxol) Radiation Therapy 1/21/2013 Breast, Lymph nodes Hormonal Therapy 3/22/2013 Aromasin (exemestane) Surgery 8/29/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/30/2013 Reconstruction (left) Surgery 1/28/2014 Reconstruction (left) Surgery 5/18/2014 Reconstruction (left) Surgery 10/17/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/17/2015 Femara (letrozole) Targeted Therapy 3/14/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/24/2015 Chemotherapy 1/1/2016 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/27/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/10/2017
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Jun 19, 2017 03:56PM Bigbhome wrote:

Babe - Your granddaughters are beautiful! Thanks for the pics!

I'm so so sorry to hear your test results. I have no knowledge of Halavan. I am winging special prayers your way! Of course you will be here for grandson!

Thanks for the update on Mom.

Hugs and prayers

C

Dx 5/2012, IBC, Left, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- Radiation Therapy 4/16/2017 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Ibrance (palbociclib)
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Jun 19, 2017 03:57PM - edited Jun 19, 2017 03:57PM by Bigbhome

This Post was deleted by Bigbhome.
Dx 5/2012, IBC, Left, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- Radiation Therapy 4/16/2017 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Ibrance (palbociclib)
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Jun 19, 2017 03:57PM 50sgirl wrote:

Babs, I am so sorry to hear about your scan results. I, too, hope they will find the magic bullet that will attack those cancer cells in your body for a long time. I have no information or advice about Halavan, but I think there was a thread about it a while back. I am keeping you in my prayers. That grandson to be will enjoy being in your warm embrace when he arrives in December. Your granddaughters are lovely. It looks like they were having lots of fun on that porch. How old are they?

Hugs from, Lynne

Dx 6/5/2015, IDC, Left, 3cm, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/25/2015 Arimidex (anastrozole) Dx 8/9/2016, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib)
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Jun 19, 2017 03:59PM AnimalCrackers wrote:

Hi Babs,

so sorry to hear you are moving on to another treatment.  You've got to catch a break now!  I don't know anything about Halaven but there is a thread called "Halaven - Day 1" that may be of help to you.  It was started back in 2010 but I see that it is an active thread and there are very recent posts.   There are some people (Ebru and Cling for example) on there who we know from other threads.  We're all here with positive vibes for you!  You will see your grandson in December and beyond!  Hang in there.  Stay strong.  You're breakthrough is on the horizon!  ((Hugs))

Cathy

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis (2014). Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial 5/18/17 LSZ102 (oral SERD) and Kisqali (Ribociclib). Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/5/2016 Femara (letrozole) Targeted Therapy 1/5/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/18/2017 Targeted Therapy 5/18/2017 Kisqali
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Jun 19, 2017 04:07PM babs6287 wrote:

Thank you ladies!!!! What would I do wo you all

Lynne. The girls are 4 1/2 & 6 1/2 and are pure joy. I don't see them often due a nasty DIL and stupid son but when I do I'm in heaven!!!!

I know it will be so different with my dd and her child. That's why I'm so excited about this baby!

Babs

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/24/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/21/2012 AC + T (Taxol) Radiation Therapy 1/21/2013 Breast, Lymph nodes Hormonal Therapy 3/22/2013 Aromasin (exemestane) Surgery 8/29/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/30/2013 Reconstruction (left) Surgery 1/28/2014 Reconstruction (left) Surgery 5/18/2014 Reconstruction (left) Surgery 10/17/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/17/2015 Femara (letrozole) Targeted Therapy 3/14/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/24/2015 Chemotherapy 1/1/2016 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/27/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/10/2017
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Jun 19, 2017 05:40PM Micmel wrote:

Babs~ Gorgeous pumpkins!! Lovely lovely granddaughters! God bless you and you're family. Am so sorry that you have to change your treatment. Good things have to be coming your way. Prayers to you. ~M~

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 11/6/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jun 20, 2017 12:02AM cling wrote:

Babs, I just finished my second shot of second round of Halaven today. Jennifer has done this treatment plans twice and is still on Halaven. It may be Ebru's next tx. Come to visit at "Halaven - Day 1" thread. It is an rather easy and kinder chemo, at least for me. I only had digestive tracts SEs. After thinning hair for 28 days, I still have enough to cover my head. Hope it will be like nurse Evan said, thinking but not bold. It will hold you until new grand boy time.

Dx 9/7/2010, IDC, 4cm, 12/12 nodes, ER+/PR-, HER2- Dx 6/5/2014, Stage IV, mets
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Jun 20, 2017 05:31AM melmcbee wrote:

Babs I am sending prayers and healing thoughts to you. Hug

Melanie. mentor smooth round high profile gel 700 rt 550 lt with fat grafting 5/30/2013 Dx 6/24/2012, ILC, 2cm, Stage IIIA, Grade 2, 8/15 nodes, ER+/PR+, HER2- Surgery 7/8/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Surgery 8/8/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/22/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/8/2013 Breast, Lymph nodes Surgery 5/29/2013 Reconstruction (left); Reconstruction (right) Surgery 12/3/2013 Reconstruction (right) Dx 3/29/2017, ILC, Stage IV, metastasized to bone, ER+/PR- Targeted Therapy 5/15/2017 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jun 20, 2017 06:23AM babs6287 wrote:

Thank you all. I will head over to the Halaven thread as I have my first treatment this Wednesday

Bab

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/24/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/21/2012 AC + T (Taxol) Radiation Therapy 1/21/2013 Breast, Lymph nodes Hormonal Therapy 3/22/2013 Aromasin (exemestane) Surgery 8/29/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/30/2013 Reconstruction (left) Surgery 1/28/2014 Reconstruction (left) Surgery 5/18/2014 Reconstruction (left) Surgery 10/17/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/17/2015 Femara (letrozole) Targeted Therapy 3/14/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/24/2015 Chemotherapy 1/1/2016 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/27/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/10/2017
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Jun 20, 2017 09:21AM GrannyD3 wrote:

Babs, your granddaughters are sooooo cute. Praying your new treatment will give you many years of NED!

Diane

Dx 6/2014, Right, 1cm, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant) Surgery Lymph node removal Hormonal Therapy Femara (letrozole) Chemotherapy Xeloda (capecitabine)
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Jun 20, 2017 12:34PM IntoLight wrote:

Babs, your granddaughters are adorable. I know they are a blessing. Grandsons are also amazing Smileand I know you will be hugging and kissing yours in December. I will pray for your new treatment that it will go easy and well.

Shining the light of God's grace to the world. Dx 5/20/2016, Left, 3cm, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jun 20, 2017 05:30PM - edited Jun 20, 2017 05:33PM by dlb823

Thrilled to see the news about a grandson on the way, Babs! And your granddaughters are adorable. Also... thinking about your med situation... I know you're @ MSK... Have they done any genomic or drug sensitivity testing? Surely there is something out there that will yield better outcomes than you've had with recent choices. It would be an answer to prayer if it's Halavan!

PS...we're away, so once again I'm waybehind on reading, not ignoring others... just happened to catch Babs' posts.

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Jun 20, 2017 07:07PM babs6287 wrote:

Deanna I had genome testing. There is nothing for me now except a study of 3 drugs in combo- two of which already failed me so the MO felt it wasnta good choice. And they do NOT believe in drug sensitivity testing at all. They feel testing in a Petrie dish really doesn't translate. Not sure I agree! The more info the better!!!

Babs

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/24/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/21/2012 AC + T (Taxol) Radiation Therapy 1/21/2013 Breast, Lymph nodes Hormonal Therapy 3/22/2013 Aromasin (exemestane) Surgery 8/29/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/30/2013 Reconstruction (left) Surgery 1/28/2014 Reconstruction (left) Surgery 5/18/2014 Reconstruction (left) Surgery 10/17/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/17/2015 Femara (letrozole) Targeted Therapy 3/14/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/24/2015 Chemotherapy 1/1/2016 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/27/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/10/2017
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Jun 20, 2017 10:02PM theziz wrote:

Babs I'm praying for you, I feel like we are in the same boat. So many drugs have failed me and today I had my blood worked on and I'm a nervous wreck.

Congratulations on your beautiful granddaughters, they are beautiful.

Hi to everyone.

Meanwhile I'm still loosing weight and I don't know what to do anymore, I don't even like to go out anymore.

Zi

Dx 9/17/2013, IDC, Right, 3cm, Stage IIB, Grade 2, 13/17 nodes, ER+/PR+, HER2- (FISH) Dx 6/14/2015, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 13/17 nodes, ER+/PR-, HER2- Chemotherapy Xeloda (capecitabine) Chemotherapy Targeted Therapy Ibrance (palbociclib) Chemotherapy Navelbine (vinorelbine)
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Jun 21, 2017 12:13AM artistatheart wrote:

Oh babs those girls are so cute, the best ages for grandma! How can a DIL be so shortsighted as to be nasty and stingy with the grandkids. She is only robbing them...Go halaven, kick those mets butt!

Dx 7/22/2015, ILC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 8/10/2015 Femara (letrozole) Targeted Therapy 8/25/2015 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jun 21, 2017 12:54PM IntoLight wrote:

Zi, I am praying your bloodwork shows some progress and they can find the answer for you. The waiting for results is so hard!

Tomorrow I go in for my Zometa infusion. I am hoping I tolerate it well as we plan on attending the fair on Friday...

Shining the light of God's grace to the world. Dx 5/20/2016, Left, 3cm, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jun 21, 2017 02:11PM Lita57 wrote:

IntoLight...here's what I do so my Zometa won't cause me intolerable SEs:

1. Drink AT LEAST 2 quarts of water today, and as much water as you can b4 you go in.

2. Don't eat anything spicy, greasy, heavy today/tonight or tomorrow morning b4 you go in. (I usually have a couple of eggs and toast for b'fast, a light snack of fruit (usually a banana) and crackers for lunch, and either chicken/rice soup or chicken/noodle soup for dinner)

3. This is really important: Take a Benadryl antihistamine tablet ONE HOUR b4 your appointment so the drug will be in your system at infusion time. (Ask for extra saline at the end of the infusion time, too.)

4. Continue to drink water AFTER the infusion and eat lightly.

5. Friday continue to eat lightly (funnel cakes and corn dogs "could" upset you if you don't have a cast-iron stomach) and stay hydrated...basically eat as tho you have the stomach flu for a couple of days after the infusion so your body can accept it with no disturbances.

I did NOT do any of this for my 1st Zometa infusion, and boy did I regret it! But no one TOLD me how to prepare for it until after the fact. I felt like I had been hit by a truck the 1st day after, and then the diarrhea hit the 2nd day after.

Since I've followed the above 5 things, I've never had any problems since, and hopefully you won't either.

Remember, Zometa is actually used in its "full strength" form for certain forms of BONE CANCER. The infusions they give breast cancer patients are weaker and are only 15-20 min infusions as opposed to the usual ones that take hours.

Good luck!

Lita




Stage IV Occult, Amorphic right from the gate. New Brain Mets Aug 2017. I've been dragged into an arranged marriage that I didn't agree to, & divorce is totally off the table now that I'm married to Mr. Cancer. STAGE IV LIVES MATTER! Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/26/2016 External: Bone Targeted Therapy 5/15/2016 Chemotherapy 5/22/2016 Xeloda (capecitabine) Radiation Therapy 4/20/2017 External: Bone Dx 8/23/2017, IDC, 5cm, Stage IV, metastasized to brain, Grade 3, ER+/PR+, HER2-
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Jun 21, 2017 06:48PM babs6287 wrote:

Just had my first Halaven. Took no time. Biggest issue was finding a vein to use. I'm running out !!!! Will see what SEs I have!

Babs

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/24/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/21/2012 AC + T (Taxol) Radiation Therapy 1/21/2013 Breast, Lymph nodes Hormonal Therapy 3/22/2013 Aromasin (exemestane) Surgery 8/29/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/30/2013 Reconstruction (left) Surgery 1/28/2014 Reconstruction (left) Surgery 5/18/2014 Reconstruction (left) Surgery 10/17/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/17/2015 Femara (letrozole) Targeted Therapy 3/14/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/24/2015 Chemotherapy 1/1/2016 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/27/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/10/2017
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Jun 21, 2017 06:57PM melmcbee wrote:

Hey Babs. Im glad it was quick for you. Have you already had a port. If you cant have that maybe they can put a Picc line in. That would solve the problem of running out of veins. Prayers and hugs. I just know the Halaven will nip it in the bud

Melanie. mentor smooth round high profile gel 700 rt 550 lt with fat grafting 5/30/2013 Dx 6/24/2012, ILC, 2cm, Stage IIIA, Grade 2, 8/15 nodes, ER+/PR+, HER2- Surgery 7/8/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Surgery 8/8/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/22/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/8/2013 Breast, Lymph nodes Surgery 5/29/2013 Reconstruction (left); Reconstruction (right) Surgery 12/3/2013 Reconstruction (right) Dx 3/29/2017, ILC, Stage IV, metastasized to bone, ER+/PR- Targeted Therapy 5/15/2017 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)

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