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Jul 18, 2017 04:42PM
Jul 18, 2017 04:49PM
OMG, Artist! What a bunch of crap!
Is it because you live closer to "the sticks" than we do, and that's what hick MOs do up there? That's totally ridiculous!
What you do next will only be your SECOND LINE OF Tx after the AI's Femara and Faslodex, for God's sake. As you can tell, I am absolutely FURIOUS on your behalf.
Even my MO at Kaiser (which has good and bad feedback, as every place does) has a better outlook for me than yours...and you know how extensive my tumor load was a little over a year ago. She and I haven't even tried Aromatase Inhibitors yet. She has high hopes for me even with all my organ, bone and soft tissue mets. She declared, the last time I saw her a few weeks ago, that if I am stable (accounting for even a teensy bit more bone progression, because that seems to be what my body does with cancer and Xeloda) we're gonna try a course of AI's first, THEN go for the heavy duty IV stuff. She wants me to have a break and be able to do a little more traveling and live life b4 saddling me with courses of Halaven, Taxol, Abraxane, etc. She says we have PLENTY of arrows left in the quiver. Sounds like your MO thinks there are practically no options left, and that's just not true!
I go to a St 4 support group in Palo Alto twice a month, and there are women who have had MBC for MORE THAN 7 YEARS! Some of them have gone thru several lines of Tx already, and some of them have successfully battled ascites, and are still here to tell the tale. One of the things these veteran women tell me is to go and get a second opinion either at Stanford Univ or UCSF. These two university medical centers are the best in Northern California, and YOU deserve the best, Artist.
As much as I love Dr. Leonard "Bones" McCoy from Star Trek, he used to irritate me every time he would say, "Well, I don't know, Jim. I'm just a country doctor!" And this is what your MO is reminding me of. She's not thinking two steps ahead at all.
As Z says, PLEASE advocate for yourself and get another opinion.
Stage IV De Novo, Occult, Amorphic. New Brain Mets Aug 2017. Now on Gemzar. I've been dragged into an arranged marriage I didn't agree to. Divorce is off the table now that I'm married to Mr. Cancer. Grateful for however many days I have left.
4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2-
4/26/2016 External: Bone
5/22/2016 Xeloda (capecitabine)
4/20/2017 External: Bone
8/23/2017, IDC, 5cm, Stage IV, metastasized to brain, Grade 3, ER+/PR+, HER2-
9/5/2017 External: Brain
10/10/2017 Taxol (paclitaxel)