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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by Moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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May 26, 2021 06:46PM BevJen wrote:

(Cross posted with xeloda thread)

Hello to all,

Well, I am home from the rehab hospital. I've been there since May 1, after my hospitalization at Hopkins and subsequent surgery on my R hip (cancer and arthritis ate through my bones there) and on my L hip (same scenario, just not as bad.) I spoke with my oncologist today and here's the plan. I will see my surgeon next week and talk to my radiation oncologist. We will couple that with xeloda, which is one of the few meds that she says can be used with radiation. For now, we will not be pursuing any other local treatment, such as for my liver. She wants me on systemic treatment ASAP.

Fingers crossed that xeloda goes smoothly. Even though I spent 3 weeks in the rehab hospital, I'm still a mess. Walking with a walker, lots of precautions, etc. to enable the hip to heal.


Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
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May 26, 2021 07:50PM NicoleRod wrote:

So happy you are home and back here :)

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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May 26, 2021 09:11PM KBL wrote:

BevJen, so glad you’ve finally made it home. I hope the healing continues and speeds up for you.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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May 27, 2021 11:19AM BevJen wrote:

Thanks Nicole and KBL. It's good to be home, but it makes me realize how much more PT I am going to need to get better, though. Home health is coming here later today to assess my situation and to set up in home physical therapy for me.

Interestingly, when I talked with my MO yesterday, she doesn't want me to do any local liver treatment at this time. Her reasoning is that we had been focusing on local liver treatment in the past (three microwave ablations) and in the meantime, my bone mets had crept up on us in a big way and we really weren't thinking those were the ones that needed to be watched. So she wants to do systemic treatment until we can perhaps slow the cancer down and then we'll revisit local treatment if appropriate. Right now, we are planning on starting xeloda along with radiation to my hips that were just operated on and then we'll figure it out from there.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
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May 27, 2021 11:28AM JoynerL wrote:

Good luck, Bev!!

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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May 27, 2021 11:44AM NicoleRod wrote:

Bev....I am a little confused about Dr. S's response.. I mean I agree about wanting a systemic therapy for all the cancer (bone mets as well as liver) however...the way it sounds in your post is like she hasn't been trying with systemic therapy to do that...when in fact she was with Ibrance..and kept insisting (even when you wanted to move on) to stay on it?? Now she is saying no to Y90 or another local therapy? I have to say I don't agree...AGAIN I agree that we all need a systemic therapy BUT...if our tumor burden in our liver becomes to great or we start getting tumors in bile duct..that can lead to liver failure...so I would want the local therapy and also a systemic.....now, If you liver can tolerate that.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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May 27, 2021 12:06PM Sadiesservant wrote:

Glad to hear you are home Bev. Hopefully physio will get you back in full stride as quickly as possible. From my perspective, I think you MO is laying out a good strategy. From my understanding, local liver treatments require you to be off most systemic therapies and you need to get those bone mets under control. I hope Madame X is the ticket.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin)
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May 27, 2021 12:17PM candy-678 wrote:

Wishing you well BevJen. Do the home PT and kick the cancer with Madame X.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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May 27, 2021 12:26PM buttonsmachine wrote:

BevJen, I'm glad you were able to return home. I found Xeloda to be very tolerable, especially after a slight dose reduction. I hope it's the same for you!

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 4/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/15/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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May 27, 2021 12:47PM moth wrote:

BevJen, glad you're home and have a good plan. I think with multiple mets sites it does become one of those spinning plates acts & you have to focus on the one causing the most trouble right now. With luck systemic tx will knock down all the sites. Fingers crossed for speedy improvements with strength & mobility!

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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May 27, 2021 04:40PM BevJen wrote:

Thanks to all for your well wishes. I like Moth's analogy of spinning plates, and I think that's what my MO is doing. The last two microwave ablations took a LOT out of me, and she has expressed concern about that and also about how much the surgeries have taken out of me, and so I think she's looking right now for a treatment that she can titrate down to minimize side effects while I do radiation to my hips.

I will look into local liver treatments again -- specifically y90 -- once we get through the radiation and see how things are going. I never expected to have bone mets rear their ugly head like this, and it's pretty scary. So I think all my MO is trying to do is to get ahold of those and then we'll revisit everything.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
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May 28, 2021 09:38AM NicoleRod wrote:

so I just finished day 8 of 10 radiation forsacrum mets.....apparently if I dint start feeling better soon...(bc this is around the time I should be feeling relief he said) then my cancer is resistant to radiation....I am feeling better than when I first went but there are sometimes where it is still hurting really bad...the one improvement is I am not really limping...

I am feeling so discouraged right now. ...and scared. I mean if the radiation doesn't work...well I'm basically done. 😔

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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May 28, 2021 10:09AM SondraF wrote:

Nicole, the radiation will continue to work on thr tumor for weeks after the final session. It took a few weeks for my sacral pain to finally fade, but I took fewer and fewer painkillers over time until I didn't need them anymore. The initial sessions did cut the level of pain somewhat but it wasn't a miraculous jump off the table I was hoping it would be.

I'd give it a bit more time.

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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May 28, 2021 11:00AM Moderators wrote:

Just posting in case anyone may be interested:

AstraZeneca is looking for photos and and quotes to be posted on their website, Beyond Pink: Sharing Our Metastatic Breast Cancer Story

All you would need to do is:

1. sign release form

2. select a photo to share

3. write quote (Per AstraZeneca: The quote can be anything you want to share with the community to inspire others, what has given you strength, what you hope for the future, etc. Please no mention of companies or treatments.)

(No video recording at this point).

We only have till Tuesday, June 2, so if you're interested in being featured, please submit quickly Medicating

Please email Michelle.Cosgrove1@astrazeneca.com for the release form.

Thanks so much !!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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May 28, 2021 11:44AM NicoleRod wrote:

Sondra Thank you. I hope more people will chime in as well..

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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May 28, 2021 05:39PM ts542001 wrote:

hi NicoleRod - i understand that feeling of hopelessness when you feel that the radiation isnt working. it takes time to work, i wouldnt feel that the tumor is radiation resistant until a few weeks after you finish and you dont have any pain relief. breast cancer is extremely sensitive to radiaion. it's not instantaneous it happens slowly, all of a sudden you realize that the pain is less. you cant look at it everyday and say it's not better than the day before. you need to look at how you were feeling when you first started the rads and how are you feeling now (after 8 treatments.). sounds like it is working, but i do understand when you have a lot of pain and they tell you you will feel better by the 8th treatment and you still have pain it is frustrating, you get so hopeful that the pain will be gone and then it's not.. hang in there. and you said that already you arent limping. that's a good sign that it's working.

keep thinking positive thoughts, i'm sure that you will continue to feel better and better. and like sondra wrote the radiation continues to work for a long time after you finish treatment.

Dx 3/2003, DCIS/IDC, Both breasts, <1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/14/2003 Lumpectomy: Left, Right Dx 3/13/2019, IDC, Left, 1cm, Stage IB, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 4/8/2019 Lumpectomy; Lymph node removal: Sentinel Hormonal Therapy Aromasin (exemestane) Chemotherapy CMF Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Immunotherapy Chemotherapy CMF Surgery Radiation Therapy
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May 28, 2021 07:07PM NicoleRod wrote:

ts...thank you... actually it was the RO that made me feel that way.l...he was like ...passive aggressive... first he said... "Well you should be feeling some relief around now" then he said something to the effect of "well maybe by next week" ..then I asked...is there a change it wont work what would that mean...he said "that would mean your cancer is resistant to the radiation."....

:(

I will hold on to hope!!!

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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May 29, 2021 01:52AM SondraF wrote:

The MO was surprised I was still on crutches after radiation too... I think if they haven't experienced this or are used to mostly early stage women or small mets radiation they aren't going to understand fully the level of pain and impact. It's one thing to see it on a screen and know the theory, another to live it.

Ts is right, the fact you aren't limping is a great sign. That was the first thing for me to go. My first rads session I needed partner and uber both ways, by third I was able to take the bus with him one way, by fifth I did it myself. I was still in pain, but it was not as high and I could at least move. Three weeks later we took the bus to the movies, sure, with crutches but not pain so intolerable I couldnt handle the five hour outing.

It'll get better just hang in there!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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May 29, 2021 03:22AM Maaaki wrote:

Nicole, I had sbrt to spine, which might be little different. But radiation generally works for a long time. I did not have pain before radiation but actually about four months after. I thought I have progression and the scan was better. The suv on PET CT went down very slowly and it still goes down every PeT I have. SUV started on 8 something to 4 for couple scans and last time April this year it was around 2. The radiation was in 2019. And same happend with radiation to other two spots in 2020. Pain later. I also thought that it is radioresistant, so I understand your worrie

Dx 2013, DCIS/IDC, Right, 1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 5/2017, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR-, HER2- Surgery Mastectomy: Right; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Chemotherapy Surgery Hormonal Therapy Aromasin (exemestane) Hormonal Therapy Faslodex (fulvestrant) Radiation Therapy External: Bone Targeted Therapy Kisqali Surgery
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May 29, 2021 06:47AM JoynerL wrote:

Cross-posting:

Cancer Patients Develop 'Adequate' Immune Response to COVID Vax

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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May 29, 2021 09:04AM candy-678 wrote:

Thanks JoynerL for the article. I am fully vaccinated but still take many precautions--- not out in crowds, always mask still, and social distance when I can. You do not know who in a crowd is vaccinated and who is not and are asymptomatically spreading the germs. I am glad I am vaccinated, and it gives me some reassurance, but still..... And if we are told we need a booster, I will be the first in line. Boy, I wish Covid never occurred. Hard enough having cancer, but being fearful that I will catch this and die even more early is really scary.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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May 30, 2021 02:08AM Mausie wrote:

Your link gives "File Not Found" - http://www.boneandcancerfoundation.org/pdfs/Breast...



Mausie Dx 9/2006, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER-/PR-, HER2+ Surgery 9/6/2006 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 9/10/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Radiation Therapy 2/8/2007 Breast Targeted Therapy 3/2/2007 Herceptin (trastuzumab) Dx 9/9/2013, IDC, 1cm, Stage I, Grade 3, 0/0 nodes, ER+/PR+, HER2- Surgery 9/12/2013 Lumpectomy: Right Hormonal Therapy 9/18/2013 Femara (letrozole)
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May 30, 2021 03:14PM Sadiesservant wrote:

Not sure what link you are referring to Mausie. If you mean Joyner’s post, I have no trouble accessing it and it’s not the same link you are providing.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin)
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May 30, 2021 03:26PM JoynerL wrote:

I've had links not open when I tried to open the link from the email rather than after opening the post on the actual BC.org site. Perhaps that's the problem, Mausie?

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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May 30, 2021 03:34PM Olma61 wrote:

it looks like she is opening the link from the original post in this thread, which is really old at this point


here is the breast cancer and bone pdf from that same site -

http://www.boneandcancerfoundation.org/pdfs/Breast_2011.pdf

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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May 31, 2021 10:33PM cowgal wrote:

Nicole - When I had my radiation for my collarbone in Feb - March 2020, the RO told me that the cancer will not die until the cancer cells try to divide. She checked me part way through my radiation and it looked like my tumor (which was over 7 cm) wasn't responding well to the radiation but when I had my first scan in early July 2020, my tumor was NEAD. It may just take more time to get the response.

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Jun 1, 2021 06:59AM NicoleRod wrote:

Cowgal..thank you so much for mentioning that. Yesterday I started to actually feel better...so I went on a short walk w/ my husband and our new puppy and now my glute is hurting again ughhhh. I do feel better than when I started radiation though so I do think it may be working *praying*

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Jun 2, 2021 05:41PM BevJen wrote:

As a result of my recent treatments to my femur (complete hip replacement on R; nail/pin inserted on L} I had an appointment today with my oncologic orthopedic surgeon. He said that "someone like me" should be having nuclear bone scans at least every 6 months. He didn't identify what he meant by "someone like me" but I thought this might be interesting to folks on this thread.

My regular MO doesn't really set time frames for scans, although they tend to fall around every 4-5 months.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
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Jun 2, 2021 06:25PM moth wrote:

I'm currently on an every 12 weeks schedule for nuclear bone scans + CT. Interesting how different drs decide this

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jun 2, 2021 07:11PM candy-678 wrote:

BevJen- Glad you are doing some better. I have not had but 2 bone scans in the 3 1/2 years of bone mets. Last bone scan was Nov 2019, I think. My MO mentions she may order one but has not so far. We are concentrating on the liver mets with MRI's of the abdomen. But I have not had any fractures from the bone mets either.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)

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