Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Sep 23, 2015 06:34PM Bosco19 wrote:

has anyone been treated with Revolade for low platelets

Mets to brain, bone and lymph nodes Dx 1/18/2013, IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER-/PR-, HER2- Chemotherapy 2/4/2013 Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Surgery 4/12/2013 Lumpectomy: Right Radiation Therapy 5/7/2013 Breast Chemotherapy 7/15/2013 CMF Chemotherapy 1/8/2014 Taxol (paclitaxel) Dx 6/25/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Surgery 7/8/2014 Radiation Therapy 7/21/2014 Brain Targeted Therapy 7/30/2014 Avastin (bevacizumab) Chemotherapy 7/30/2014 Xeloda (capecitabine) Dx 12/12/2014, mets, ER-/PR-, HER2- Radiation Therapy 1/20/2015 Bone Dx 3/3/2015, 1/3 nodes, mets Chemotherapy 3/3/2015 Gemzar (gemcitabine)
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Sep 23, 2015 07:16PM dunesleeper wrote:

Bosco, I think I was given that once. I didn't feel any problems with it.

Dx 2/7/2012, IDC, 4cm, Stage IIB, Grade 3, 1/31 nodes, ER+/PR+, HER2- Surgery 3/7/2012 Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 9/4/2012 Reconstruction (right) Dx 8/20/2014, IDC, Stage IV, Grade 3, mets, ER+/PR+, HER2- Hormonal Therapy 8/20/2014 Arimidex (anastrozole) Dx 4/17/2015, IDC, Stage IV, Grade 3, ER+/PR+, HER2- Chemotherapy 5/4/2015 Taxol (paclitaxel) Chemotherapy 7/10/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 9/1/2015 External: Bone Targeted Therapy 10/24/2015 Ibrance (palbociclib)
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Sep 23, 2015 07:41PM wleeky1952 wrote:

Just found out result of my MRI & CT Scan today which showed diffuse mets in my rib, sternum ,spine, and pelvis. I will start chemo next Wednesday and will consist of taxotere, perjeta and Herceptin. Scared and stressed but know I have to be strong and fight. Any advice on how to handle all of this.


Dx 12/6/2012, IDC, Left, 4cm, Stage IIA, Grade 1, 1/8 nodes, ER-/PR-, HER2+, Surgery 12/14/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 1/18/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 9/23/2015, IDC, 4cm, Stage IV, 1/8 nodes, ER-, HER2+, Chemotherapy 9/30/2015 Taxotere (docetaxel) Targeted Therapy 9/30/2015 Perjeta (pertuzumab)
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Sep 23, 2015 07:42PM AmyQ wrote:

Dune, I hope your precious little bird is on the mend. I feel so badly when our little critters are sick or injured and we're helpless to do anything about it until we can get them to the vet, let alone when we, their owners are also sick. I am happy he seems to be better. I hope you too are getting stronger and able to enjoy the holidays.

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Sep 23, 2015 07:53PM AmyQ wrote:

wleeky, I'm sorry to hear about your mets. Have you had chemo in the past? I am guessing no, since I don't see any listed in your bio. I've had Taxotere with Cytoxan and while both were doable, their side-effects were cumulative but they took care of all my bone mets. Of course everyone responds to treatment and SE differently, there is no reason you need to suffer in silence. You'll be given plenty of pre-chemo meds to prevent or minimize a possible allergic reaction and side-effects. I found it helpful to keep a diary of the infusions, length of time for each, how I felt after each and for several days following treatment, until the next. Drink tons of water to flush the chemo out of your system as soon as possible. Some of the drugs can damage your kidneys and bladder - that would not be good. There's also many great threads here for ladies starting chemo now or those who have gone through what you'll be going through. I'd read up on as many as you can. Also, if you find you cannot sleep or are having severe anxiety, don't hesitate to ask your onc for meds to get you through this.

Lastly, know that bones mets are not the end of the world. Many many women and men here live good long lives with bone mets...count me as one of them.

Good luck and keep us posted on how you're doing.

PS - maybe you want a second opinion on the treatment plan for peace of mind?

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Sep 23, 2015 08:35PM ChelleG wrote:

Dune, poor little Dusty. Is he doing better this evening? Birds are wonderful pets! They have so much personality. You just need to take the time with them, and they are splendid companions! I haven't started the zometa yet. My first infusion is on Monday. Not real excited about it. Supposed to cause flu like symptoms for a few days following. I plan on staying hydrated and watching Netflix thru Wednesday. I'm sorry to hear you have so much pain! Are you taking pain meds? I'm sure that that was a stupid question. I'm just hoping that there is something that will work. You are in my thoughts often! New England must be so beautiful in the fall. I have always wanted to visit. The pictures are spectacular. Colorado is of course beautiful, but I see it all of the time. I would like to know what real New England clam chowder tastes like! Mmm fresh clams!!

Dx stage IV de novo 9/10/2015 with bone mets. Dx 9/10/2015, ILC/IDC, Both breasts, 2cm, Stage IV, Grade 2, ER+/PR+, HER2- Dx 9/10/2015, ILC/IDC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/16/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2015 08:37PM wleeky1952 wrote:

AmyQ thanks so much for the prompt reply. I have updated my treatment plan several times and realized I need to make them public, I did have chemo January 16, 2013, I started with carboplatin, taxotere, and Herceptin. I am Her2+. My Onc is starting me next week with taxotere, perjeta and Herceptin for the bone mets. I trust my onc and felt I would give it a try. Will not hesitate to get a second opinion if I feel it is time (thanks for the advice). I felt when I was told I had bone mets it was the end of the line. Your comment has uplifted me so much. I have been on this site since my initial diagnosis and just started posting. I feel so lost and afraid. Thanks so much for your help.

Dx 12/6/2012, IDC, Left, 4cm, Stage IIA, Grade 1, 1/8 nodes, ER-/PR-, HER2+, Surgery 12/14/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 1/18/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 9/23/2015, IDC, 4cm, Stage IV, 1/8 nodes, ER-, HER2+, Chemotherapy 9/30/2015 Taxotere (docetaxel) Targeted Therapy 9/30/2015 Perjeta (pertuzumab)
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Sep 23, 2015 08:38PM - edited Sep 23, 2015 08:39PM by wleeky1952

This Post was deleted by wleeky1952.
Dx 12/6/2012, IDC, Left, 4cm, Stage IIA, Grade 1, 1/8 nodes, ER-/PR-, HER2+, Surgery 12/14/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 1/18/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 9/23/2015, IDC, 4cm, Stage IV, 1/8 nodes, ER-, HER2+, Chemotherapy 9/30/2015 Taxotere (docetaxel) Targeted Therapy 9/30/2015 Perjeta (pertuzumab)
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Sep 23, 2015 08:52PM 513mgv wrote:

Thanks for all the good wishes. My MRI didn't show any progression so if I'm still having considerable pain in 2 weeks we will do radiation to a couple of spots . I'm planning a trip to see my sister and will try not to think about cancer while I'm on my trip. Hope all have a pain free evening. Marilyn

Dx 12/13/2011, IDC, Stage IV, mets, ER+/PR-, HER2- Hormonal Therapy 12/22/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2015 08:57PM KiwiCatMom wrote:

Dune - hope you and Dusty are both better today! How awful for both of you!

Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/19/2006 Lumpectomy: Left Hormonal Therapy 12/10/2006 Radiation Therapy 12/15/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/19/2013 Femara (letrozole) Radiation Therapy 2/19/2013 Bone

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