Sep 23, 2015 06:34PM Bosco19 wrote:

has anyone been treated with Revolade for low platelets

Sep 23, 2015 07:41PM wleeky1952 wrote:

Just found out result of my MRI & CT Scan today which showed diffuse mets in my rib, sternum ,spine, and pelvis. I will start chemo next Wednesday and will consist of taxotere, perjeta and Herceptin. Scared and stressed but know I have to be strong and fight. Any advice on how to handle all of this.

Sep 23, 2015 07:53PM AmyQ wrote:

wleeky, I'm sorry to hear about your mets. Have you had chemo in the past? I am guessing no, since I don't see any listed in your bio. I've had Taxotere with Cytoxan and while both were doable, their side-effects were cumulative but they took care of all my bone mets. Of course everyone responds to treatment and SE differently, there is no reason you need to suffer in silence. You'll be given plenty of pre-chemo meds to prevent or minimize a possible allergic reaction and side-effects. I found it helpful to keep a diary of the infusions, length of time for each, how I felt after each and for several days following treatment, until the next. Drink tons of water to flush the chemo out of your system as soon as possible. Some of the drugs can damage your kidneys and bladder - that would not be good. There's also many great threads here for ladies starting chemo now or those who have gone through what you'll be going through. I'd read up on as many as you can. Also, if you find you cannot sleep or are having severe anxiety, don't hesitate to ask your onc for meds to get you through this.

Lastly, know that bones mets are not the end of the world. Many many women and men here live good long lives with bone mets...count me as one of them.

Good luck and keep us posted on how you're doing.

PS - maybe you want a second opinion on the treatment plan for peace of mind?

Amy

Sep 23, 2015 08:37PM wleeky1952 wrote:

AmyQ thanks so much for the prompt reply. I have updated my treatment plan several times and realized I need to make them public, I did have chemo January 16, 2013, I started with carboplatin, taxotere, and Herceptin. I am Her2+. My Onc is starting me next week with taxotere, perjeta and Herceptin for the bone mets. I trust my onc and felt I would give it a try. Will not hesitate to get a second opinion if I feel it is time (thanks for the advice). I felt when I was told I had bone mets it was the end of the line. Your comment has uplifted me so much. I have been on this site since my initial diagnosis and just started posting. I feel so lost and afraid. Thanks so much for your help.

Sep 23, 2015 08:52PM 513mgv wrote:

Thanks for all the good wishes. My MRI didn't show any progression so if I'm still having considerable pain in 2 weeks we will do radiation to a couple of spots . I'm planning a trip to see my sister and will try not to think about cancer while I'm on my trip. Hope all have a pain free evening. Marilyn