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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

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Posted on: Jun 22, 2012 03:09AM - edited Oct 28, 2021 02:22PM by moderators

Posted on: Jun 22, 2012 03:09AM - edited Oct 28, 2021 02:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Sep 23, 2015 08:02PM wleeky1952 wrote:

Congratulations so glad your MRI didn't show any progression. I see you live in Stamping Ground, I am close to you in Lexington. I sent you a PM,

Dx 12/6/2012, IDC, Left, 4cm, Stage IIA, Grade 1, 1/8 nodes, ER-/PR-, HER2+, Surgery 12/13/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 1/17/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 9/23/2015, IDC, 4cm, Stage IV, 1/8 nodes, ER-, HER2+, Chemotherapy 9/29/2015 Taxotere (docetaxel) Targeted Therapy 9/29/2015 Perjeta (pertuzumab)
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Sep 23, 2015 08:21PM KiwiCatMom wrote:

Congrats, Marilyn!!

Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/18/2006 Lumpectomy: Left Hormonal Therapy 12/9/2006 Radiation Therapy 12/14/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/18/2013 Femara (letrozole) Radiation Therapy 2/18/2013 Bone
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Sep 23, 2015 08:34PM annieoakley wrote:

Dune, poor Dusty, I sure hope he was better today. Did you get to a dermatologist to find out about that spot?

wleeky1952, welcome but so sorry you have reason to be here. Prayers for a successful treatment plan. You will find a great group of women here with a wealth of knowledge and understanding.

Marilyn, yay to no progression! The radiation does help alot should you consider to do it.

Well I started back on the Celebrex today after being off of it for a few days and yup my troubles are returning. I took the double dose of stomach meds but I'm sure it will take a few days to see if that will help. I'm giving this a week and if I don't feel better I think I'll have to go off of it. Makes me sad really because it was really starting to work for my pain.

Hugs to all, Annie

Surgery 5/7/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/22/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/27/2012 Surgery 1/31/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/11/2013 Prophylactic ovary removal Surgery 9/3/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/3/2014 Femara (letrozole) Radiation Therapy 11/30/2014 Bone
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Sep 23, 2015 09:09PM annieoakley wrote:

AmyQ, I just got to thinking, wasn't it scan day for you today? If so prayers and positive thoughts for good results!

Terre, how's your stomach feeling today? Will you have results by the end of the week?

Linda, are you having gorgeous weather in Quebec too like we are here? Omg it has been an amazing week of warm sunny weather, can't get enough of this! Heading to St. Jacobs market early in the morning so I need to get to bed. Can't wait to see all the neat stuff. 

Hugs to all, Annie

Surgery 5/7/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/22/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/27/2012 Surgery 1/31/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/11/2013 Prophylactic ovary removal Surgery 9/3/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/3/2014 Femara (letrozole) Radiation Therapy 11/30/2014 Bone
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Sep 23, 2015 09:23PM LindaE54 wrote:

Annie, yes the weather is absolutely beautiful here as well. Sorry the double Pantoloc is not doing the job (yet?).

Marilyn - WOOHOO on stable! Good luck with rads should you decide to have them. Enjoy your trip.

wleeky - a warm welcome to you. Lots of info, knowledge, support on this thread. Compassion and humour as well. Best wishes with your tx plan.

Sending healing vibes to cute little Dusty and to its courageous owner of course!

Sweet dreams to all.

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/28/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/17/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/5/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Sep 23, 2015 09:53PM AmyQ wrote:

Annie

Yes scan day, blood draws and xgeva so now the waiting game. Thanks for checking in. Of course I'll update as soon as I hear.

Hugs to all you dear ladies and for those who are in pain or suffering I hope our Pope can perform a few miracles while he's visiting the U.S.

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Sep 24, 2015 09:23AM gaia0132 wrote:

Good morning all

congrats on no progression Marilyn

Amy best wishes for your results

Wleeky wishing you an easful tx

Annie sorry you are having so many issue with the celebrex and your stomach

Dune hope you are feeling better and Dusty too. Those are sweet pictures

Cjanet how are you today?

LindaE i think I missed what ultimately was the result of your scans? how is the cough?

I know I am missing things and I am sorry. I am under a very dark cloud today. I have the MRI tomorrow, so answers will be had, but what was the occasional jolt of nerve pain in my left hip became a full on spasm and almost unable to walk from yesterday afternoon. I am in no pain sitting or sleeping. Just if I 'step a little off' then the whole things flares. I am so scared and angry about this..... I feel like a baby and I am praying this pain is just the meds shrinking stuff..... but would it create such nerve pain and hurt to put weight on it at times? I welcome any input or insight....

Feeling sad.

Dx 6/2015, IDC, Left, 5cm, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2+, Dx 8/2015, Stage IV, metastasized to bone Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Sep 24, 2015 09:31AM moderators wrote:

gaia0132, we're here for you and sending you gentle cyberhugs Medicating We are so sorry that you are in such nerve pain. Have you discussed this with your doctor? Sit in the sun, put on nice music, talk to all of us (-: to keep you relaxed. Please let us know how the MRI goes as well.

Hang in there! xo

To send a PM to the Mods: community.breastcancer.org/my/...
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Sep 24, 2015 09:50AM 3-16-2011 wrote:

gaia

Wishing you the best. My now chronic hip pain started with a very similar story to yours. I had a weekend in which I could not bare weight. on the left side. My MO quickly ordered an MRI resulting dx bursitis. I wish for you the same!

Off to take my son to school. Wishing everyone a beautiful Thursday.

3-16-2011 Dx 3/16/2011, IDC, 2cm, Stage IIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Chemotherapy 5/3/2011 AC + T (Taxol) Surgery 10/18/2011 Prophylactic ovary removal Radiation Therapy 11/10/2011 Surgery 10/10/2012 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Dx 11/5/2014, Stage IV, ER+/PR+ Hormonal Therapy 1/1/2015 Aromasin (exemestane) Targeted Therapy 10/15/2015 Afinitor (everolimus)
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Sep 24, 2015 10:01AM LindaE54 wrote:

Good morning all,

Gaia - Crappy pain! I can understand the dark cloud. But the good thing is you will have answers after your MRI. I have no insight other than when I was on Tamox, I had a lot of pain in my hips and knees. When are you seeing your Onc? Tell him/her all your symptoms. In the meantime, be kind to yourself, take pain meds, rest and remember, we are here with you. I will get my results on 5 Oct. My cough is practically gone, thank you for asking.

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/28/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/17/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/5/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)

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