Join Us

We are 225,693 members in 83 forums discussing 164,174 topics.

Help with Abbreviations

Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by Moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
Log in to post a reply

Page 864 of 889 (26,651 results)

Posts 25891 - 25920 (26,651 total)

Log in to post a reply

Jul 5, 2021 08:20PM Snow-drop wrote:

Jsniffs, yes it is one of the first line of treatments for stage 4, bone Mets. I diagnosed stage 4 at the beginning, second opinion MO proposed letrozole+ faslodex as first line of treatment. If I had this knowledge that I have now, I might’ve started l/f. Why don’t you try radiation (aggressive treatment) if you have a single bone met. Few ladies are in hormonal therapy for a good while for bone only metastatic.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Zoladex (goserelin)
Log in to post a reply

Jul 6, 2021 05:10AM JoynerL wrote:

jsniffs, I believe that some with oligometastasis have started with stereotactic body radiation (SBRT) in an effort to wipe out the cancer entirely while it is so limited in scope and location. You're fortunate to perhaps have that option, in addition to whatever other approach(es) your oncs recommend. Good luck!

I had SBRT last year to address a worrisome periclavicular node, and it appears so far to have eliminated that problem.

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/1/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/14/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/8/2019 External: Bone Chemotherapy 1/16/2019 Xeloda (capecitabine) Radiation Therapy 10/26/2020 External: Lymph nodes
Log in to post a reply

Jul 6, 2021 06:00AM Jsniffs wrote:

Thanks everyone for the info. I've actually done SBRT twice now (for the initial spine met a couple of years ago and for the 2 spine mets that have popped up recently). I have to fix my signature....it got all messed up and I haven't gotten around to fixing it.

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 1/15/2019 Femara (letrozole) Radiation Therapy 9/1/2019 External: Bone Dx 4/2021, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy 5/31/2021 External: Bone Hormonal Therapy 6/15/2021 Faslodex (fulvestrant) Targeted Therapy 8/1/2021 Ibrance (palbociclib)
Log in to post a reply

Jul 6, 2021 09:51AM elenas401 wrote:

This sounds promising. They are starting trials on solid tumors including breast cancer in different countries, hopefully soon in the US. They are using it on skin cancer and mets at Sloan Kettering Cancer in NYC. 100 % of tumors responded with 100% having a complete response.

Dx 1/2017, Right, 6cm+, Stage IV, metastasized to lungs, Grade 3, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Chemotherapy Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Jul 6, 2021 10:21AM elenas401 wrote:

I made a mistake on that last post on Alpha Dart. 100% responded, but it was 78% with a complete response, not 100%.

Dx 1/2017, Right, 6cm+, Stage IV, metastasized to lungs, Grade 3, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Chemotherapy Chemotherapy Taxol (paclitaxel)
Log in to post a reply

Jul 6, 2021 09:46PM star2017 wrote:

Hi Jsniffs, I just noticed that like me you were diagnosed while pregnant. I hope you and your family are doing well, though I'm sorry that you're back here like me.


I had my last radiation treatment today (15/15). I've already started fulvestrant. After a break and some bloodwork, I'll be starting Abemaciclib and Xgeva. Leg pain is pretty much gone (tho the couple days after my fulvestrant shot, there was a bit of an ache down my leg, not near the injection site). I'm still taking it easy and avoiding putting weight on my leg, but I do feel I need to figure out what kind of exercise I can do. I'm not a super-active person, but I can feel that this past month or two of reduced activity hasn't been good for me. I want to figure out what sort of exercises I can do safely.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 7, 2021 05:41AM Jsniffs wrote:

Star - I'm sorry you are here as well. Hope your family is doing ok. My child turned 5! It's amazing to think she was in my belly when I started chemo. It kind of blows my mind.

As far as easy exercises, I've found qigong (similar to tai chi) really helpful. I can do it even on days I don't feel like doing much. I even teach my own classes sometimes. However, two groups that offer more regular classes for free online are Spring Forest Qigong (daily practice on Facebook live) and Zakim Institute through Dana Farber.

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 1/15/2019 Femara (letrozole) Radiation Therapy 9/1/2019 External: Bone Dx 4/2021, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy 5/31/2021 External: Bone Hormonal Therapy 6/15/2021 Faslodex (fulvestrant) Targeted Therapy 8/1/2021 Ibrance (palbociclib)
Log in to post a reply

Jul 7, 2021 11:09AM buttonsmachine wrote:

star, regarding the ache down you leg after the Faslodex injection - it is possible for the nurses to hit your sciatic nerve if they do the injection in the wrong location, which can cause that kind of pain. I had that happen once. Every time I put weight on that leg I had pain going down my leg, and it took a month or two for my sciatic nerve to heal. Fortunately it did heal! After that I actually started marking the good/correct area to inject with a sharpie, as an extra measure of protection against nurses who don't know the best location. (Although again, most nurses do know.)

I don't say that to scare you, but rather just to make you aware that it can be important to guide some nurses with the Faslodex injection. Most nurses at my center are good at it, but I think a few were not as experienced with it, and according to my MO there's a bit of a learning curve with giving that shot. I also found that it helps to just ask for whoever is best/most experienced at giving it.

Just a few tips I learned while on Faslodex, in case it helps!

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Log in to post a reply

Jul 7, 2021 11:16AM buttonsmachine wrote:

PS Definitely mention it to your MO, especially if the pain down your leg persists too. I did, and it was my MO who helped me understand about avoiding the sciatic nerve and where the injection should be given. Best wishes!

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Log in to post a reply

Jul 7, 2021 09:10PM star2017 wrote:

buttonsmachine, Thank you! The nurses themselves always ask about how it feels and warned me about the nerve issue, so they are pretty careful. The ache was the same sort of dull ache toward the front of the thigh that the metastasis caused (before the radiation). I wonder if it's either just weakness in the bone after radiation or, what I think is more likely, some sort of temporary inflamation caused by the fulvestrant. The pain was gone after a couple days. I'll definitely mention it to the MO and the orthopedic oncologist.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 7, 2021 10:36PM Forevermom10 wrote:

Hi everyone. I am new here but have been reading for months. Diagnosed de novo with 2 bone mets in my back in March. I am 59, ER+, Her2-. Ive had a PET scan, an MRI, and bone scan. Suspected bone mets right after I was diagnosed stage 2! My hope came crashing down pretty quick. I have 2 kids, 21 and 24. My husband is my rock through all of this.

My question is regarding bone biopsy. Im having one on Friday. Has anyone had them to confirm previous scans? I’m very nervous and I will be under general anesthesia which is freaking me out. Should I go through with this invasive procedure even after scans suspect the mets? You are all so wonderful and I have gained SO MUCH knowledge these last few months.

Dont know what I would do without you all.

Blessings and healing to everyone.



Log in to post a reply

Jul 7, 2021 10:51PM star2017 wrote:

I had a bone biopsy after my MRI and CT scans showed concerning imaging. I was not under general anesthesia. Rather, I was sedated in the twilight state. I was mostly awake but dozed a little during and immediately after the procedure. The procedure was not a problem. No real pain beyond the numbing shot. My bone mets was causing me pain, and after the procedure I didn't notice more pain than before.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 8, 2021 12:22AM Forevermom10 wrote:

thank you Star2017. I dont have any pain in my back other than my bulging discs and ongoing arthritis.

Wish I could be awake for this, like you were. I have no idea why I’ll be put under. I’ll ask on Friday. Thank you so much again. Wishing you lots of healing x

Log in to post a reply

Jul 8, 2021 12:28AM Snow-drop wrote:

forevermom, I diagnosed de novo as well, same story as yours. No bone biopsy for me though, since scan, bone scan and mri confirmed those lesions are Mets. See this thread: https://community.breastcancer.org/forum/8/topics/876918?page=28#idx_811

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Zoladex (goserelin)
Log in to post a reply

Jul 8, 2021 12:58AM Olma61 wrote:

I was deNovo, had a bone biopsy after a PET scan. Not only will it be used to confirm cancer, they will also test the ER-PR-HER2 bio markers because sometimes, metastatic tumors have different bio markers. That helps guide your treatment

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Jul 8, 2021 03:18AM SondraF wrote:

de novo as well, but no bone biopsy. Confirmed through CT, MRI and bone scan. However, I had one sacral lesion causing serious pain so I guess that was pretty obvious what was going on. Not sure why they don't bone biopsy here (probably cost) for de novo, though I imagine if I didn't respond to hormone therapy that they would have done it then.

Two spots isnt a bad deal though - you should join us on the de novo thread as there are some doctors who are challenging the conventional thinking around oliogo treatment (which you are).

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
Log in to post a reply

Jul 8, 2021 04:54AM JoynerL wrote:

Forever, I have had two bone marrow biopsies. They sound dreadful. They are not. The idea is so much worse then the procedure. I agree with what others have said: You are put into a twilight sort of mode with drugs similar to those used for colonoscopies. I would ask about the general anesthesia. I felt no pain, except for the emotional pain of anticipation. Try not to be afraid of the actual biopsy procedure. It provides valuable and important information for moving forward. Good luck!

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/1/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/14/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/8/2019 External: Bone Chemotherapy 1/16/2019 Xeloda (capecitabine) Radiation Therapy 10/26/2020 External: Lymph nodes
Log in to post a reply

Jul 8, 2021 05:30AM star2017 wrote:

For me they needed to biopsy to confirm it was breast cancer (and not some new cancer) and that it had the same characteristics regarding estrogen, progesterone, and her2 as the primary. How do they develop the treatment plan without the biopsy?

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 8, 2021 10:56AM Sunshine99 wrote:

Forever, my bone biopsy was not bad either. The IV line was in place and when they took me back to the CT room, I had to turn onto my stomach and position my arms above my head. Then the nurse said, "Here's your party juice" and that's all I remember. It wasn't full anesthesia like for surgery, but more like the colonoscopy type, like others have said.

I did have to stop the tech from placing the IV in my right arm (even though he had put a band on that wrist) and I had to tell both the tech and the doc that NO, you're not doing a bone MARROW biopsy, you're going to biopsy L4 or L5. All went well after the procedure. No nausea or real pain. Was able to dress myself, and then they wheeled me out the the parking area where my husband was waiting.

All the best to you,

Carol

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
Log in to post a reply

Jul 8, 2021 08:31PM Forevermom10 wrote:

Thank you everyone for your responses . I really am nervous but know that I’m in good hands. I hope that I can continue with my current treatment as I am able to tolerate it so far. Next appt is with radiologist to talk about zapping the two spots.

Today I spent most of the dat crying. In a normal summer, i would be decorating my deck or planning a little summer getaway. I am mourning my carefree future. I hope that one day it wont be this hard....

Blessings and healing to everyone. X

Log in to post a reply

Jul 8, 2021 08:42PM star2017 wrote:

forevermom10, it's been just over a month since I got my diagnosis (and almost two months since this whole thing escalated to concerning), and I spent a lot of those first few weeks in tears. It's gotten easier already. It helps to have a path. I am scared, but I know that nothing is set in stone. There are many challenges, but also a lot we can do to improve the quality of the lives we do have. Hoping this journey is not too difficult, and that there are many hopeful and joyful days ahead for you.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 8, 2021 09:02PM SF-Cakes wrote:

Forevermom, I had to have a biopsy to confirm my spinal met, the MRI was "inconclusive but cannot rule out metastasis". And similarly, this was shortly after being diagnosed stage 2b, I was in shock. The biopsy went well, I was awake but not anxious due to IV meds, and the doctor did hit a nerve at one point - about 2 seconds of pain, but no other pain and no problems afterwards. Other than getting the phone call from my doctor confirming it was a met...that was much more painful.

I cried so much at first, just could not believe it was happening so fast. I'm now about six months out from the MBC diagnosis, and my life is surprisingly relatively like it was before. I'm much more tired due to the meds, but I'm still working and doing yard work (just not for hours at a time like I used to). I know this can change at any time, and I do live my life in three-month chunks, from one scan to the next. Really hope your biopsy goes well and I'm sorry you're here, and glad you found this site - the people here have helped keep me sane many times in the past six months!

Dx 6/2020, ILC, Left, 6cm+, Stage IIB, Grade 3, 2/4 nodes, ER+/PR-, HER2- Surgery 7/1/2020 Mastectomy: Left Chemotherapy 8/4/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/3/2020 Chest wall Dx 1/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy 2/9/2021 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Jul 8, 2021 09:40PM gailmary wrote:

Jsniffs

I've had a single met to head of femur found 4 years ago. 1st radiation for pain then letrezol, fulvestrant and ibrance and xgeva for the first year. At 1 yr had gallbladder out and stopped the ibrance. That was the plan anyways. Then another 18 months and dropped letrezol due to major insomnia. Since then just xgeva for bones and fulvestrant. Scans on Monday. A very painful 3 months with arthritis in neck and bulging disc/pinched nerve. Hoping once again that cancer is still sleeping in the femur. Dr always said he could add ibrance back in if tumor markers went up, which they have not. We don't know if mine are reliable indicators. I'll know next Thursday.

Dx 11/25/2008, IDC, Left, 2cm, Stage IIA, Grade 1, 2/12 nodes, ER+/PR+, HER2- (IHC) Dx 4/13/2017, Stage IV, metastasized to bone Hormonal Therapy Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy
Log in to post a reply

Jul 12, 2021 02:24PM - edited Jul 12, 2021 02:41PM by NicoleRod

Well tomorrow is the PET and MRI of Liver but the MRI of C spine hit the My chart not good...looks like Afinitor failed...

TECHNIQUE: Multiplanar, multisequence MR imaging of the cervical spine was

performed before and after the intravenous injection of 5 cc of Gadavist.

FINDINGS: There is progressive signal abnormality centered in the spinous

process of C7, with more focal STIR hyperintensity that measures up to 8 mm

AP. The findings are most consistent with progressive tumor in this region.

There is new abnormal signal with enhancement involving the articular facet

and pedicle of C7 on the left. No significant epidural tumor is identified.

There is multilevel degenerative cervical spondylosis, as before. The

cervical spinal cord is normal in caliber and signal intensity.

There is a lesion in the T2 vertebral body which will be discussed on the

concurrent thoracic spine MRI report.

IMPRESSION:

Disease progression, with interval enlargement of the C7

spinous process lesion and a new lesion involving the articular facet and

pedicle of C7 on the left.


THIS is the T- spine...what is that t9 all about????!!!!!! I am really upset...


COMPARISON: Prior thoracic spine MRI 07/09/2021

TECHNIQUE: Multiplanar, multisequence MR imaging of the thoracic spine was

performed before and after the intravenous injection of 5 cc of Gadavist.

FINDINGS: New from the prior MRI examination, there is abnormal STIR

hyperintensity and enhancement involving virtually entirety of the T3

vertebral body which is consistent with progressive disease. There is

minimal extraosseous extension, with epidural tumor ventrally that measures

up to approximately 2 mm in thickness. There is no associated significant

canal stenosis or cord compression.

No additional worrisome thoracic lesions are identified. There is a small

hemangioma involving the dorsal aspect of the T9 vertebral body, as before.

The spinal canal is widely patent. There is prominence of the central canal

of the thoracic spinal cord, without focal intramedullary lesion. There are

hepatic lesions that are partially imaged and incompletely evaluated.

IMPRESSION:

There is a new metastatic focus replacing majority of the T3

vertebral body. There is early canal compromise with minimal tumor

extension into the ventral epidural space. The spinal canal remains patent.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Jul 12, 2021 02:42PM Olma61 wrote:

Nicole, just want to say I’m sorry to see this. Hugs

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Jul 12, 2021 02:51PM candy-678 wrote:

Nicole- I posted to you on the Liver Thread. Again, I hate this for you.

I do wonder how my bone mets are. I have a CT of chest and MRI of abdomen and pelvis as my scans. The CT chest will document "unchanged sclerotic areas seen in bone window". So, unchanged where they can see, but how about areas not visualized on these scans?? Cervical spine--- I have C2 mets, and my pubic bone where I have mets. So I could have progression of bone along with my small progression of my liver mets. Who knows.....

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
Log in to post a reply

Jul 12, 2021 04:00PM - edited Jul 12, 2021 04:04PM by Tinkerbell107

Nicole: Forgive me for not recalling, but didn't you have radiation recently to your spine? Just shocked for you had recent imaging. I'll keep you in prayer...

Dx 8/23/2019, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2-
Log in to post a reply

Jul 12, 2021 06:24PM NicoleRod wrote:

Tink...I had radiation to the sacrum..and that is what is confusing me..the report looks like progression in sacrum which would mean the rads didn't work...but I have a ton of relief there??? well my MO just called...she thinks on the report where it mentions T2 might be a mistake and its just the T3 (that I had , and is worse) she said the sacrum could look bigger bc it was radiated and be dead. She is going to double check with the RO.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Jul 12, 2021 06:49PM NicoleRod wrote:

can lidocaine patches be used on spine the night before PET scan???

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Jul 12, 2021 07:39PM - edited Jul 12, 2021 07:41PM by Snow-drop

Nicole, I just wanted to say that my spine mri 4 months after radiation showed progression in new areas + radiated tumors got bigger + 2 lesions were seen in epidural space as big as 8mm. RO believed that those are “inflammation" and flaring (I guess). Thank god both my MO and RO were highly experienced so they didn't freak out like neuro oncologist (assistant professor tittle) did. I had to do mri every 6 weeks then 8 weeks then 3 months, so fed up with them, until things got stable, next mri in 6 months. Those nasty tumors get to be stable sooner or later (((hugs)))

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Zoladex (goserelin)

Page 864 of 889 (26,651 results)