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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

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Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by Moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jul 12, 2021 07:55PM NicoleRod wrote:

Thank you Snow drop!!

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Jul 12, 2021 07:55PM KBL wrote:

I’m so sorry, Nicole. Hugs to you

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)
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Jul 12, 2021 08:13PM emac877 wrote:

NicoleRod - I'm so sorry, you have sure been through it with all of this. I'm not sure what the significance of the hematoma on T9 means. The wording of the report makes it sound stable. I'm glad you have experience people on your team. That makes a huge difference. I don't think a Lidocaine patch would interfere with a PET scan. Mostly things like food intake and exercise, anything that would cause undue metabolic uptake in the body should be held before a scan. I would assume a Lidocaine patch would be harmless but you could always call and make sure before hand. I think each center has their own protocol from what I've seen.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Radiation Therapy 12/23/2019 External: Bone Surgery 12/31/2019 Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 12/9/2020 Aromasin (exemestane) Hormonal Therapy 6/23/2021 Faslodex (fulvestrant)
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Jul 13, 2021 09:29AM GoKale4320 wrote:

Nicole - so sorry about this report. I hope you can talk to your doctor about it. I think it helps calm me when I can speak to the Doctor. They sometimes will have a plan already in mind to combat the new development.


Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Jul 14, 2021 07:07PM RK2020 wrote:

NicoleRod - crap, crap, crap. And hugs.
My last PET confused me too because it showed a lesion on T12 which was radiated last February. I thought to myself that because they don’t yet have my previous PET from a different facility to do a comparison, it’s probably the same lesion and is really “stable” not progression. Wrong I was. This new lesion is in a totally different area of T12. Not sure if the same thing is possible on the sacrum.

Dx 5/2016, IDC, Right, 1cm, Stage IIA, Grade 3, ER+/PR+, HER2- Dx 3/2020, IDC, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Chemotherapy AC + T (Taxol) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy External: Bone
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Jul 14, 2021 09:04PM cyathea wrote:

RK2020 and NicoleRod, I’m sorry to hear about your progression. Sometimes there just aren’t any words that have enough feeling in them. RK2020, you probably said it best…we can yell and howl about how crappy this is and still offer you our hugs of comfort and concern. Thinking of you both

Dx 6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH) Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Chemotherapy 8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 10/8/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 10/10/2019 Herceptin (trastuzumab) Surgery 3/17/2020 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 4/15/2020 Other Radiation Therapy 5/31/2020 3DCRT: Breast, Lymph nodes, Bone Hormonal Therapy 8/20/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Jul 16, 2021 08:45PM Positive2strong wrote:

MKrestel,

After 10 treatments of radiation and not any relief of pain, they sent my scans to orthopedic doc at Cedars. He said I have a rather large mass on right upper thigh Femur? He talked to me today and wanted me in surgery Monday…said he would clean it out and put a pin/ rod in leg. He said to be very careful so not to break the bone.
I couldn’t tell him I’d have the surgery Monday as I really didn’t have energy to get pre tests done so fast. I think I will need the surgery. He said many 3 days in hospital. Onc has me set up for first time shots on Tuesday . I said the Ortho wants me to have surgery and will shots interfer she told me I need to ask the Ortho dr

A lot to think about today Wishing you the best

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 16, 2021 10:48PM star2017 wrote:

NicoleRod and RK2020, I'm sorry about the confusion and concerning reports. I hope that there is better news soon.


Spent Monday in the ER due to concern of a clot. Turned out it's just a superficial one, but my MO wants me on lovenox injections, twice a day, self-administered indefinitely. It's always something, isn't it?

I think I start Verzenio next week. Hoping the side effects aren't too bad.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/18/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Verzenio
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Jul 16, 2021 11:31PM Positive2strong wrote:

To All,

Has anyone had surgery on bone to clean out and put rod or pin in . They are recommending that for my thigh as radiation hasn’t relieved the pain

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 16, 2021 11:45PM Kittykat9876 wrote:

I have had it done and it has made a big difference, I have full mobility now in my right leg, just make sure to do all your rehab exercises.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Jul 17, 2021 12:57AM MKestrel wrote:

  • Positive2strong I'm sorry to hear you need surgery. I hope it goes well and helps the pain. I don't miss backbone #T6... Therapy helps me a lot, just try to keep moving.. a hug and a flower for you from my garden
I would rather be hiking Dx 12/14/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Dx 3/7/2021, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Targeted Therapy 9/22/2021 Verzenio Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Jul 17, 2021 03:54AM Positive2strong wrote:

Kittykat,

Did they take out some of your tumor. Why did they do the surgery, did radiation not work.


Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 17, 2021 06:25AM Kittykat9876 wrote:

The tumor had eaten so much of the bone it was on the verge of breaking, they removed as much of the tumor as they could and radiated it after it had healed.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Jul 17, 2021 11:57AM Sunshine99 wrote:

Positive, when I mentioned the possibility of needing a rod in my femur to my ortho dad, I thought he'd flip out at an unnecessary surgery. He was actually fully supportive of it. He said he did them when he was an Air Force doc a long time ago. My ortho onc was concerned about the stability of my femur, but for now it's OK.

I pictured the surgery as having to be sliced open from knee to hip, but apparently it's a relatively small incision near the hip. I'm glad Kittykat had it done successfully and could share her experience. It's always nice to hear the success stories.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Jul 17, 2021 12:08PM buttonsmachine wrote:

Positive2strong, I just wanted to say best wishes for your upcoming surgery. Please let us know how you're doing if you are able. Kittykat, I'm glad that surgery helped you to feel better.

I have a large tumor (12cm) in my femur that I'll be starting radiation for next week. I don't know if radiation will help when it's already so big. It's so painful that I've almost become bedridden in the last week or two. I can barely walk around the house with a cane. They tell me it's not broken...

Star, I'm sorry about the clot. I think starting on blood thinners is a good idea though, so nothing worse happens. Unfortunately MBC can make the blood very prone to clotting. :-( I got a DVT a few months ago and I've been on blood thinners ever since. It was scary.

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 4/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/15/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jul 17, 2021 12:35PM star2017 wrote:

buttonsmachine, which bloodthinner do you take? I'm not sure how long I can last on these injections.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/18/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Verzenio
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Jul 17, 2021 12:56PM candy-678 wrote:

Star2017-- I was on Lovenox for 3 months back in 2017 for a clot in my subclavian from my Port. Now I am on Eliquis for a PE clot in May of this year.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Jul 17, 2021 01:50PM BevJen wrote:

Positive2Strong,

Just went through what you're going through x 2. Went in for a routine CT and they found that my R femur was almost totally consumed by a combo of arthritis and cancer. That one came out and I now have a hip replacement. On L side, they did a mini cleanup and inserted a rod. It wasn't as bad as the right. I had two separate operations, so my info probably isn't relevant to you, but I didn't think the pain was bad at all. Because of unrelated complications, I'm still messing with rehab, but if you're only doing the one side, it should go well.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy Immunotherapy
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Jul 17, 2021 02:42PM star2017 wrote:

candy, I'm so impressed you managed three months on lovenox! I'm only five days in and just want to be done with these injections.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/18/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Verzenio
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Jul 17, 2021 04:42PM buttonsmachine wrote:

Star, I'm also on Eliquis which is a pill. You could ask to switch I think. They discussed putting me on Lovenox but decided on Eliquis partly because I preferred not to self inject (was already having to do that with Neupogen). Best of luck.

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 4/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/15/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jul 17, 2021 04:49PM star2017 wrote:

Thanks, buttons machine. I think they gave me a months worth of injections, but I'll call to see if they'll switch me soon. I definitely don't want to inject indefinitely. My tummy is already feeling tender.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/18/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Verzenio
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Jul 17, 2021 05:35PM - edited Jul 17, 2021 05:37PM by RK2020

Positive2strong - Femur pain is what started my whole sh*t show. I thought it was a sports injury but the ER docs proved me wrong. I then got confirmation that it was mbc from an oncologist who immediately set me up with an orthopedic onc. That was March 2020. Before the surgery, I could barely walk with a cane. I had surgery on a Tuesday. They had me up and walking that afternoon. The next day they taught me how to do stairs and a better way of getting in and out of bed. I went home that Wednesday afternoon with a walker. My in home PT started on Friday. All in all, the surgery sounded scarier then it actually was. I don’t like to take pain meds, but it’s important to stay ahead of the pain. The hard part for mewas PT. I was in good shape prior to my leg pain so it was a bit deflating being so weak but as my doctor promised, I can dance again - although 16 months later, my surgical side is still weaker. Exactly 4 weeks after surgery, I had one radiation treatment (8 gray) to clean up any cancerous cells in the area.
Good luck and I hope you find pain relief

Dx 5/2016, IDC, Right, 1cm, Stage IIA, Grade 3, ER+/PR+, HER2- Dx 3/2020, IDC, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Chemotherapy AC + T (Taxol) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy External: Bone
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Jul 17, 2021 08:47PM gailmary wrote:

Yikes! You ladies have been through so much. I'm scared silly. You are my heros.


Dx 11/25/2008, IDC, Left, 2cm, Stage IIA, Grade 1, 2/12 nodes, ER+/PR+, HER2- (IHC) Dx 4/13/2017, Stage IV, metastasized to bone Hormonal Therapy Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy
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Jul 18, 2021 09:04PM Positive2strong wrote:

thanks to everyone that replied.
kittykat, rk2020,bevjen,buttonmatch, and others

I haven’t scheduled the surgery. I guess I keep thinking it will get better.

My onc has me scheduled for Tuesday to get my first shot. I am not sure what it is my onc said you get it in the buttocks. I hope this shot is only once a month. I do know I will take Ibrance. When my onc called me it was on my cell and I said I would call her back on my landline and she said how long will that take as she had to go in 5 minutes. So I could not hear everything.

I asked her how many Mets and she said I didn’t count them and the report says multiple. I asked her grade and no answer. She kept complaining report was small print and she needed better glasses.

She is affiliated with Cedars and comes highly recommended but yikes

I am trying to stay positive….it is hard.

All your communication does help.

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 18, 2021 09:46PM star2017 wrote:

Positive2Strong, I'm sorry the MO seemed so off her game. How frustrating! I get fulvestrant once a month in my butt (two shots, one on each cheek). It's possible that's what you'll get. It's not as terrible as I thought it would be, but that being said, I was really shaken the first time because they administered it in the same infusion center where I rang the done-with-chemo bell three years ago. I didn't expect to be so troubled, but I was. Anyway, after that initial shot of fulvestrant, I've been fine. I hope it goes smoothly with you too.



Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/18/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Verzenio
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Jul 18, 2021 10:03PM RK2020 wrote:

Positive2Strong - I got a loading dose of Fulvestrant (the butt shot) so my first two treatments were two weeks apart. Monthly after that. Good luck.

Dx 5/2016, IDC, Right, 1cm, Stage IIA, Grade 3, ER+/PR+, HER2- Dx 3/2020, IDC, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Chemotherapy AC + T (Taxol) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy External: Bone
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Jul 19, 2021 05:25AM JoynerL wrote:

Positive, I got the same: loading dose in each fanny cheek first (as recommended by the manufacturer to get medication levels up quickly) and then two weeks later a similar dose, followed by once every month thereafter.

There are some tricks which seemed to work to make the shots more tolerable:

Be SURE that the nurse (or you) warms the shots before administration. Your underarm is a great spot for warming most efficiently. Don't let them give it to you cold from the refrigerator.

Though this may or may not be possible depending on the facility, if you find a nurse who administers particularly well, ask for that nurse each month.

Some take Claritin two days before, day of shot, and two days later to stave off soreness. The generic is loratadine and is cheaper.

I found online that this helps, and it seemed to for me: Lean on the examining table and take the weight off of the "shot" side buttock before shot is administered by crossing the shot side ankle behind the supporting ankle as you get each shot, releasing muscle pressure on the shot side.

Truly, it's not so bad. Good luck with all of your treatments. We're pulling for you.


--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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Jul 19, 2021 05:27AM JoynerL wrote:

One last thing, Positive: walk briskly as soon as you can when you're done and try to twitch your fanny around to get the medication moving and distributed more quickly.

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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Jul 19, 2021 08:15AM RK2020 wrote:

Positive - one last thing on the butt shots…I immediately but gently massage the area for a few seconds to help disburse the liquid. I never get lumps anymore.

Dx 5/2016, IDC, Right, 1cm, Stage IIA, Grade 3, ER+/PR+, HER2- Dx 3/2020, IDC, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Chemotherapy AC + T (Taxol) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy External: Bone
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Jul 19, 2021 10:57AM - edited Jul 19, 2021 10:58AM by star2017

I also had three sets of fulvestrant shots two weeks apart and then once a month. Walking definitely helps. I'll try rubbing the spots too!

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/18/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Verzenio

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