Join Us

We are 225,763 members in 83 forums discussing 164,200 topics.

Help with Abbreviations

Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by Moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
Log in to post a reply

Page 866 of 889 (26,668 results)

Posts 25951 - 25980 (26,668 total)

Log in to post a reply

Jul 19, 2021 02:26PM sunnidays wrote:

I got the results of my first set of scans and its stable after 4 months of Ribociclib and Letrozole, she also said the tumor marker test would no be reliable for me because it's always been in the normal range, she said they just don't work for some people? I am a bit disappointed its not NED am I being a bit silly she did say its a good result?

Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
Log in to post a reply

Jul 19, 2021 03:23PM NCYogi wrote:

Hey Sunni,

I think stable is fantastic! Give it more time.. hopefully NED is right around the corner. 🙏🏼🙏🏼🙏🏼

Dx 6/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy Kisqali
Log in to post a reply

Jul 19, 2021 05:02PM Positive2strong wrote:

thanks All,

Rk2020

Star2017

Joyner

I am wondering if any of the shots medications will interfere with surgery if I decide to have it. I still am walking on crutches so walking after the shots will be limited. I have pain in right upper thigh…so wondering how the shot will feel. How soon did you all start taking Ibrance

I really feel I am not knowing much at all except that I will take Ibrance

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 19, 2021 05:19PM star2017 wrote:

Positive2Strong, will you be undergoing radiation?

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 19, 2021 05:20PM star2017 wrote:

Positive2Strong, I had hip/thigh pain at the top front of my leg when I began the fulvestrant shots. I do think I was a tiny bit achier, but it wasn't obvious.

But generally, my tumor site pain resolved mostly with radiation.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 19, 2021 05:24PM Positive2strong wrote:

star 2017

I already had 10 treatments of radiation

I stil have pain, some days not as bad.

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 19, 2021 06:15PM star2017 wrote:

Im sorry it didn't give you more relief, Positive2Strong. Hope the pain eases soon.


Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 19, 2021 07:12PM DivineMrsM wrote:

I am very grateful any time I get a stable scan. Don’t let yourself be robbed of feeling good about being stable. I learned to savor stable results and let myself breathe a little more freely for the next six months or so till next scan time.

found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
Log in to post a reply

Jul 19, 2021 08:49PM RK2020 wrote:

Positive2Strong - My timeline was like this…first Fulvestrant (butt shot) and Zometa infusion (bone strengthener) on March 11. Femur rod surgery on March 24. First day of Ibrance on March 27. In hindsight, I would have put off starting Ibrance for a couple of weeks after surgery. My oncologist didn’t want me starting it before surgery but thought right after was ok. My body needed time to mend. Although many women tolerate it well, 125 mg Ibrance was too strong for me. After 14 days on 125 Ibrance, I had to drop to 100 and then 75 mg. My femur healing process was definitely impacted by the strong dose of Ibrance. Once I was lowered to 75 mg, I healed very quickly.

Dx 5/2016, IDC, Right, 1cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 6/19/2016 AC + T (Taxol) Hormonal Therapy 12/31/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/2020, IDC, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 3/10/2020 Faslodex (fulvestrant) Targeted Therapy 3/26/2020 Ibrance (palbociclib) Radiation Therapy External: Bone
Log in to post a reply

Jul 19, 2021 09:59PM cowgal wrote:

buttonsmachine - you mentioned that you were worried that your tumor at 12 cm was too large to be help with radiation. My tumor on my clavicle was over 7 cm and I had radiation that finished in March 2020 and when I had my next scan in July 2020 I was NEAD! I hope you get the same result but at least get some reduction in size and get it under control. Keep in mind with radiation that the cancer doesn't die immediately. It dies when the cells try to divide so the slower your cancer grows, the slower the cancer dies.

Log in to post a reply

Jul 19, 2021 10:27PM Positive2strong wrote:

RK2020

And othersTomorrow I get the shots of Faslodex and one shot of xgevia.

Still dogging the surgery on my thigh bone. I have pain there so concerned about the shots tomorrow making it worse.




Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 20, 2021 01:20AM Positive2strong wrote:

Joyner L

Thank you for your advice and concern. Are you still getting monthly shots.

I was feeling better, less pain in leg and then today, I have more pain.

I do not have Claritin but I do have Motrin

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 20, 2021 03:57AM sunnidays wrote:

I am being silly about being stable, it is a good thing, normally I am extremely optimistic and upbeat, so it was an odd reaction from me. Anyway, things could be worse a friend of my younger daughter who is only 28 had been diagnosed with a brain tumor it took them 8 hours to do the operation. Good luck to everybody.


Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
Log in to post a reply

Jul 20, 2021 05:22AM JoynerL wrote:

Positive, I'm no longer on Ibrance and Faslodex. I am still on Xgeva, and I'm likely to remain on that drug. 31 months ago, after 23 successful months on I/F, I had some progression and have been on Xeloda since. I believe that the effectiveness of Claritin is based on its allergy-relief properties rather than on pain relief. Others can speak to that. Good luck! You can do this.

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
Log in to post a reply

Jul 20, 2021 09:16AM GoKale4320 wrote:

Positive 2Strong - how long ago did you have radiation? My pain relief from rads was not immediate. It took a full 6 weeks for it to get better. And I think I saw continued improvement a few weeks later.

Sunnidays - congratulations on stable. It’s a great report to have this early. Also it means you can continue with your current meds to give them more time to improve your condition.


Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
Log in to post a reply

Jul 20, 2021 11:25AM emac877 wrote:

Positive2strong - I had the same surgery that you are having and that RK2020 and BevJen had. My met had eaten most of the femoral neck and ball of the hip joint. I didn't get it cleaned out as the tumor consumed most of the bone. I had radiation post-op and that did help the pain. The surgery was a bit emergent because they felt the fracture risk was so great. You've already gotten a lot of good advice here so I won't repeat it. It's a big surgery. I would say the first two weeks are the hardest. Just learning to balance and do all the necessary daily things after surgery. Keep up with the pain control. I can't remember who said it but the more you work through mobility and keep it moving the better off you will be. I had my surgery in December 2019 and by March was walking without a cane. I do still have some residual pain from time to time but I was out of shape going into surgery and it is better the more I stay active on it and stretch it. I have an active job and have been able to return with very little issue at this point but it took a good six months getting there.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Radiation Therapy 12/23/2019 External: Bone Surgery 12/31/2019 Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 12/9/2020 Aromasin (exemestane) Hormonal Therapy 6/23/2021 Faslodex (fulvestrant)
Log in to post a reply

Jul 20, 2021 12:37PM Positive2strong wrote:

Go Kale

My last radiation treatment was one week ago. Yesterday I had very little pain and I thought it was improving but today back to pain.

I had to cancel my appointment today for injections as my husband fell.

I didn’t feel great anyway. They rescheduled it one week from today. Today’s appt was early and I’m not great in the am next weeks is at 4 pm so that is much better for me. My husband is worried a week is too long. Also I am not sure I should be on medications if I have the surgery.

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 20, 2021 01:11PM moth wrote:

Positive2strong, fulvestrant and xgeva are not usually needed to be stopped before surgery. Your surgeon's office would confirm it - I suggest you call them and give them those two drug names. Usually they're only concerned about blood thinners & some blood pressure and diabetes medications. Call the surgeon's office and give them the list of meds, their prescreening nurse will go through it.

I hope your husband is feeling ok after the fall!

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Jul 20, 2021 01:18PM buttonsmachine wrote:

cowgal, thank you for your words of encouragement! That is exactly what I needed to hear today. I'm starting radiation this afternoon, and I'm hoping for some relief.

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 4/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/15/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Log in to post a reply

Jul 20, 2021 04:06PM Positive2strong wrote:

Moth,

Thank you they called me to pick up Ibrance and said I could start that.
My husband is sleeping almost all day with ice packs

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 20, 2021 04:40PM Olma61 wrote:

sunní days - yes, tumor markers are not reliable for everyone and some doctors don’t use them


10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Jul 20, 2021 05:35PM - edited Jul 20, 2021 05:38PM by EndoraFTW

Hello all.

Catching up on reading about folks' intervention histories and current weather. I met with my MO for the first time yesterday, and have been in a tailspin. My youngest brother and biggest fan took me to the appointment yesterday and point blank asked him about my prognosis. MO turned to me and asked, “Do you want to hear this?" I said “Yes" and listened to him say “months, a year, maybe two."

And you know, I knew. This cancer has been moving so fast and last week's PET scan had my entire spine and rib cage lit up like a Christmas tree. I can feel the “very concerning" (MO) thoracic mass that's been so painful, and the pelvis area which is making walking on right leg tough.

I know no one knows, and stats aren't truth (or God), but please help me with words of hope. I see you go through so many procedures and various interventions, and I'm just starting on the road. I don't feel I've got the strength (mental or emotional) to do it. Life has already beaten me down the past 3 years, and getting up gets harder after each punch. I'm alone and support is low. How am I going to get through all of this? I pray my never wrong intuition is skewed due to fear and lack of info. *sigh*

Log in to post a reply

Jul 20, 2021 05:54PM Positive2strong wrote:

Did your MO prescribe anything yet. What city are you in. Did you have radiation yet.

Hang in there

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 20, 2021 06:09PM - edited Jul 20, 2021 06:10PM by Olma61

Im so sorry to hear of the pain and struggle you all are going through. Prognosis- a lot depends on how you respond to treatment. If you're Stage 4 at diagnosis and never been in treatment, stats are a little better. If you're HER2+ and respond to treatment, stats are a little better. Stats are a little better for ANY subtype that responds right away to treatment.Hang in there - stats say what they say but we are still individuals. Take it one step at a time for now and see how your treatment goes

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Jul 20, 2021 07:04PM Positive2strong wrote:

Moderators,

I have updated my diagnosis but it does not show up. What am I doing wrong

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 20, 2021 09:01PM Sadiesservant wrote:

Hi Positive,

So sorry you are going through so much. It’s so tough at the beginning but I sincerely hope things improve soon.

You may need to go in to set it as public. The updates are private by default.
Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin)
Log in to post a reply

Jul 20, 2021 09:54PM - edited Jul 20, 2021 09:58PM by DivineMrsM

Endora, we know so little about you; can you say if you are dealing with hormone positive or negative bc; and what treatment options your oncologist has given you; if the metastases is confined to just the bones or elsewhere, too. Is this your first go-round with bc? Are you in the U.S.?

Some oncologists will not give you a timeline or expiration date. Does your oncologists specialize in cancer of the breast? Some doctors don't realize there are more women these days living a long time with metastases.

The day I got the news, my oncologist said very firmly, “With treatment, you could live years." I have always loved her for presenting it to me in that way, and that was 10 years ago.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
Log in to post a reply

Jul 21, 2021 03:48AM Positive2strong wrote:

Divine Mrs. M,

Keep posting your story as it gives me hope. I start Ibrance tomorrow and then my shot on next Monday.

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
Log in to post a reply

Jul 21, 2021 10:58AM Bigbhome wrote:

Hi All, I have not been on for awhile and thought it time to check-in!

A year and a half ago, I decided that I was not happy with my quality of life. So I went off all treatment for a few months and then started Exemestane, tolerable, but did nothing. Then Tamoxifen, intolerable. So we did Foundation One testing and are waiting on results to determine future treatments. I have burned through several treatments and have very few that I am willing to try left, but I have made peace with that.

In the meantime, we have taken our horses and are traveling and trail riding mostly out west! I feel like I have finally been living instead of just existing! This is what I dreamed of for years! We have met so many wonderful people and seen so much beauty in our country, I will never regret it ❤. Doctor visits have been tricky, but that's OK, I am over those also. I get scans whenever I feel like it, instead of every 3 months.

I am still bone Mets only and I'm 9years and 3months from diagnosis!

There are too many wonderful people for me to personally acknowledge but, you know who you are! Please know that I pray for you everyday!

Happy trails to you ❤,

Claudia

Log in to post a reply

Jul 21, 2021 11:05AM Sunshine99 wrote:

Claudia, that sounds wonderful! I'd love to see some pictures of your trail rides and your horses.

Cancer has progressed to my bones. I pray that it never enters my soul. my-sunny-side-up.com Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)

Page 866 of 889 (26,668 results)