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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 22, 2012 01:09AM - edited Oct 28, 2021 12:22PM by Moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jul 21, 2021 08:09AM GoKale4320 wrote:

Bigbhome - we haven't met, but I am intrigued with your story. Maybe traveling and trail riding is the therapy you need. I love that you are doing so well so far out from your diagnosis. Thanks for checking in. I wish you the best!


Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Jul 21, 2021 09:16AM Bigbhome wrote:

Sunshine99, if I can remember how, I will post pics. The medical anomaly for me is that while I am riding my horse, I have no pain! No one knows why, but I don't, si instead of hiking (almost impossible) I can ride and enjoy how beautiful this country is!

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Jul 21, 2021 09:23AM moth wrote:

Bigbhome, what grade is your cancer?

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jul 21, 2021 10:07AM illimae wrote:

Bigbhome, it’s wonderful to see you back on the boards and even better to hear you enjoying life.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Jul 21, 2021 10:27AM candy-678 wrote:

Bigbhome- Glad you are enjoying life.

So many have commented that when off treatment they feel so much better. Wow. We need the treatment, but funny, not the haha kind either, that the treatment is what is making us feel icky, not necessarily the cancer. Hum....

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Jul 21, 2021 01:30PM Positive2strong wrote:

To All,

I picked up Ibrance today. Does anyone have any advice on taking it. I have looked for a thread on Ibrance. I just feel so week today.

I was great last night. Really very little leg pain.

Then my husbands back went out about midnight, he fell going up a step.

And then we were up until 5 am.

He can not walk at all. We have matching sets of crutches. So I am worried about taking it if I have bad side effects until my husband can get better. Your thoughts.

Also I probably should schedule my leg surgery.

Most of you are so wise and strong.

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 21, 2021 01:57PM JoynerL wrote:

Positive, there’s an excellent string on Ibrance called “ Ibrance (Palbociclib)”. There’s another fo

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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Jul 21, 2021 01:59PM RosieRed wrote:

Positive - I take my pill with a glass of milk to coat my stomach. Otherwise I’ll get a tummy ache from it.


Dx 5/9/2018, LCIS/DCIS, Both breasts, 6cm+, Stage IIA, Grade 2, 8/9 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 6/13/2018 AC + T (Taxol) Surgery 11/13/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 11/30/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/7/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/1/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 2/9/2021, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 2/21/2021 Ibrance (palbociclib) Hormonal Therapy 2/21/2021 Faslodex (fulvestrant)
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Jul 21, 2021 02:26PM JoynerL wrote:

for Ibrance and Faslodex.

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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Jul 21, 2021 02:41PM Bigbhome wrote:

Moth, my cancer is grade B.

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Jul 21, 2021 02:53PM Positive2strong wrote:

Rosie Red

Do yo get any side effects? And do you take at night or daytime

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 21, 2021 04:21PM RosieRed wrote:

Positive - I take it at night because I feel a little dizzy from it. Rather ride out that SE while I sleep. Otherwise I feel fine.


Dx 5/9/2018, LCIS/DCIS, Both breasts, 6cm+, Stage IIA, Grade 2, 8/9 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 6/13/2018 AC + T (Taxol) Surgery 11/13/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 11/30/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/7/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/1/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 2/9/2021, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 2/21/2021 Ibrance (palbociclib) Hormonal Therapy 2/21/2021 Faslodex (fulvestrant)
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Jul 21, 2021 04:22PM star2017 wrote:

I had bloodwork done yesterday and was waiting for the ok to start Verzenio. Just heard that my liver function seems off and they want to run more tests.

I'm scared.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
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Jul 21, 2021 04:39PM moth wrote:

Bigbhome, thx. I've never heard of grade b so I dont know what that means. We usually get grades 1,2 or 3. No biggie, I was just trying to figure out if yours is very slow growing like a grade 1 ... glad you're doing well:)

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jul 21, 2021 05:06PM KBL wrote:

star2017, I’m so sorry you’re scared. I am sending you virtual hugs.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Jul 21, 2021 05:42PM NCYogi wrote:

Star, I know some of our drugs are hard on the liver. Do you think you (just) might need a break to allow for some recovery? Hang in there… sending you good vibes for a positive outcome

Dx 6/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy Kisqali
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Jul 21, 2021 06:36PM star2017 wrote:

I'm only on fulvestrant for now.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
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Jul 22, 2021 06:24AM GoKale4320 wrote:

Star 2017 - when they say the liver numbers are a little off, a lot of times the numbers are still within the normal range, but the oncologist wants the numbers to be exceptionally good. Hoping this is the case for you. Also, when they tell me this, I increase the foods that particularly help the liver like brussel sprouts, other cruciferous veg, beets, tumeric and lots of water.


Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Jul 22, 2021 06:35AM star2017 wrote:

Thank you for the advice, GoKale. I'm going to be extra cautious with foods for the next few days.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 8/4/2021 Verzenio Targeted Therapy Lynparza Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
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Jul 22, 2021 06:52AM kjnsweets wrote:

tried finding this but couldnt

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Jul 22, 2021 06:00PM Positive2strong wrote:

rose red and others,

I took my first Ibrance pill ast night. I did take with milk. I feel ok today. Does it take awhile to get SE.

To all that had Mets or tumor on femur thigh area ….I am still debating the surgery to put a pin in there.

Yesterday was a bad day back to some bad pain if I turned my leg the wrong way.

Today is a better day…so less pain.

To all of you that had the surgery WAS YOUR PAIN LESS AFTER SURGERY? a how long was rehabilitation.

I know some of you have replied. Seems I am afraid of all what is happening. That butt shot is next Monday.

Someone mentioned they felt better on treatment…is 5hat true for most. so far I haven’t taken pain pills only Motrin…I am the worst at taking pills.

I went for so long without any medical problems but boy am I catching up now.

I love hearing from all of you. I really hav3 no one to talk t

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 22, 2021 06:50PM MKestrel wrote:

Positive2strong here's a link to some info, heavy read but something to consider

"recent study showed that patients who underwent prophylactic fixation have improved post-operative outcomes than patients who underwent fixation after pathological fracture, including longer survival, and shorter hospital stay"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC52216....

My surgery was thoracic spine vertebrectomy and fusion with lots of hardware (not the leg) but after surgery and radiation I have much less pain, and of course much better at walking. Physical therapy has been a critical part of recovery. I was allowed to do normal things after 6 weeks which is a pretty good average after surgery and I've had several ugh 😩

Your case and your choices are of course unique to you, and I hope you get some relief from the pain and stress. I feel like I'm in an avalanche..

I would rather be hiking Dx 12/14/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Dx 3/7/2021, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Targeted Therapy 9/22/2021 Verzenio Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Jul 22, 2021 08:01PM - edited Jul 22, 2021 08:08PM by emac877

This Post was deleted by emac877.
Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Radiation Therapy 12/23/2019 External: Bone Surgery 12/31/2019 Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 12/9/2020 Aromasin (exemestane) Hormonal Therapy 6/23/2021 Faslodex (fulvestrant)
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Jul 22, 2021 09:30PM Positive2strong wrote:

MKrestel,

Thanks, I opened up the link, my ipad is having a hard time with the pages moving them

So just read some of it. I will try again. I am 70 years old and the Dr made it sound simple a n hour to 1 1/2 hr surgery

When you had your surgeries were you on your cancer meds like Ibrance etc

Hope you are doing better

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jul 23, 2021 02:39AM MKestrel wrote:

Positive2strong sorry it's a really long article. I was just trying to show it might be better to stabilize the bone before it breaks. Ask your doc. My surgery was an emergency because the tumor completely filled a backbone, was squishing my spinal cord and about to collapse. I had no idea I had mets and was not on anything except tamoxifen.

I would rather be hiking Dx 12/14/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Dx 3/7/2021, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Targeted Therapy 9/22/2021 Verzenio Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Jul 23, 2021 05:24AM SondraF wrote:

The thing is, when dealing with any illness the worst thing that can happen outside of direct pain from the tumor is loss of mobility. You need to be able to be up and walking and moving so your body can function correctly and avoid blood clots or pneumonia. Its partly why patients are encouraged to walk soon after surgery and PT is so important. When I was in hospital for my sacral met (diagnostics rather than surgery) a South Asian lady in her mid 80s was also on the ward, recovering from thyroid surgery. She was tiny, was never awake and every time I would hobble past her bed she seemed to be shrinking further and further down the bed and flatter and flatter. Two days later she collapsed in the bathroom and all of a sudden doctors were talking about pneumonia had settled in her lungs, in addition to an impacted bowel (yeah, there is NO privacy in British hospitals). At no point in those two prior days had a nurse or anyone come by to get her up and moving, or encouraged her family to help her to be up and moving.

If you stabilize the bone now with a short surgery it will allow you to be up and mobile with confidence and to regain strength and exercise, which is really important for dealing with (potential) treatment side effects. A short surgery like that shouldn't be a big deal with the Ibrance - I had my ovaries out (similar surgical time) on my off week and was just fine. A broken femur, however, will be much more painful and take longer to heal in a cast. Best to head that off at the pass if possible!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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Jul 23, 2021 07:54AM - edited Jul 23, 2021 07:57AM by Nan812

Hello everyone...I'm just checking in, its so nice to see you long timers here. I've been doing just fine, they say all my cancer is still there it just hasn't been doing anything . When people ask I tell them its all sleeping. If its anything like me, it will stay asleep for a very long time lol.

Bigbhome, illimea, and divine miss m its especially nice to see you...my memory just keeps getting worse but I do remember you. There is just to much to read but I'm so glad I clicked on this thread and saw all of you.

Sending everyone here all my prayers and love...Nancy


DX 03/13/15;stg4;TN;BRAC1; both breasts,lymph,lungs,bones,adrenal,spleen,brain; 2x8moths chemo,Abraxane /Cytoxan/Adriamycin 2015; gammaknife 5 brain tumors 2015; GK 1 brain 2016; Rad/adrenal 2016; craniotomy2017; GK2017,havalen & lymparza2017
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Jul 23, 2021 10:54AM Duzy wrote:

ok so new to this thread. I was diagnosed with BC in 2015 and went through all the treatments and have been on Letrozole since. I never had to many side effects from it so was told I would be on it for 10 years. Well end of June I tripped fell into a door and broke my humerus bone in my right arm. After initial X-rays they suspected a pathological fracture and I needed more tests. I was in really good shaped and felt really good. Initial bloodwork did not indicate anything was off. Had Ct with contrast and the in depth bone scans. Everything was clear except a focal uptick in this one bone. My oncologist wanted a biopsy to be sure and low and behold it was ILC. I am beyond shaken as to what happens next with treatments. With only one met will I stay on just a AL just something different. How soon will other spots show up. All unknown answers that go through my mind. I have an appointment on 8/9 to follow up with my oncologist. In the meantime I have had surgery to put a rod through the bone this week and in 2 weeks will start 10 rounds of radiation

Thanks for listening and I will go in and update my treatments soo

Dx 7/5/2015, ILC, Left, 5cm, Stage IIIA, Grade 2, 2/8 nodes, ER+/PR+, HER2- (FISH) Surgery Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left Chemotherapy AC + T (Taxol) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jul 23, 2021 11:05AM GoKale4320 wrote:

Hi Duzy - sounds like they caught the mets early and that will work in your favor. A treatment plan will go to work on the bone mets and that will help you in the long run. It's very upsetting, but I felt a little better once I had a plan in place. It's also great that you are in top physical condition; strong bones will help slow down the cancer.

Take care!


Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Jul 23, 2021 12:23PM illimae wrote:

Nan! OMG NAN!!!! This made my day, so happy to see you and hear you’re well.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)

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