Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 03:09AM - edited Oct 28, 2021 02:22PM by moderators

Posted on: Jun 22, 2012 03:09AM - edited Oct 28, 2021 02:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Sep 24, 2015 05:48PM txmom wrote:

Amy such a bummer. Hoping your new plan will knock the mets back. So glad it's not in your organs but I totally understand your disappointment.

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Sep 24, 2015 05:54PM AmyQ wrote:

Thank you for your kind words and encouragement. Good points regarding short chemo regimen and Femara - I hadn't heard this before. I will keep my chin up and be thankful for what I do have AND I'll look forward to a new treatment plan with results.

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Sep 24, 2015 06:57PM GoldenGirls wrote:

Linda - I managed to squeeze more information out of her and from what I have pieced together, it is the femoral head that has collapsed and is rubbing against the socket. She's waiting on an appt with the radiation oncologist who will tell her how much radiation to that spot and what his recommendations are for other spots in her lumbar spine and sacrum.

The oncologist is worried that this collapse is due to progression not getting picked up by the scans, but also said that it could just be the result of wear and tear over the past 3 years. He was under the impression that she'd had radiation to the lower back/pelvis when first diagnosed because that's where most of her damage was, but at the time the radiation oncologist only treated the two spots that were causing her pain (clavicle and T5).

Hoping it's all just wear and tear from the mets and not a sign of progression.

Mom was originally dx in 10/2001. Mets to bones and 2 supraclavicular nodes in 01/2013. She passed away from complications from bone metastases Dec 2016.
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Sep 24, 2015 07:57PM - edited Sep 25, 2015 06:14PM by dunesleeper

I had indulged in a long. Thanks for the internet in Dusty. He fell off his perch thtee times last night,


OK. I have no idea what I was trying to say there.

Dx 2/7/2012, IDC, 4cm, Stage IIB, Grade 3, 1/31 nodes, ER+/PR+, HER2- Surgery 3/6/2012 Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 9/3/2012 Reconstruction (right) Hormonal Therapy 8/19/2014 Arimidex (anastrozole) Dx 8/20/2014, IDC, Stage IV, Grade 3, mets, ER+/PR+, HER2- Dx 4/17/2015, IDC, Stage IV, Grade 3, ER+/PR+, HER2- Chemotherapy 5/3/2015 Taxol (paclitaxel) Chemotherapy 7/9/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 8/31/2015 External: Bone Targeted Therapy 10/23/2015 Ibrance (palbociclib)
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Sep 24, 2015 07:57PM ChelleG wrote:

Gaia, I'm so sorry you are in such horrible pain! Wishing you a great MRI result! I will pray fo a pain free restful night. Hang in there

Dx stage IV de novo 9/10/2015 with bone mets. Dx 9/10/2015, ILC/IDC, Both breasts, 2cm, Stage IV, Grade 2, ER+/PR+, HER2- Dx 9/10/2015, ILC/IDC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/15/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 24, 2015 08:11PM AmyQ wrote:

Dune,

Poor little Dusty. I hope he doesn't re-injure himself again.

GoldenGirls, sort of funny when we hope our body parts wearing out are the cause of our pain, rather than progression. My prayers for a clean scan for your mom.

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Sep 24, 2015 08:47PM steelrose wrote:

Amy,

Just read your news and I'm so, so sorry. The same thing happened to me in May after 4 years NED… it's back in my spine and ribs. GRRR… I've been on chemo since June, and am switching to Ibrance/Aromasin soon. You will get this under control!!!! The fact that you were NED for so long is promising. Wishing you the best!!

Rose.

Dx 1/22/2010, IDC, Stage IV, mets, ER+/PR+, HER2-
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Sep 24, 2015 09:00PM AmyQ wrote:

Hi Rose,

I'm sorry you had a similar thing happen but it provides comfort knowing you've done well with a new plan. I guess I shouldn't be so surprised because my left hip has hurt like a bugger for many months now and recently my back, shoulder and top of my shoulder have started to hurt too. One of the first things my onc did was refill my Oxycontin prescription. No point in being a hero, right? I hope you stay with NED for many many years. Thanks Rose for your comments and well wishes. Every bit helps tremendously.

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Sep 24, 2015 09:06PM LindaE54 wrote:

Goldengirls - sounds painful - rads will certainly help to reduce the pain and stabilize the bone. Praying it's wear and tear. BTW, your Mom is lucky to have you around and keeping abreast and proactive.

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/28/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/17/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/5/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Sep 24, 2015 09:31PM steelrose wrote:

Amy,

My MRI was mixed, but CT was clean. The bones seem to hide out in the CT scan. No, you should not be in pain! I hate those pain pills but the alternative is much worse. I guess my onc.'s reasoning with the chemo was to prevent further spread. I'm hoping that we both can get back to NED ASAP!

Hang in there...

Dx 1/22/2010, IDC, Stage IV, mets, ER+/PR+, HER2-

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