Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Sep 24, 2015 10:55PM ChelleG wrote:

Amy, I'm so sorry, what a heartbreak! Don't lose your hope. You can kick its ass again! Steel rose, I'm so new, that I didn't know that you had recently suffered the same crap news. Kick ass ladies, you are my heroes

Dx stage IV de novo 9/10/2015 with bone mets. Dx 9/10/2015, ILC/IDC, Both breasts, 2cm, Stage IV, Grade 2, ER+/PR+, HER2- Dx 9/10/2015, ILC/IDC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/16/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 24, 2015 11:23PM steelrose wrote:

(((Chelle)))

Ups and downs are part of this mess. But we're all still here. Yay!!!

Thinking of you and hoping that Tamoxifen cleans it up!

Dx 1/22/2010, IDC, Stage IV, mets, ER+/PR+, HER2-
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Sep 24, 2015 11:47PM ChelleG wrote:

Steelerose, me too! The mood swings are crazy. I haven't felt this out of control since I first started my periods at 10 years old. It's only been a week, but I feel positive about the treatment. Everyone was right about "it" getting better after you have a treatment plan in place. It was so hard to absorb the news. But aside from my tamoxafin tantrums, I am feeling much more myself these days. You have all helped me get here. A simple thank you does not express my gratitude! I'm humbled by your strength. I really do love you all

Dx stage IV de novo 9/10/2015 with bone mets. Dx 9/10/2015, ILC/IDC, Both breasts, 2cm, Stage IV, Grade 2, ER+/PR+, HER2- Dx 9/10/2015, ILC/IDC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/16/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 25, 2015 01:26AM kjones13 wrote:

shit shit shit Amy! Sorry for the active cancer. I hope your new treatment plan gets you back to ned soon!

James 1:2-4 Dx 9/14/2012, IDC, 6cm+, Stage IV, Grade 3, 11/11 nodes, mets, ER+/PR-, HER2- Surgery 10/9/2012 Lymph node removal; Lymph node removal (Right): Sentinel Targeted Therapy 10/17/2012 Herceptin (trastuzumab) Targeted Therapy 10/17/2012 Perjeta (pertuzumab) Chemotherapy 10/17/2012 Taxol (paclitaxel) Hormonal Therapy 3/1/2013 Surgery 10/24/2013 Mastectomy; Mastectomy (Right)
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Sep 25, 2015 04:15AM KiwiCatMom wrote:

Sending hugs to those in pain. Amy - bugger! Golden - hope it's wear and tear. Steelrose - glad you have a good treatment plan. Deanna - hope the dentist went ok. Linda - glad you're better. Chelle - hope the SEs fade. Dune - hope you and Dusty have a better day tomorrow.

Hugs to all

Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/19/2006 Lumpectomy: Left Hormonal Therapy 12/10/2006 Radiation Therapy 12/15/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/19/2013 Femara (letrozole) Radiation Therapy 2/19/2013 Bone
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Sep 25, 2015 06:15AM ChelleG wrote:

Hey there kiwi, how's it going? Have they gotten to the bottom of the tummy troubles? I hope that it's a simple remedy. I'm an insomniac these days. I have been awake for a couple of hours. It's now 4:00 a.m. In Colorado. Nothing really bothering me. Just awake. I thought you might be settling down for the day down under

Dx stage IV de novo 9/10/2015 with bone mets. Dx 9/10/2015, ILC/IDC, Both breasts, 2cm, Stage IV, Grade 2, ER+/PR+, HER2- Dx 9/10/2015, ILC/IDC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/16/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 25, 2015 06:48AM Lindalou wrote:

Chelle- Insomnia and mood swings here too. I think we should all meet for 3:00 am coffees!

Amy- Crap is right. Hoping a new treatment plan will slow/stop the progression. I'm with you on the Oxy. Don't like it but it can help.

LindaE- Let us know about the Xgeva or Aredia ( in a LONG infusion) this time. I'm a week behind you with either Xgeva or longer Zometa. We'll have to compare notes.

Deanna- How are you doing today after your extraction?

Amie- Thinking of you and your family. How are you doing?

In an effort to keep walking I think over did it too. I started out great and then slowly my hip and back rebelled. I was down to inching along. My neighbor saw me walking and pulled his car over. Gave me a ride back home. Then he gives me this gentle hug. How sweet is that?

Good Friday to all.


Linda Dx 11/1/2007, ILC, Left, Stage IIB, Grade 3, ER+/PR+, HER2- Dx 8/2009, Stage IV, metastasized to bone Dx 5/13/2014 Targeted Therapy 4/21/2017 Ibrance (palbociclib) Chemotherapy 10/2/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 10/23/2017 Xeloda (capecitabine) Radiation Therapy External: Bone Radiation Therapy External: Bone Surgery Mastectomy: Left, Right Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy External: Bone Radiation Therapy Bone
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Sep 25, 2015 08:09AM annieoakley wrote:

Hello everyone,

I was MIA yesterday and paying a horrible price for it today. Two of my good friends took me and my daughter to a place called St. Jacobs Market, about a 2 hour drive from where I live. It is the most massive market I have ever seen but absolutely incredible. So lots and lots of walking and oh my God I am in agony today! So I will have to sit home and eat all the yummy deserts I bought. As we were driving out of the parking lot we saw a group of men frantically trying to get a bull that had gotten loose, the bull was headed in the direction of the crowd at the market, I already felt like I had been hit by a truck I certainly wouldn't have wanted to get charged by a bull! Thank God we were already in the car, I'm not sure what happened once we drove away but I hope they got him. I was scared for all the people there.

Going to go back 2 pages and read so I can address everyone here.

Hugs to all, Annie

Surgery 5/8/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/23/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/28/2012 Surgery 2/1/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/12/2013 Prophylactic ovary removal Surgery 9/4/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/4/2014 Femara (letrozole) Radiation Therapy 12/1/2014 Bone
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Sep 25, 2015 08:21AM 50sgirl wrote:

My goodness, Annie, you sure do find excitement when you go out, don't you! I can't say that I have ever seen a bull get loose. It must have been frightening for the people in its path. I am sorry that you are suffering such pain now. Take it easy today so you can recover from overdoing things yesterday. Enjoy eating those delicious treats.

Lynne

Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 6/9/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/9/2016 Faslodex (fulvestrant) Targeted Therapy 8/30/2016 Ibrance (palbociclib) Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/1/2018 Xeloda (capecitabine) Chemotherapy 2/10/2019 Taxol (paclitaxel) Hormonal Therapy 11/11/2019 Aromasin (exemestane) Targeted Therapy 11/12/2019 Afinitor (everolimus) Hormonal Therapy 12/26/2019 Femara (letrozole) Chemotherapy 3/7/2020 Adriamycin (doxorubicin) Targeted Therapy 2/5/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 9/30/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex) Chemotherapy 2/11/2022 Ixempra (ixabepilone)
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Sep 25, 2015 08:35AM annieoakley wrote:

50sgirl, I've never seen a bull get loose either, scary stuff! This market has a large Mennonite community so alot of nearby farms, they even offered horse drawn carriage rides. We could see a couple of barns behind the property as we drove out and we think that's where the bull came from, I hope no one was injured.

Rachel1, praying for good results on your scan, I totally understand you not wanting to go to the appt but you need to be there. I always bring someone with me, a friend or my dh, sometimes I find the courage to go alone but not too often.

Cjanet, hoping dh finds another job to help supplement the income. My dh is laid off again, second time this year so we are currently living on unemployment and my disability. 

Deanna, thinking of you, how was the tooth extraction? 

AmyQ, damn I was wanting to hear stable or NED as I'm sure you were. You got a long run out of the first treatment but of course we all want longer. Praying your next treatment does that for you and I'm so glad it's still bone only.

Goldengirls, sorry about what your mom is going through, she's so lucky to have you. Prayers for things to get under control quickly.

Terre,  how's the tummy? 

Linda, the shopping was amazing, so much stuff from food, clothes, crafts. My body is angry at me though :(

Hugs to all, Annie

Surgery 5/8/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/23/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/28/2012 Surgery 2/1/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/12/2013 Prophylactic ovary removal Surgery 9/4/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/4/2014 Femara (letrozole) Radiation Therapy 12/1/2014 Bone

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