Sep 25, 2015 09:09AM GoldenGirls wrote:

Thank you everyone. And Amy, I am sorry to hear about the progression. Hoping the next treatment kicks ass!

Annie - I didn't realize you're in Ontario! I love St. Jacob's! It's almost 2 hours from us too, but worth the drive. (We're in Port Dover, recently moved from the GTA).

Sep 25, 2015 11:33AM dlb823 wrote:

Oh, Amy, I read your post about your scan results as I was leaving UCLA yesterday, but didn't have a free hand to respond in the car. Then, by the time we got home after a 4 hr. stop & go drive (as bad or worse than the procedure), I tried to write, but was too pooped. Anyway, I'm so sorry that your scan showed increased activity. I know only too keenly how shocking it is to find out that your bc cells have figured out a way to outsmart the tx that had been working for so many months. It's like a reality wake-up call from the land of denial -- or at least that's how it was for me back in August -- and it can really throw you into a tailspin again. But I know you've been in some pain that you've been riding out, I think you will be thrilled to get on a new med and get things under control again, which you will.

My keyboard is acting up at the moment, so I'm going to stop here and will be back after I catch up on everyone else's news. Deanna

Sep 25, 2015 01:11PM tryn2staycalm wrote:

Hi everyone,

I was a steady poster on this thread not so long ago. I was on weekly Taxol till my MO stopped it due to some of my side effects. However scans showed the Taxol had shrunk both lung tumors and liver tumors it did nothing for the bone mets which were progressing. I was switched to bone radiation to target these worst mets especially in my spine. This has helped a lot but due to where my radiation was going to get to the bones I now have swallowing issues but am told that will subside soon too. I finished bone radiation Wed. (gong moment) when you get to celebrate. However my break from treatment was short lived as I was taken from my home by EMS early Thursday morning. I had a fall inside my home and now I was told that it has spread to my brain. The battle continues.

Cathy

Sep 25, 2015 01:37PM GoldenGirls wrote:

Cathy, I am so sorry to hear about your fall and your progression.

I hope I am not overstepping, but I am in the Simcoe area as well and wanted to mention that if it was the local hospital that told you it has spread to the brain, it is worth it to seek a second opinion or have another radiologist at a cancer center see the scans. They misdiagnosed my mom at NGH at the start of her mets dx. Her CT showed 3 bone mets, but also showed other incidental findings that the doctor there told us was ALL cancer and that it was throughout her body and organs. That wasn't the case. She did have bone mets, but they made the assumption based on her history that her benign lung nodules and fatty liver were also cancer and told us she was "full of cancer -- it's everywhere!"

Hoping your next treatment kicks the cancer's butt!

Sep 25, 2015 02:25PM Lindalou wrote:

HFC- Are you having pain as well in your sternum? Hoping the new chemo routine stops that progression.

Cathy- How badly were you hurt in your fall? Now brain mets on top of that? So sorry. Do you have the radiologist's report to review the brain scan results?

Amy- good that you are getting out of town and keeping busy. That will help.