Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Oct 1, 2015 11:52PM KiwiCatMom wrote:

Momallthetime - Sending hugs to you and Dani. Thanks for the update.

Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/19/2006 Lumpectomy: Left Hormonal Therapy 12/10/2006 Radiation Therapy 12/15/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/19/2013 Femara (letrozole) Radiation Therapy 2/19/2013 Bone
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Oct 2, 2015 12:04AM dlb823 wrote:

momallthetime, good to see you posting and to get caught up on Dani's situation. I can't tell you how sorry I am for the stress you've been going through, but I think Dani's onc showed you her true colors with being so willing to write Dani off her appointment schedule. Hopefully, her new onc will be 1000x better!

As far as the low counts, how low are they? Neulasta is used to increase WBCs if they are low enough to be life threatening due to the risk of infection. Without knowing what chemos her new onc has her on, it seems like any aggressive combo could put her in that situation -- with counts low enough to require Neulasta. Other than that, I know Pearlady has shared a regimen on the Ibrance thread that she uses to keep her counts higher than many of us on Ibrance have been able to do.

The only other question I have is, was Dani's bc ever tested for chemo sensitivity? As you probably know, there are tests out there (albeit expensive and possibly not always helpful) that supposedly or with luck can lend insight into the best options based on one's tumor profile. We may have talked about this earlier, but every time you post that Dani's imaging shows more progression, I can't help but wonder if that sort of test has been done or would be helpful in her situation. (((Hugs))) & prayers that Dani's newest onc and regimen will be the answer to prayer! Deanna

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Oct 2, 2015 12:15AM dunesleeper wrote:

Hi everyone. It seems like mostly good news is being reported, and I congratulate everyone who is stable or healing or having lowering tumor markers. Cristine, I'm with you as regards pain. I get so tired of it. I should be grateful that my MO has had me on pain relievers since the beginning. Still, it's not good enough. Oh well. Best foot forward. 3/16 I'm sure you enjoyed your bath in your fresh new bathroom. Now it is a place where you can truly relax and unwind.

Hey Dee. Take it easy with all the running around you'll be doing. Those daily radiation treatments are a drag. Hopefully it will help, though.

Terre, congratulations on getting your article published. Such a talented lady! I used to write so much. I can hardly string together a sentence anymore, but I try once in a while to write something. It's like I haven't an idea in my head. I'm the scarecrow. I need to travel to OZ to see the Wizard about getting some brains.

Annie I'm glad the Celebrex is working for you.

I hope we all receive statuses of stable or of improvement.

Dx 2/7/2012, IDC, 4cm, Stage IIB, Grade 3, 1/31 nodes, ER+/PR+, HER2- Surgery 3/7/2012 Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 9/4/2012 Reconstruction (right) Dx 8/20/2014, IDC, Stage IV, Grade 3, mets, ER+/PR+, HER2- Hormonal Therapy 8/20/2014 Arimidex (anastrozole) Dx 4/17/2015, IDC, Stage IV, Grade 3, ER+/PR+, HER2- Chemotherapy 5/4/2015 Taxol (paclitaxel) Chemotherapy 7/10/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 9/1/2015 External: Bone Targeted Therapy 10/24/2015 Ibrance (palbociclib)
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Oct 2, 2015 01:40AM gg27 wrote:

Dune! So good to see you here, hope you're doing ok & can get some pain relief. Momallthetime, I am in awe of your spirit & hope that the new onc helps your daughter. Terre, I did check out your other post earlier. That tiny kitten is adorable & I hope those kids get some kind of commendation.

I had a good day in the garden, DH helped me dig out & move a huge raised bed. Back at it again tomorrow while the weather is good. Take care everyone, cheers, Dee

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole breast: Breast, Lymph nodes Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone/liver/other, 9/20 nodes, mets, ER+/PR+, HER2- Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
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Oct 2, 2015 01:56AM PattyPeppermint wrote:

just a quick hello to all. I have been blown away at the love and compassion I have recieved from my bco sisters. Thank you so much for all the snail mail cards, pm's, text and even some sweet presents. Problem is most are signed by real names and I don't know exactly who they are since we use aliasa. So I can't thank everyone personally but please know it sure has put a smile on my face nearly everyday

I am back in the hospital since wed I think. Before that I was only home like 2 weeks since the previous hospitalization. Treating me for sepsis and uti. The sepsis meds keep me sleeping much of the time and makes my vision blurry and my fingers don't want to cooperate. Thus why I haven't been here. I certainly have missed y'all.

Not even trying to play catch up on so many pages but hope to start here and catch up on everybody. Seems like a lot if people are having a hard time physically and mentally. Hugs all around.


To God be the glory! Live, laugh, love... Life is way too short. Dx 6/2013, Stage IV, ER+/PR+, HER2- Hormonal Therapy 6/29/2013 Femara (letrozole) Radiation Therapy 7/5/2013 Bone Hormonal Therapy 8/1/2015 Faslodex (fulvestrant) Targeted Therapy 8/1/2015 Ibrance (palbociclib) Chemotherapy 7/1/2016 Xeloda (capecitabine)
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Oct 2, 2015 02:02AM gg27 wrote:

Patty, So glad to see you post, I am so sorry you are back in hospital again. I hope they can get this infection under control, you need to be home with your kids!! I feel bad that I didn't get to send you a card like I wanted to, but please know that I have been thinking about you often. Hugs, Dee

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole breast: Breast, Lymph nodes Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone/liver/other, 9/20 nodes, mets, ER+/PR+, HER2- Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
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Oct 2, 2015 04:56AM Bosco19 wrote:

momall

I have very low platelets each month - have been in hospital 3 times in Sept for transfusions and immunoglobulin. It's called something like immune induced Thrombocytopenia. Last week the haematologist put me on a new daily drug called Revolade. Will see how it goes but could be worth asking your new onc about.


Mets to brain, bone and lymph nodes Dx 1/18/2013, IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER-/PR-, HER2- Chemotherapy 2/4/2013 Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Surgery 4/12/2013 Lumpectomy: Right Radiation Therapy 5/7/2013 Breast Chemotherapy 7/15/2013 CMF Chemotherapy 1/8/2014 Taxol (paclitaxel) Dx 6/25/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Surgery 7/8/2014 Radiation Therapy 7/21/2014 Brain Targeted Therapy 7/30/2014 Avastin (bevacizumab) Chemotherapy 7/30/2014 Xeloda (capecitabine) Dx 12/12/2014, mets, ER-/PR-, HER2- Radiation Therapy 1/20/2015 Bone Dx 3/3/2015, 1/3 nodes, mets Chemotherapy 3/3/2015 Gemzar (gemcitabine)
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Oct 2, 2015 08:34AM Lindalou wrote:

Patty! So good to hear from you but sorry you are back in the hospital with sepsis and uti. Hoping the docs get that under control quickly and that you can head home for good this time. Thinking of you often and wishing you a speedy recovery.

Bosco, Sounds like you have had your share of hospital time as well. I have not had Revolade but perhaps someone here can address that. Best to you as you also recover.



Linda Dx 11/1/2007, ILC, Left, Stage IIB, Grade 3, ER+/PR+, HER2- Dx 8/2009, Stage IV, metastasized to bone Dx 5/13/2014 Targeted Therapy 4/21/2017 Ibrance (palbociclib) Chemotherapy 10/2/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 10/23/2017 Xeloda (capecitabine) Radiation Therapy External: Bone Radiation Therapy External: Bone Surgery Mastectomy: Left, Right Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy External: Bone Radiation Therapy Bone
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Oct 2, 2015 08:39AM PattyPeppermint wrote:

good morning friends. Hoping pain free days filled with laughter for all

To God be the glory! Live, laugh, love... Life is way too short. Dx 6/2013, Stage IV, ER+/PR+, HER2- Hormonal Therapy 6/29/2013 Femara (letrozole) Radiation Therapy 7/5/2013 Bone Hormonal Therapy 8/1/2015 Faslodex (fulvestrant) Targeted Therapy 8/1/2015 Ibrance (palbociclib) Chemotherapy 7/1/2016 Xeloda (capecitabine)
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Oct 2, 2015 10:22AM LindaE54 wrote:

Good morning Patty! I cannot begin to tell you how happy I am to see you here! But big boo on infection and hospital. Sending you big hugs and healing vibes.

Mommal - You and Dani have all my admiration. Can't believe the ex Onc's attitude. I don't have answers to your questions but I hope and pray things turn around quickly. In the midst of all that is going on, you still take the time to acknowledge some of us - WOW! But, don't worry about that, it's impossible to keep track of everything on this thread. As long as we can give you support, I think that's the most important thing right now.

Saying hi to all and wishing a beautiful day!

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/19/2013 External: Bone Hormonal Therapy 12/30/2013 Femara (letrozole) Hormonal Therapy 5/28/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/29/2014 External: Bone Radiation Therapy 8/28/2014 External: Bone Hormonal Therapy 9/25/2014 Femara (letrozole) Radiation Therapy 12/14/2014 External: Bone Hormonal Therapy 2/17/2017 Faslodex (fulvestrant) Chemotherapy 5/15/2017 Taxol (paclitaxel) Radiation Therapy 6/5/2017 External: Bone Chemotherapy 10/3/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)

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