Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 03:09AM - edited Oct 28, 2021 02:22PM by moderators

Posted on: Jun 22, 2012 03:09AM - edited Oct 28, 2021 02:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Oct 3, 2015 10:43AM 50sgirl wrote:

Caryn - I think that I can safely say that everyone on this thread, including me, would like to like to someday be the same status that you are - NED. We would still be stage iv, just as you are. That shadow will always be right beside us. I am always happy to see your comments here. You give me hope.

Cjanet- I am very happy to hear that you have no progression and that you will continue with current tx. I hope the new pain meds help you. You are in my thoughts and prayers.

Patty - I hope you are home soon and that you feel better. As you have discovered, many, many people are pulling for you.

Terre - I hope a change and diet (and I have heard that exercise can help) takes care of your diabetes. I have to say that the crappy sugary, carb-filled diet is a lot more fun than the healthy, low car, low fat, veggie and fruit rich route that we are all supposed to follow.

Hope everyone has a good weekend.

Lynne

Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 6/9/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/30/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/10/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/26/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin)
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Oct 3, 2015 11:36AM LindaE54 wrote:

Lindalou - Thank you for posting that link. It sure is good to see some "awareness" of MBC. Wonderful ladies sharing their experiences. However, at the risk of being a downer, a lot of emphasis was put on how they carry on with their lives (work, hobbies etc.) but not much on the many challenges MBC patients face (pain, constant tx, surgeries etc.) along this journey. Of course we can live full and productive lives but the dark side of the disease is absent. Good publicity/marketing for Pfizer. I wonder what they are doing to promote approval of Ibrance in countries other than the US.

Terre - bugger on diabetes! Hope things turn around quickly by changing diet habits.

Cristina and Patty - happy to hear your good news!

Try2staycalm - You truly are an inspiration to me.

HopeFaithCourage - Literally cracked up when I read your post. Hoping Brownsville is just around the corner!

Can't flip back and can't remember who has to change tx and make a decision after the week-end. Sorry but praying your next tx is gentle on you and mean on cancer cells.

Wishing everybody a good week-end!

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/28/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/17/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/5/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Oct 3, 2015 11:55AM Lindalou wrote:

LindaE, I agree that there should have been more on the challenges of MBC. I did like however, the page that lists the percentages and misconceptions of the public on what they thought MBC is. At least it's a start in getting people educated. Many of my friends still don't understand. Fortunately, all of you wonderful ladies do.

I'm starting a Fentanyl patch this weekend. Is constipation as bad as taking an oral med? I assume it may be.


Linda Dx 11/1/2007, ILC, Left, Stage IIB, Grade 3, ER+/PR+, HER2- Dx 8/2009, Stage IV, metastasized to bone Dx 5/13/2014 Targeted Therapy 4/21/2017 Ibrance (palbociclib) Chemotherapy 10/2/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 10/23/2017 Xeloda (capecitabine) Radiation Therapy External: Bone Radiation Therapy External: Bone Surgery Mastectomy: Left, Right Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy External: Bone Radiation Therapy Bone
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Oct 3, 2015 12:36PM gg27 wrote:

Bosco, I knew about the new trials page, but when I input the info, it only comes up with Trials in the US. There are currently 3 trials available in my area that don't show up, I guess because I'm in Canada, I'm sure there must in trials in the UK as well. I'm hoping that we can get a thread that shows all trials with start & end dates.

Linda, I agree with the "happy, happy, living with MBC, not a problem" I don't want sympathy, but once in a while it would be nice for some to remember that I can't do some of the things I've always done. I sometimes need to go home early because I'm tired or my back aches. A friend wanted my DH & I to rearrange her living room furniture for her because "we're so much better at it than she is!" Um, I can't be lifting furniture anymore. Others wanted us to come to a performance on Friday night after my infusion & didn't "get" that I can't do that anymore.

Cristina, ((hugs)) HFC, good luck! :) Wendy, not a gate crasher, but sometimes takes a while to get in the conversation, it's not that I'm ignoring you, but if I'm on my tablet, I can't go back & see who wrote what. Patty, you get out of that damn hospital bed!! :)

Hope everyone has a good weekend, it a beautiful day here, back out to the garden I go! Cheers, Dee


Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole breast: Breast, Lymph nodes Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone/liver/other, 9/20 nodes, mets, ER+/PR+, HER2- Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
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Oct 3, 2015 12:45PM exbrnxgrl wrote:

I hope that everyone who watches the Pfizer piece realizes that these are just snippets of some people's lives, and not a comprehensive look at all MBC patients. Remember, one of the women clearly states that she is not typical. Like so much else about bc, MBC is a broad spectrum which includes many different treatments, disease subtypes and effects our lives to varying degrees. The great commonality is that it will be the cause of death for almost all of us.
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Oct 3, 2015 07:10PM 50sgirl wrote:

I just returned home after spending the entire day in the ER then ICU with my husband. It turns out that he has a blood clot in each of his lungs. He has no known risk factors and looks and feels great. We started out on our walk this morning and he suddenly felt light-headed and short of breath and his heart was racing. We sat down and all symptoms disappeared in a few minutes. We thought maybe it was from a medication he just began for acid reflux, and I made him call his pcp. Pcp told him to go to er. Dr there said he was very, very,lucky. I must say that DH looks and feels great, and I have thanked God for alerting us to the issue in time. Hopefully, dh will be transferred to regular room tomorrow and be discharged on Monday. My son told me that my DH and I have to go back to work since we have both gone downhill since we retired. This is our first year of retirement, and it has been a doozy so far.

Thank you for listening. Here come the tears. Ugh!

Lynne

Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 6/9/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/30/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/10/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/26/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin)
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Oct 3, 2015 07:20PM Lynnwood1960 wrote:

Oh Lynne, so sorry to hear about your husband! Thank God you made him call his doctor and thank God his doctor did not brush him off! Your husband will most likely be on blood thinning medication now. Let those tears come...you have been through something very scary and I know your mind must be thinking about the "what ifs". But God is good and all will be well with your husband and hopefully he will be home soon. Get some rest, you must be exhausted

Dx 4/6/2015, ILC, Right, 3cm, Stage IV, Grade 2, 0/12 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib)
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Oct 3, 2015 07:57PM KiwiCatMom wrote:

Lynne - how terrifying! Glad he's getting the care he needs. Sending hugs

Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/18/2006 Lumpectomy: Left Hormonal Therapy 12/9/2006 Radiation Therapy 12/14/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/18/2013 Femara (letrozole) Radiation Therapy 2/18/2013 Bone
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Oct 3, 2015 08:21PM cjanet wrote:

Lynne that is so frightening! I'm glad you were so on top of things and called the PCP. Wow, you really need to get some rest and have some calmness in your life now. Hoping he's discharged soon

Cristina Dx 2/16/2012, IDC, 5cm, Stage IIA, 1/4 nodes, ER+/PR+, HER2- Chemotherapy 3/19/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/15/2012 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/1/2013 Reconstruction (left); Reconstruction (right) Hormonal Therapy 10/13/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/22/2015 External: Bone Hormonal Therapy 5/6/2015 Arimidex (anastrozole) Hormonal Therapy 8/4/2015 Faslodex (fulvestrant) Targeted Therapy 8/7/2015 Ibrance (palbociclib) Chemotherapy 5/30/2016 Xeloda (capecitabine) Chemotherapy 7/27/2016 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy Breast, Lymph nodes
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Oct 3, 2015 08:26PM Myra1211 wrote:

Lynne, I am so sorry you had such a frightening experience and your husband recovers quickly. The same happened to me 4 years ago, but since I had been in such good shape I did not pay attention. Next thing you know I was in ICU for 5 days on Heparin. Good luck you guys, just follow doctors orders. Myra.

Dx 10/1998, IDC, Grade 2, 3/10 nodes, mets, ER+/PR+ Surgery 12/9/1998 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 1/15/1999 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Hormonal Therapy 5/19/1999 Radiation Therapy 7/9/2014 Bone Hormonal Therapy 7/10/2014 Femara (letrozole) Hormonal Therapy 11/9/2014 Faslodex (fulvestrant) Hormonal Therapy 3/8/2015 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)

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